Woman With a Facial Port-Wine Stain Birthmark Asks 50 Artists to Draw Her
Walking down the streets of New York City for the very first time, I noticed several artists drawing tourists in the middle of the pathways in the city. Gazing at their artwork, I couldn’t help but wonder, “If I asked them to draw me, would they include my facial, port wine stain birthmark? Would they ask if I want it included in the image? Or would they make that decision without asking me?”
As I started this journey, I gave each artist only two rules:
1. Each piece must remain politically neutral.
2. My character must remain modest in her attire.
Sometimes when we look in the mirror, we don’t like what we see. We’re having a bad hair day, a new pimple randomly appeared on our face over night, we’ve been bullied, or we’ve just never been friends with our reflections.
While this blog entry rooted from an idea attached to my birthmark, I’ve had days where I’ve struggled to embrace my appearance for “normal” reasons. My hair never wants to cooperate, I’ve always struggled with my weight, and while my birthmark as a whole doesn’t bother me, my face isn’t symmetrical because of the extra blood flow… and that’s all my personal, internal dialogue going on there. I’ve also been turned into a meme because of my difference, been told I’m “contagious,” and was once approached about being on the shows “Too Ugly for Love”/”The Undateables”.
Trust me, I get it. It’s hard. It can be a constant, uphill battle – both internally and externally.
Yet, in the last four months, I’ve worked with 50 artists, and no two artists have drawn me the exact same way. So, no matter how we see ourselves in the mirror, odds are… that’s not how the rest of the world sees us.
Artists of San Francisco
To start my social experiment, I went to San Francisco. The day I went, there were very few artists out working due to some morning rain. However, I was able to meet four different artists. Here are the images that were created:
The first artist I met asked me if I wanted my birthmark in the image. With a smile, I told him, “Sure!” We talked the whole time, getting to know one another. At some point it came up that I was once turned into a meme – which went viral to 30 million people. Excitedly he exclaimed, “I thought you were the meme lady! Wow. I never thought I would see someone’s picture online, then see them in-person, and draw them.” He is from the U.S., and you can follow him here on Instagram.
As this artist from Russia started drawing me, he pointed to my face and asked, “Is that permanent? Do you want that in the drawing?” He told me he often asks men the same question about their facial hair because “maybe they forgot to shave that day.” About 15 minutes later, he told me, “I don’t know if this is rude to say or not – but it looks as though you were punched in the face.” #YouShouldSeeTheOtherGuy
After my interactions with the four artists in San Fransisco, I knew I needed to take this social experiment a step further. It was time to take it online.
Going to both Craigslist and Fiverr, I emailed several artists, asking them to draw me. Two of the artists requested at least five photos, so I made a rule: every artist who draws me will receive the exact same photos. I sent two photos where my birthmark is super obvious, two where it’s hidden by special makeup, and one where it still shows – but the color is calmed down due to a lower-end makeup brand. After attaching all five images, I ended each email with, “Please let me know if you have any questions! I can’t wait to see what you come up with.”
I emailed eight artists online. In the end…
- One artist Googled me and found my blog, and quickly learned my birthmark is something I celebrate.
- One artist added my birthmark without asking about it.
- Two artists asked me if I wanted my birthmark in the image.
- The rest initially left it off, until I asked them to include it.
Here are some of the images I received, and some of the stories behind them:
Many of the artists left my birthmark out of the image when they weren’t told to add it. However, I was OK with that, knowing there is so much more to me than my birthmark. If an artist didn’t include the mark without my prompting, I would ask them why. This artist (from New Zealand), for example, explained, “You’re birthmark wasn’t left out intentionally (I happen to think it’s beautiful). It’s only a part of the process in creating the art. The style only shows the shadows that are created by outlines (hair, face, glasses) and depth of facial feature curves (mouth, eyes, nose, smile lines). If your birthmark happened to have deeper lines like a scar perhaps, then the lines would be there to show it. I certainly hope I didn’t offend you – I really do happen to think you’re birthmark is beautiful. :-)”
This artist from Venezuela specializes in a few different styles, one being Disney. Going off my favorite Disney princess, Belle, this is what was created. And since it’s based off Belle’s character, I asked him to include the book, “Looking for Lovely,” which was written by one of my favorite authors, Annie F. Downs. “Looking for Lovely” was written to help encourage others to search for the little lovely things in life during the good times and the bad – which is what I’ve strived to do for years. Life is too hard to dwell in the hardship, and those little lovely moments are crucial, which is a lesson I learned early due to my journey with a facial difference – and just by living every day life. But y’all… Read. This. Book. Find your lovely.
The cool thing about this Picasso-style image is that the artist (from Argentina) included my birthmark without asking about it. They also added purple highlights – which I sometimes have, but weren’t included in any of the images I sent them.
This artist from Venezuela originally left my birthmark off the image she created. Messaging her back, asking why it was left off, she explained to me, “I didn’t know if you wanted your birthmark. In the beginning I wanted to make a lot of flowers on your face that represent the birthmark, but I was not sure. So I just let the flower around you.” In addition, she also explained she has a cousin who has a birthmark just like mine. While she’s never drawn her cousin, she is certain her cousin would ask her to leave off her birthmark.
A Social Experiment Turned into a Celebration
After a while I wondered how the images would differ if I intentionally asked people to include my birthmark in their art. What would people come up with if I asked them to celebrate the birthmark and/or a part of my story?
Encouraging me along the way, when the artists found out about my project, several of them offered to draw my images for free and/or at a discounted rate – which was extremely kind of them, and I am forever grateful for their sweet hearts.
Interestingly enough, one artist (from Japan) left my birthmark off, even after I asked them to include it from the get-go. Also, out of all the artists I messaged with – only one told me they did not want to be a part of my project. When I inquired why, the artist from Spain told me, “…This is not my type of project. My beauty in my eyes should not be the same to you, so I think I can’t satisfy you in my own ways, it will be different which may worry you.” That being said, I’m not sure if they meant they didn’t find my birthmark to be beautiful, or they were afraid of being given full creative rights to celebrate it without specific parameters.
Here, however, are some of the amazing pieces I did receive…
My good friend, Rick Guidotti (from the U.S.), is a camera guru. He’s an award-winning, former fashion photographer who used to photograph models such as Cindy Crawford. Through his organization, Positive Exposure, he now travels the world photographing people with different medical conditions, celebrating every single person he meets. (He’s even done a TEDx Talk, which you can find here.)
This was created by artist Ossain Cardenas, from the U.S. Looking me up on Instagram and here on my blog, he saw a picture of my favorite “She Will Not Be Moved” necklace and included it without any prompting. He told me, “I felt the message on that necklace was the perfect piece to complete the portrait… I believe it gave my interpretation of your image more power.”
This artist is from Serbia, and while sharing what inspired this image, she told me, “I was thinking: so what if she has a birthmark on her face, she has energy that can hold the whole universe.” Definitely a favorite! (OK. Real talk. I may say that about every piece listed here… but this one is definitely on my “top 5” list.)
While I’ve never given a TEDTalk, it is on my God-sized dream board to do so, and it was important to me to have this image drawn. Working with the artist, she asked me if I preferred a more realistic look or more cartoon style. Wanting to give her wiggle room to be as creative as she wanted, I let her pick – with the request of including one of my favorite necklaces from Natalie Grant’s collection, “She Will Not Be Moved,” and a bracelet from 3Strands Global – an organization fighting back against human trafficking. This artist is from South Africa, and as it turns out, we both have TEDTalk dreams! I want to give a talk, and she wants to do animations for them. (What are the odds I would ask an artist to create an image representing my TEDTalk dream and they would also have a TEDTalk dream too?)
In January, at an event called Dare to Be, one of my God-sized dreams turned into a God-sized reality: I shared the stage with the woman who said “yes” to speaking, so I could say “yes.” I shared the stage with Natalie Grant and her British pal, Charlotte Gambill. While I have a video of this moment, I don’t have a good picture. So, I asked my new friend, Sara Erb (also from California), to draw this moment for me. Once again, I gave her freedom in how she chose to celebrate this moment, and I love what she came up with.
The sweetest 5-year-old in the world drew this picture for me. Rayna, my cousin, drew us together by a house that “we’re going to buy and live in together for forever.” It doesn’t get much sweeter than that. (Rayna is from California.)
My dear friend, Brittany Echols (from Alabama), drew this piece for me. After drawing this piece, she told me what inspired her creation: “While I was creating this piece I thought about the purpose behind the piece. Often beauty is defined in certain terms or ideas. It seems to be black or white. This is beautiful, and this is not. Beauty is often found in the most unexpected places, and it’s not black and white. Beauty is often found in one-of-a-kind pieces. Crystal Hodges is that through and through! She is beautiful and one-of-a-kind on the inside and out!” You can follow Brittany’s blog here.
A couple of years ago, my friend Denise Nicholes, wrote a superhero story for me. So, in turn, I thought it would be fun to have a superhero created in honor of the story Denise wrote for me. The character’s name is Amethyst, which is represented by the “A” on the shirt. And I have to say – I love the pink highlights in the hair!(This was drawn by an artist here in the U.S.)
Let’s be real. Floating books, flying pens, and a map? This. Is. So. Me. (This artist is from Indonesia, and she totally gets me.)
I’ve probably said this about all the images during the last four months, but this is definitely one of my favorites. This artist is from the beautiful country of Uruguay and even included my dog, Ruby. I mean, come on, y’all… I’m a paper doll! How cool is that? When I asked her about how most people react to being drawn, she told me, “Sometimes people want me not to draw their glasses or make them look younger, or straight hair instead of curly. Nobody seems really happy with themselves!… I thought that you couldn’t be prettier: Your purple spot seems to me a watercolor brushstroke!”
While I gave this artist the freedom to be as creative as she liked, I did request this image. It took me nearly 24 years before meeting anyone with the same conditions I have (a port-wine stain birthmark and Sturge Weber syndrome), and I wanted this moment to be celebrated. Drawn with me is my friend Sophia. She’s from Australia and has quite the story. To learn more about Sophia and to hear more of her story, you can find her page here on Facebook. The artist who drew this is from Macedonia and was excited to be a part of this project.
This artist is from Venezuela. This was the first time she’s drawn a person in this style, and I think she did a great job! Looking at this art piece, my friend Gabby told me, “I like that she made your face asymmetrical, since the birthmark does affect the symmetry.”
Trying to figure out the right color for my fin and for the background, we talked about different possibilities. I threw out a few colors, one being blue, since that’s the color of my eyes. The artist replied, “I liked your suggestion of blue because it helped bring out the color that makes your birthmark shine and be truly you. :)” This talented artist is from the U.S., and you can follow her here on Instagram.
Drawing me in a Tim Burton style, this artist from Macedonia told me, “Like the sky, every person is beautiful. The sky can have loads of shapes and colors, but no matter what it’s still beautiful. Behind the clouds the sky is always clear.”
This was drawn by my new friend, Bryce Westervelt, from the U.S. He told me some stories about some clients who requested to be modified so much that they became more of a “Utopian” version of themselves, after requesting some major artistic “plastic surgery.” Talking about my project, he told me, “It is, in a way, very vulnerable to allow someone else to depict you – to dare to be seen how someone else sees you.”
Harry Potter? #YesPlease (This was drawn by an artist from Russia.)
OK. So I promise this was created before I found out about the Pokemon GO app. Gotta love being a 90’s kid! (This was created by an artist from Mexico.)
Interestingly enough, while I often have jokes about color coordinating my clothes to my face/birthmark, I literally never wear orange. Yet, so many of the artists incorporated orange into their creations – and it looks amazing. (This artist is from Pakistan.)
Several people have told me in the past that my birthmark looks like a heart. Recently, an article was published about my story, which also describes it as a heart shape. So, I thought it was interesting when this artist from Bosnia and
Herzegovina saw it the same way.
My dear friend, Anna Donahue, drew this for me. She’s 11 and drew this before ever meeting me. This summer I had the joy of meeting her and her family last month, and hearing about Anna’s journey with spina bifida. (You can learn more about a nonprofit her mom, Annie Beth, started called Signposts Ministries here.)
I don’t know where you’re at in your life journey. But please know – from your physical appearance to your talents and passions, you are beautifully (or, swaggfully, if you’re a dude) and wonderfully made. You’re talented and one of a kind. Your dreams are worth fighting for, and you are worth more than you know.
My friend…you are a rockstar.
It’s time to “Embrace You.”