To My Friend With Multiple Sclerosis Who Passed Away

Dear Friend, 

It has taken me a couple of months to write this letter, but I will try by best to speak out as much as I can, no matter how much it makes me cry. 

I knew you for one short summer — the same summer I got diagnosed with Ehlers-Danlos syndrome (EDS). It was too short in my opinion. But the talks we shared were long and personal, and through work, I made a friend.

I lost a lot of people last summer. From cancer to addiction, I said goodbye when I didn’t want to.

And then, I lost you. 

I was thankful the universe gave me you, a spunky, fun-loving 33-year-old with multiple sclerosis who told me stories about traveling and working hard for what you want. 

Then I became angry that the world had taken you back and left me to wonder how short life is. 

In October 2016, I boarded a plane for Europe. I bought the tickets while working with you and told you the minute I made plans. 

After my EDS diagnosis and losing you, I didn’t want to get on that plane. I didn’t want to walk anywhere, see anything or do anything. I was tired, emotionally and physically.

But then I remembered how you told me that you wanted to see pictures; you believed that I could live to the fullest, despite everything, so much that I wanted to believe it, too. 

You told me once you didn’t believe in God after fighting in Iraq and seeing everything you saw. I couldn’t argue with you, but I now wish I could go back and tell you I believed in you. And that I believe good people don’t come around too often enough. I believe in you and believe that God believes in you, whether you believed or not. 

I believe because you believed in me more than I believed in myself. 

I know I’m going to use the word “believe” a lot, but I believe that with your spirit, your genuine kindness towards people and because of the fact that you took a chance and believed in me, I believe I will see you again. 

And you’ll save the best seat in the house for me, and we won’t be battling these diseases any longer. 

I can’t promise any new medical breakthroughs by the time I see you, but I can promise you that I’ll fight just as hard as you did. 

We’ll be so healthy up there that we might not recognize each other. But I loved your spirit, and I’ll recognize your smile.  

Love You Forever,  


We want to hear your story. Become a Mighty contributor here.

Lead photo by Thinkstock Images

Find this story helpful? Share it with someone you care about.

Related to Chronic Illness

wrapped presents under a christmas tree

5 Tips for Making Holidays With Chronic Illness More Enjoyable

The holidays can be a fun and exciting time for many people. You get to visit family and friends you may not have seen in a long time. There are tons of foods you don’t get to enjoy on a regular basis. You may get to travel and people give great gifts. Though what sounds like [...]
woman covering her mouth with her hands

7 Sides of My Chronic Illness Most People Don't See

I’m always very open and honest about my chronic illnesses (or at least I try to be), but there are still sides of my condition not everyone is aware of. Why? Because my health makes me quite vulnerable and only people who live with me see me at my worst. At the moment I live with [...]
woman walking out of tunnel

How Living With a Chronic Illness Helps Me Find My Purpose

Mark Twain once said, “The two most important days of in your life are the day you are born, and the day you find out why.” Although a single epiphanic moment would be nice, finding my purpose is an ongoing journey for me.   I always knew — from a relatively young age — that [...]
mantel decorated for christmas with garland, ornaments, and a santa

How to Help Your Chronically Ill Loved One Get Through the Holidays

The festive season is upon us! Cue lots of excitement, lights, parties, family gatherings, noise and colder weather (in the northern hemisphere). It’s all hustle and bustle on the main streets and Christmas commercials are on constantly. For those going about their yearly routine, it is easy to forget about some members of society. We are encouraged to check [...]