I’m new here!
Hi, my name is msinthe806.
👩🏻🎨 Artist 🐈⬛ Rescue Cats 🤘 Punk and Ska 🧵 Sewing
📍Nor Cal📍Maui 📍Texas
#MightyTogether #TrigeminalNeuralgia #Anxiety #Depression #BipolarDisorder #Migraine #Fibromyalgia #PTSD #occipitalneuralgia
Hi, my name is InnerLioness. I'm here because I have been diagnosed with the following:
Chronic head and neck pain sucks. Neurologist tells me I have to live with Trigeminal Neuralgia pain that Oxcarbezapine hasn't taken away. Topamax doesn't work for my migraine prevention (not looking forward to THAT withdrawal again). P.S. - Topamax makes you lose words & feel stupid! Injections in back of my head for occipital neuralgia are painful and debilitating for days afterwards - with sometimes marginal results. But, the injections are better than nothing. I think the Cervicogenic headaches may make migraines, etc worse, but who knows! Physical therapy has not worked ( I have done at least 40 to 50 sessions). Last ER visit at least gave me some short-term relief; Imitrex, Dilaudid, and Norflex. I realized that I have to bend my neck slightly downward while eating to avoid onset of nausea, dry heaves, vertigo, neck pain and severe headache. I avoid loud noises, stress and bright lights as they are migraine triggers. It's been a BAD pain week for me; I try to be positive; count my blessings. Next neurologist appointment in 4 days - wish me luck!
Hi, my name is ShelbyBelle. My life completely changed when I was diagnosed with an illness that went undiagnosed for 10 years. Now I finally have an answer as to why I’m in so much pain and going blind, but adjusting after the diagnosis has been difficult.
Hi, my name is SpoonieSensei. I'm here because bringing awareness to the illnesses with which I fight and many others is crucial to me; awareness necessarily informs, and the the more patients, doctors, and others are informed the more research will be sought out and funded. I fight for every chronic illness warrior out there as well as for my many friends and acquaintances who have been taken by illness and a lack of awareness and information. I don’t want anyone suffering even like I have had to suffer and that motivates me every day!
When you attempt to put off blinking because your eye feels like it is getting poked with a paper clip #TrigeminalNeuralgia
Today I am fighting thoughts of being completely defeated.
I know from my past experiences that I will make it through, but today I am struggling to hold onto the truth of that.
I am grieving the fact that I was well for so long after my surgery. I want that pain free time to come back. I may have grieved liked this last before, but my meds have made me forget how it truly was. I have forgotten many months of my life because of them and I don't want to deal with that again. I just want to be well.
So today, my battle is all in my head, but I can only look forward to when I wake up tomorrow and have a new chance to see my life with this disease differently.
Hi, my name is zargon20. I'm here because I need some people to connect with to support and get support from with my trigeminal neuralgia battle.