Why I Write About My Chronic Illness


It all started with me reading an article. I was on Facebook reading an article from a support group, and I had the idea to write my own article for The Mighty. I wrote my first article about the positives of my condition, and the next thing I knew it was published. Ever since then, I have been hooked. I am hooked on writing, I am hooked on advocating for chronic illness, and most importantly, I am hooked on the feeling of simultaneously doing both.

My first article was just for the fun of it, but what I didn’t realize was how much it would help others in my chronic illness support groups. When I posted the article, I was met with positive comments, shares, and friend requests. At that point, I realized I could really help others from my groups. I have since written countless articles about experiences I feel others in my groups can relate to. I have come to love the feeling of posting an article in a group and knowing it can help others going through the same experiences.

Recently I realized that I am not only helping others, but advocating for my condition in the process. I have a rare disease that few doctors know about, so by writing, I am spreading great awareness. I have had terrible doctor’s appointments where the doctor has never heard of my condition, but I have since decided that the more I write, the more awareness there is and therefore fewer ignorant doctors. I figure, if I do not advocate for my condition, who will?

Since I have started writing, it has turned into my outlet for emotions about my condition. After bad doctor’s appointments, I write. On bad pain nights, I write. On those few good days, I write. It has turned into my therapy without me even realizing it, and I will forever be grateful for The Mighty giving me a place to express my voice so young.

I encourage any of you with chronic illnesses to do the same as I did. Take a chance, write something amazing, and learn to advocate for yourself.

Watch Kaitlyn’s Meet The Mighty Facebook Live Q&A below:

Image via Thinkstock Images


Find this story helpful? Share it with someone you care about.


Related to Chronic Illness

Beautiful girl is smiling and looking at camera while standing among clothes in her dressing room

The 10 Essential Pieces in My 'Chronic Illness Closet'

I have several chronic illnesses, including Ehlers-Danlos syndrome. I adore fashion, but I find I have to adapt my wardrobe to accommodate my chronic illnesses. Who says a girl can’t be both fashionably dressed and chronically ill at the same time? The 10 essential pieces and accessories in my wardrobe with having a chronic illness are: 1.) Bras. Bras [...]
Seascape, a woman on the beach, watercolor illustration and paper texture

Why Giving Up on Finding a Cure for My Chronic Illness Improved My Quality of Life

Hello, my name is Kira, I live with a chronic health condition, and I gave up on finding a cure several years go. After over 20 years of living with chronic pain and illness, I’ve accepted that if I haven’t already found a cure, it’s unlikely I will ever find one unless scientists discover something [...]
Live music background. Show and public

What Going to Concerts Is Like Now That I Have Chronic Medical Issues

As anyone who knows me will tell you, I am a music obsessive. I listen to music as much as possible and love discovering new music. I even interned at a music magazine in Dublin when I studied abroad there during my junior year of college. An important part of consuming music is, of course, [...]
Emily and Scott Filmore on their wedding day

How to Support a Loved One With a Chronic Illness

My husband, Scott, and I wrote this post together to address a recurring topic of conversation in health support groups. And that issue is the difficulty of spouses, partners, parents, siblings, children or friends of people with chronic illnesses to accept the realities of their loved ones’ health situations. This is often compounded for people with [...]