Chronic Illness

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Chronic Illness
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    What are your hydration habits?

    Let’s talk water. How much do you drink? Do you constantly feel dehydrated? (You’re not alone, one stat claims that 75% of Americans are chronically dehydrated.)

    If it’s a really big struggle for you to increase your H2O intake, what makes it hard?

    If you’re normally well hydrated, any tips or tricks for how you do it? (Mighty staffer Kat drinks 2-3x the amount of the water if there’s a straw involved!)

    #MightyMinute #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Parenting

    8 reactions 5 comments
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    Heart Failure

    I think I am entering into the endgame at this point. Heart failure seems like the most likely cause. Tomorrow is my youngest‘s ninth birthday, so I need to make sure I hold on a few more days. It sucks that it’s the holidays right now, and no matter what I am going to pass close to special days for people. I just hope that they can remember the good and not have it be something that reduces their enjoyment. That would be very sad because I absolutely love the holidays! I am excited to celebrate his birthday with him tomorrow.

    Health Update
    youtu.be/nb1X_Hir7nI

    #Abunchofrarediseases
    #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
    #PTSD #FunctionalNeurologicalDisorder #Migraine #Asthma #CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
    #RaynaudsDisease #MentalHealth #Depression #Anxiety
    #ChronicPain #ChronicIllness #Disability #DistractMe #dying
    #Chronicpainwarrior

    9 reactions 1 comment
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    Your story

    What is your story?
    Is it happy or sad
    Have there been times
    When you’ve just been so mad
    That you threw things
    Smashed them
    Against the wall
    And hoped that time
    Would take care of it all
    Looking in the mirror
    Hating who was looking back
    Feeling like life is
    One big attack
    Your story may be full
    Of twists and turns
    Times where you’ve been burned
    But one thing bears repeating
    No matter what’s around the bend
    It’s nowhere near time for your story to end.
    #Depression #Anxiety #PTSD #ChronicIllness #Disability #MightyPoets #CheckInWithMe #Addiction #MentalHealth

    11 reactions 2 comments
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    I'm new here!

    Hi, my name is MiaR. I'm here because I have a chronic illness that is disabling.

    #MightyTogether

    9 reactions 6 comments
    Poll

    And if you're still looking for support, let us know what you look for in a support team. We're rooting for you!

    Select all that apply
    14 days left
    Family
    Friends
    Partner
    Physical, occupational, vestibular, or speech therapist
    Acupuncturist or other alternative medicine provider
    Primary care provider or general practitioner
    Psychotherapist or social worker
    Specialist physician (including psychiatrists)
    Online community
    Another source of support we haven't already mentioned!
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    When was the last time you asked for help? How did it go and what was it for?

    Asking for help can take a lot of courage, especially if ableism and self-doubt have made you feel unworthy of it in the past. Everybody needs to ask for help at some point, but it can still feel a bit nerve-wracking every time you have to do it.

    What happened the last time you asked for help? Were you able to get the help you needed?

    Mighty staffer Skye shared that she recently asked for help getting to and from her doctors’ appointments this week. Luckily, she was able to get appointments that worked with her family’s schedules and her family has just been excited to see her working on her health. (Although she did have to walk to the dentist!)

    If you recently got the strength to ask for help, good for you! If not, we’ll keep practicing together.

    #52SmallThings #CheckInWithMe #MentalHealth #ChronicIllness #Disability #RareDisease

    62 reactions 21 comments
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    Law of Attraction

    What do you guys think about this? Do you agree that the more you focus on something the bigger it gets? If so, what do you think happens when you focus on negativity? Do you think a change in perspective can help you? Or is this just silly talk?

    ~ Thanks to all. Thanks for all. ~

    Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment a simple reply or heart, I’m sure they would really appreciate your team support. What do you say?

    #MentalHealth #Depression #Suicide #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #OCD #ADHD #Fibromyalgia #EhlersDanlosSyndrome #POTS #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Schizophrenia #ComplexRegionalPainSyndrome

    210 reactions 43 comments
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    What accessibility modifications have you made in your house to accommodate your chronic illness?

    Living with a chronic illness can mean making changes to the environment around you to help better fit your needs, and that's 100% OK.

    Have you made any modifications in your home to accommodate your chronic illness? How did those modifications help? Were there any pros or cons?

    P.S. Need a relevant Mighty read? Check out this insightful new Mighty article by Tierra Drollinger Everything You Need to Know About Getting a Walk-in Tub for ...

    #ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

    12 reactions 10 comments