Port-Wine Stain Birthmark

Feed
Contributors
Join the Conversation on
Port-Wine Stain Birthmark
213 people
0 stories
603 posts
  • About Port-Wine Stain Birthmark
  • Explore Our Newsletters
    • What's New in Port-Wine Stain Birthmark
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Post
    Shay Roberts
     • 
    ·
    @Winestain79
    October 30, 2019 Sent from app
    See full photo

    port wine stain birthmark #Beauty #Port -wine stain

    Don’t hide your Port wine stain birthmark!! It makes u who u are!!!

    2 comments
    Share this post Share
    Save
    Post
    Nause Kiddos
     • 
    ·
    @nausekiddos
    December 14, 2018

    how did you guys embrace your birthmark? I can't seem to do mine. I am 13

    #PortWineStainBirthmark

    1 comment
    Share this post Share
    Save
    Post
    Crystal Hodges
     • 
    ·
    @crystal_hodges
    September 26, 2018

    Are there phrases or terms you wish people wouldn't use when it comes to your illness or condition?

    ...What do you wish people would say instead?

    People often call me "disfigured" because of my facial birthmark. But instead of saying I have a facial "disfigurement," I'd rather people say I have a "facial difference." My face is just a little different than the norm, and that's OK. I'm not disfigured, which has such a negative feeling and connotation behind it.

    #RareDisease #ChronicIllness #FacialDifference #MentalHealth #Anxiety #Depression #Education #Birthmark #PortWineStainBirthmark

    9 comments
    Share this post Share
    Save
    Story
    A picture of the writer.
    A picture of the writer.
    Crystal Hodges
     • 
    Port-Wine Stain Birthmark
    August 23, 2018

    When a Stranger Yelled at Me in San Francisco Because of My Birthmark

    Yesterday, I felt beautiful. With my favorite glittery eye shadow on my eye lids and eye liner that made my eyes pop, my makeup for the evening was on point. As my fiancé, Richard, and I stood outside of the Museum of Ice Cream in San Francisco, waiting for our turn, we spoke of our wedding [...]
    Share this post Share
    See all comments 2 103
    Save
    Story
    Carrie Underwood performs onstage in a black outfit.
    Carrie Underwood performs onstage in a black outfit.
    Crystal Hodges
     • 
    Port-Wine Stain Birthmark
    August 7, 2018

    The Other Side of Carrie Underwood's Comment About Her Facial Scars

    In January, Carrie Underwood publicly shared that during a fall a few months prior, not only had she broken her arm, she also injured her face. Not knowing how her face would look in the months to come, she shared with her fans, “When I am ready to get in front of a camera, I want [...]
    Share this post Share
    See all comments 4 158
    Save
    Story
    dog and girl staring
    dog and girl staring
    Crystal Hodges
     • 
    Port-Wine Stain Birthmark
    July 31, 2018

    13 Ways People Stare at My Facial Difference — as Told By GIFs

    If you live with a physical difference, you know the stares. Go into store? Someone’s staring. Go into a restaurant? There’s someone watching your every move. Visit a new church? You likely won’t leave the parking lot without another glance lingering a little too long. Living with a facial difference my whole life, I’ve come [...]
    Share this post Share
    See all comments 1 3
    Save
    Story
    A picture of the writer holding an icepack to her head after a laser treatment, as she sits in a hospital bed.
    A picture of the writer holding an icepack to her head after a laser treatment, as she sits in a hospital bed.
    Crystal Hodges
     • 
    Port-Wine Stain Birthmark
    July 27, 2018

    13 Things to Remember About the Health Advocates You Follow Online

    This year has been a really hard advocacy year. Actually, it probably has been the hardest one yet. Because there’s so much positive to share in my journey (speaking opportunities, articles, media interviews, etc.) I think that it’s equally as important to be open about the hard, vulnerable, and raw stuff too. This year I’ve [...]
    Share this post Share
    See all comments Be first 81
    Save
    Story
    A photo of Crystal and her fiance, as Crystal leans on him while holding an icepack to her face.
    A photo of Crystal and her fiance, as Crystal leans on him while holding an icepack to her face.
    Crystal Hodges
     • 
    Port-Wine Stain Birthmark
    June 19, 2018

    The Beautiful Ways My Fiancé Chooses to ‘Jump in’ to My Life With a Facial Birthmark

    It was obvious on my dating profile. It was shown in all my pictures, it was written within my “about me” section. I was intentional about it being obvious. Granted, I was doing an online dating experiment to see how people react to those with facial differences, like mine – a port wine stain birthmark [...]
    Share this post Share
    See all comments Be first 7
    Save
    Story
    confused britney spears
    confused britney spears
    Crystal Hodges
     • 
    Port-Wine Stain Birthmark
    May 14, 2018

    Common Ways People React to My Facial Difference - as Told by GIFs

    When you live with a facial difference, life is never boring. People are constantly in awe when I share stories about how people react to my face. From harsh comments to staring, I do my best to not only describe the stranger’s words but their tone and body reaction. But in a world where GIFs [...]
    Share this post Share
    See all comments Be first 3
    Save
    Story
    Mother and daughter smiling at camera.
    Mother and daughter smiling at camera.
    Rhonda Hodges
     • 
    Port-Wine Stain Birthmark
    March 11, 2018

    Lessons From My Daughter With a Facial Port-Wine Stain Birthmark

    The first time I can recall seeing someone with a facial port-wine stain birthmark was when I was pregnant with my daughter, Crystal. I was in a department store shopping for baby supplies for this new little one who was going to be entering our world soon. When I saw the lady with the birthmark, [...]
    Share this post Share
    See all comments Be first 412
    Save