Side profile of a mid adult woman

Will You Still Love Me With My Bipolar?

113
113
2

What is it like to love somebody who has bipolar disorder? What specific challenges does it involve? Is it possible for it to work, or is it too much of a risk? And is it really worth it?

Firstly, love isn’t always a choice. Sometimes we can’t help but love and care for family and friends, and often we don’t choose who we fall for romantically. And love is never easy: there are always obstacles, challenges and difficulties. Love is for better and for worse, in sickness and health, and some loves last for all eternity while others burn out leaving only hurt and memories behind.

Any kind of love is a risk. You risk both your own heart and feelings and those of the other person — something that may be even more dangerous for an already fragile and vulnerable person. And something possibly unknown and scary to you. And I’m not just talking about romantic and intimate relationships. I’m talking best friends, family, other friends and even colleagues and people we are regularly in contact with.

Well, here’s the thing. I’m not going to deny the issues. Bipolar disorder can be darn hard work! The constant worry, the reliance and sometimes over-reliance on you, the pressure on you to try and help us stay well. The amount of help we may need if we breakdown or become extremely unwell. The unreasonable things we may attempt to involve you in when we are manic or the hurt you may feel when we isolate ourselves. Then there are the ridiculous things you may need to protect us from and the guilt you may feel when you become involved in a distressing episode or hospital admission. And perhaps worst of all it must hurt like hell to watch someone you care about inflict serious harm upon themselves.

But here comes my defense. People with bipolar disorder have a great deal to give. We are kind, we feel things more deeply than anyone else, we take you exactly as you are. There is nothing we hate more than feeling we have hurt someone else. We see beauty in the smallest of things, and we share that with you. We are funny, and we may be slightly wild. You will never get bored of us. We have been through hell several times, so we are pretty much unshockable. You can tell us anything and we won’t judge you. We will also never break your trust as we know too well how that feels. We can love you at your best and your worst, and we will stand by through anything whether or not you are right or wrong. And though it may feel like it at times we don’t actually expect you to “fix” us and we do know you can’t always help. And that’s OK too.

We love you for who you are, and we just want you to love us. The bipolar is a part of us and it doesn’t seem to be going anywhere. Yes, it can be so hard to live with. But people with bipolar have so much love to give, and I do believe that despite the challenges it is possible to love us back. After all, there is no limit on the love we can give or receive.

We want to hear your story. Become a Mighty contributor here.

Thinkstock photo by Medioimages/Photodisc

113
113
2

RELATED VIDEOS

JOIN THE CONVERSATION

10 Bipolar Basics for the Newly Diagnosed

355
355
3

If you have recently been diagnosed with bipolar disorder, there are a few basics you should know. You’ll likely find them out on your own, but it might take a while.

So here are some tips to help you on your journey:

1. Being bipolar isn’t necessarily a tragedy. It’s a chronic illness. At times it’s better, at others, worse. It’s not a death sentence and it’s treatable. You can still live a full and satisfying life.

2. You will need help. To live with bipolar disorder, you need a support system. Unfortunately, your friends and family may not be all that supportive. Fortunately, there are online support groups. But the most important parts of your support system – at least at first – are your psychiatrist and your psychotherapist. I recommend having one of each. Psychiatrist for medication and therapist for talk therapy.

3. You will most likely need medication. And the odds are good you might need them for the rest of your life. Don’t panic. After all, diabetics need insulin, usually for life. You may hate taking pills. You may hate the idea of being dependent on them. You may hate the fact they remind you of your brain’s difficulty functioning. But realize meds will make your brain’s functioning less difficult. They are worth the hassle.

4. Everyone is different. Everyone’s symptoms are slightly different. Everyone’s medications are slightly different. Everyone’s reactions to their medications are slightly different. A support group can help you with general information, but it cannot tell you what is ultimately best for you. Your particular symptoms and your unique version of bipolar disorder may well require different medications in different amounts than your friends. And you may have different reactions to them. Some have no effect at all on one person, but are lifesavers for another.

5. Getting better takes time. Once you have your diagnosis and your medication, don’t expect to feel better quickly. It takes time. Then your doctor may assess how well the medication is working and change the dose or even the medication itself. Then you may go through another six weeks of waiting for the new dose or drug to take effect. Each case of bipolar disorder requires a medication regimen tailored specifically to the individual.

6. There are several different types of bipolar disorder. The two main types are called type 1 and type 2. Type 1 is the classical bipolar disorder, which used to be called manic depression. Type 2, a more recently identified version of the disorder, often manifests as mostly depression, possibly with hypomania, a less severe version of the ups that accompany bipolar 1. Other forms of bipolar disorder are rapid cycling, in which one’s mood states alter quickly, even within a few hours. Another part of bipolar disorder is called a mixed state. Mixed states occur when a person experiences both extremes of emotion at the same time – for instance, depression and irritability, or fatigue despite racing thoughts.

7. The odds are that you already know someone with bipolar disorder. One in five Americans will have a psychiatric illness in a given year. But because we don’t talk about it, sometimes no one ever knows. When bipolar disorder is treated properly, a person with the illness can maintain function in society and choose whether or not to share the diagnosis with friends and coworkers. Many people choose not to because of the stigma surrounding mental illness. It’s a valid choice, but it can cut the affected person off from possible support and understanding from others.

8. Relationships can be difficult, but are not impossible. Relationships are difficult for everyone. People with bipolar disorder have relationships that are difficult, too. The disorder may make relationships even more difficult, especially when a loved one does not understand the symptoms, medication, mood swings, anxiety, fatigue and other facets of bipolar disorder. The best cure for this is education. Sometimes it may not be possible for a relationship to survive bipolar disorder, just as a relationship may not survive trauma, grief, addiction, infertility, incompatibility, meddling relatives, infidelity, parenting or a host of other conditions. It may be better to look at all the circumstances surrounding a troubled relationship rather than automatically blame bipolar disorder for difficulties.

9. Learn all you can. Because bipolar disorder is so misunderstood by the public, because it manifests differently in nearly every case, because a person can be actively struggling or in remission, because a person may have any of the different types of bipolar disorder, because everyone is different – the need to educate yourself and probably those around you is essential. The more you know, the less you’ll panic when a symptom you haven’t experienced before suddenly hits. Rely on reputable sources. Medical, psychiatric or psychological websites are usually the best. Support groups can offer much information, but the people in a support group may not be any more well-informed than you are. And beware of people selling “miracle cures” that can lure a person away from needed medication and other services.

10. Keep trying. It’s hard. It’s frustrating. It’s difficult. It’s painful. It’s confusing. But bipolar disorder is something you can live with and even something you can rise above. The secret is to keep trying. Keep seeking out therapy and friends who support you. Keep taking your medication even if you don’t want to. (Stopping your medication without advice from your doctor can be dangerous, so please don’t try that.) Be stubborn. When you feel like giving up, tell yourself maybe things will get a little better in the morning. Hang in there. You may not realize it, but there are people who need you in the world.

Do you have any other tips for the newly diagnosed? Please share them in the comments section.

We want to hear your story. Become a Mighty contributor here.

Image via Thinkstock

355
355
3
JOIN THE CONVERSATION

How My Recent Hospitalization Helped Me Prioritize Rest

11
11
0

It’s Friday night. Not yet 8 p.m. and I’m a zombie on the couch. Beyond exhausted. I went back to work this week after a recent hospitalization. This means I had to “keep it together” for five days straight. Sometimes not even my husband understands what it takes to maintain. What it takes to keep the anxiety, panic, tears at bay. Stay on task. Concentrate. Remember. Not give in to paranoia and rumination. I’m just sure my boss and coworkers hate me for taking time off.

One of my goals coming out of the hospital was to learn to leave work at work. I’m a perfectionist and some might argue a workaholic. I think being successful at my job defines me. It gives me purpose. When I have to take a leave of absence because my out of control bipolar disorder symptoms are threatening my safety, I feel like a failure. I feel like I am letting people down. The idea of self-preservation can be so foreign to me.

I need to develop hobbies, likes and interests. After experiencing mania, psychosis and depression, I lose sight of who I am. I’m fighting so hard to find stability I get lost in a clinical treatment world. At home, what do I do with myself? I no longer want to compare myself to who I used to be. Hang on to remnants of the past that no longer serve me. It’s time to embrace myself as I am. Develop new hobbies and interests.

Another part of the equation is self-compassion. It’s OK I’m not out partying on a Friday night. I need some quiet time. Time to recalibrate. Have lower expectations. If I need to let out pent up emotions, that too is OK. This isn’t always my husband’s idea of a good time. We have agreed if he feels the need to “hit the town” after work he is more than welcome to do so. If I need to stay home and rest, that’s perfectly acceptable.

As I slowly melt into the couch, I experience the benefits of self-care. Honoring my needs is truly important. My hope is this attention to myself will re-energize me for the weekend so I can begin the journey of me.

We want to hear your story. Become a Mighty contributor here.

Image via Thinkstock

11
11
0
TOPICS
JOIN THE CONVERSATION

What You May Not Know About the Person With Her Phone Out at a Concert

18
18
0

Has everyone heard the phrase, “Take a picture, it lasts longer!”? It’s usually in regards to someone staring and tends to be thrown out a little sarcastically. I sometimes live by those words.

I go to a lot of shows and concerts. It’s always a lot of fun for me, especially if I’m with a good group of people. Even on my own, I still leave with a smile on my face. Lately, I’ve started to notice this trend among artists and DJs alike: telling the audience to put their phones away and enjoy the music. Discussions on social media have popped up about the topic, often shaming people who take photos and videos at live shows.

Those comments have begun to get a little bit irksome, not only because of how generalized they are but because they hold judgement coupled with lack of insight about others. As technology progresses, more and more people seem to be complaining about those who take advantage of it most.

For someone coping with a mental illness, it can be more than just taking advantage of the amazing things we have right in our palms. It can be a coping skill.

When I’m depressed, or even just feeling a little blue, taking my phone out and scrolling to my favorite memories can make me smile. I can watch the videos I took at my favorite show or look at the picture I got to take with a band. I remember the euphoria of being caught up with a crowd, the all-consuming energy. I remember being in a swarm of bodies, everyone jumping and screaming and singing every word. I remember feeling so incredibly grateful that I get the opportunity to hear some of my favorite music live.

On the one hand, I get the frustration of others being on their phones. Screens are in front of you, occasionally blocking the view of the artist or someone knocks you off kilter because they aren’t looking up. But, ultimately… whatever, right? The show will still go on, and you can still have the time of your life just by taking a step to the side.

It can be incredibly difficult for me to dredge up things to be positive about when all that’s on my mind is how badly I want not to exist. Living in the moment can feel like living in a nightmare. Having some of my favorite memories at the tips of my fingers reminds me I won’t feel like this forever. It reminds me that, while bipolar is cyclical, I
have still made it through the times I thought I wouldn’t.

I watch the videos of my favorite DJs or bands playing my favorite songs and if I close my eyes, sometimes I can put myself back there again. And for a brief moment, the same feelings can wash over me and everything doesn’t seem so overwhelmingly terrible.

So, to all the other show-goers I share standing space with: I will be the one with her cell phone up in the air, recording a video during some songs and screaming herself hoarse. Let me know if my phone is in your way, and I will gladly move over. But anything that reminds me I’ll be able to be OK again is something I’m going to continue doing.

If you or someone you know needs help, visit our suicide prevention resources page.
If you need support right now, call the Suicide Prevention Lifeline at 1-800-273-8255

We want to hear your story. Become a Mighty contributor here.

Thinkstock photo by Gavrilovic

18
18
0
TOPICS
JOIN THE CONVERSATION

My Connection to the Life and Death of Carrie Fisher as Someone With Bipolar Disorder

100
100
5

I can’t sleep. I’m heartbroken by the loss of Carrie Fisher and have cried a lot this evening, cycling between reading quotes from her, listening to audiobooks she wrote and performed, watching gifs of her on Tumblr and one video of a young boy getting a kitten for Christmas and sobbing his little heart out, unfettered and unedited by his family, who embraced his emotion.

Let me explain why I think Carrie Fisher dying has hit me so hard. I obviously didn’t know the woman. I wasn’t upset when we lost Prince, David Bowie or Victoria Wood. But there is a sense of kinship between people who struggle with mental illness.

I don’t really know if anyone else feels this. I suspect they do, but that’s part of mental illness. Isn’t it? It’s a solo experience. You never quite know if anyone else is going through what you’re going through.

She explained it well in her writing, in the things she said and in the beautiful way she explained bipolar disorder (the condition I live with) to that little kid at Comic-Con. Maybe it’s just me, but there’s this sense of family with people who speak openly about their life with mental illness that I really respond to. With some people, it’s stronger than others.

When Robin Williams died, I felt the same. I think that’s the only celebrity death, before this one, that’s ever truly upset me. I wrote about it at the time, but the tragedy for me was something along the lines of: There’s another one of us who didn’t make it. It ruined me. This idea that so many of us lose our lives to these conditions.

In one way, it’s frightening. When this particular line of thought comes into your brain, it comes with an unsettling sense of inevitability. Of course, this thing is going to get me in the end. Of course, it’s going to get to be too much, and I’m going to get lost amongst the rushes. Of course, I’m going to have to mark the end of the sentence.

The sadness, the mania and the sense of inevitability all tie together with a numb resolve at that point, and you’re just still/motionless. Perhaps because Robin Williams was high profile, or at least visible and accessible through his films, that was tragic and saddening to me. I know people die from depression every day. The knowledge of it is often faceless, until it’s a face you recognize.

None of this relates to Carrie Fisher. Yet, in the way she spoke about her mental illness when she said, “There’s no room for demons if you are already self-possessed,” it seemed like she was one who knew what she was talking about. She seemed smart and light, yet perfectly frank about her fight. So she proved you could be both: broken and alive, which sometimes feels like a completely impossible task. She was successful, but it didn’t feel like she needed to be. To me, how I read it, the success that was most important was the fact that she was still here, and this was good enough.

When I struggle to make anything resembling music these days or another essay falls flat or when I realize a week has gone by and I can’t remember any of it, I was always inspired by the sense of, “OK, I haven’t died yet, and I’ve often thought that I would.”

I’m sad when I think about all of this, and it’s triggered by the loss of Carrie Fisher. Although it’s not the same sadness I would feel if I lost someone who was in my life every single day, who I’ve grown with and loved, it’s a different kind of sadness for a different kind of loss. The loss of someone who was inspiring and who was a sort of sister and distant mentor if that’s not too grandiose. I don’t think it is too grandiose, though, because ultimately a mentor requires a student, and I learned a lot from what she wrote and what she said.

I’m sad there won’t be more of it. I hope I’m going to continue to find comfort rereading and revisiting the things I read from her. Sometimes, it’s not necessarily the things she said or did that were inspiring, but the way they translated into my mind, the way I took the raw material and mashed it into a lesson for myself.

There’s so many facets to mental disorders and how they’re experienced, viewed and discussed. There are so many nuances that sometimes make it worse. I don’t know how to finish this because there’s so much I feel like I want to say, and I can’t figure out how to organize it. So I’m sitting in my bed, smoking cigarettes and trying to put things into boxes in my head because it feels like a messy sewing box in there at the moment, pins, threads and spools everywhere, all clumped up.

I keep hoping it’s going to be easier at some point to not find it so difficult to talk about my mental illness. It’s one of the reasons I got off social media because I felt like I was becoming a caricature of my condition, with periods of absence followed by gushes of activity and garrulous chatting. I wish it didn’t feel like coming out of the closet again and again and again.

Given that I know this feeling is coming from me, it feels pretty futile to beseech people to talk more about mental illness. How much can that help when it’s me who’s resisting? Yet, I don’t know the answer to that. I have no idea if my reticence to live openly with it comes from something dark in me or if it’s something that’s been given to me by everyone else.

I don’t know. I don’t have a statement, a plea or a sanctimonious lesson to arrogantly dish out at this point. Yet, I feel like she was a hero for us people living with the shit that comes from nowhere, and I’m sad and feeling pretty undone.

Love,
Alan MX

We want to hear your story. Become a Mighty contributor here.

Image via Carrie Fisher’s Facebook page.

100
100
5
JOIN THE CONVERSATION

What Not to Say to a Person With Bipolar Disorder (and What You Should)

772
772
10

I’ve had some incredibly touching experiences in the midst of my struggles with bipolar disorder. Unfortunately, it’s also par for the course that I’ve had some really sh*tty ones, too. Over the last decade, I’ve heard so many things, like “There’s nothing really wrong with you, you’re just an attention whore” or “It’s all in your head.” And to that I cheerily reply, “Of course, it is happening inside my head, but why on earth should that mean that it is not real?” I feel like Dumbledore would be proud.

I’ve come up with a list of phrases I’ve heard over the last 20 years or so that I feel you should never say to someone with bipolar disorder, and why I believe they shouldn’t be said.

1. Snap out of it.

I really hate this expression, because I feel it insinuates I’m choosing to act this way, whatever way that might be. That I have a switch I can flip to go back to “normal.” Fighting the struggles of bipolar disorder can be an all-encompassing job, and to imply I’m not doing all I can to feel better is insulting. Sometimes, all I can do is make it from my bed to my couch, which can feel equivalent to a hike up Mount Everest when I’m depressed. While walking 20 feet can be too much to handle, “snapping out of it” is an even more impossible task.

2. “Why are you doing this to me?

Talk about a guilt trip from hell. I really despise this, because it can make you feel even worse about something you can’t control by implying that you’re doing this on purpose, to be vindictive, or for any other reason. It’s as if they’re trying to make you own their emotions, and give you a weight you don’t need to carry.

3. “Happiness is a choice.”

This one really gets to me. Yes, there are choices you can make to lead to happiness, but there is more to it than that. There are other people who can affect your path to happiness. There are neurotransmitters that affect your happiness. There are situational factors that affect it as well. I’m a fan of Viktor Frankl, who wrote about finding happiness after surviving the concentration camps of Nazi Germany. He even created a school of thought from what he learned there, called logotherapy. He knew you couldn’t just choose happiness — you had to work for it. Albus Dumbledore once said, “Happiness can be found, even in the darkest of times, if one only remembers to turn on the light.” I love this quote, because it reminds me that what I focus on is what I see best. If I’m dwelling in the dark, I’m not going to find happiness.

4. “Have you thought of trying ____?” or “You should get off all those pills.”

I know this one may be well-meaning, and it’s usually brought up in a loving manner, but to me, it’s still patronizing. It hurts because I have a doctor, and 99 percent of the people in my life know I have a doctor, and we work quite well as a team to keep me stable. I’m not going to risk my stability on an herb that could have grave consequences should I try it. And quitting my meds? I’ve burned so many bridges that the people suggesting this to me likely didn’t know me when I was off all those pills. They wouldn’t want to see that. I know I don’t.

5. “You’ve got it so good, why are you depressed?

This one hurts, probably the most to me right now. I am fully aware of how incredible my life is, how blessed I am and everything I have to be grateful for. I still cry big tears of sadness and feel like I don’t deserve any of it. It’s possible to have a great life and still be depressed. Pointing out everything great doesn’t make the depression go away; it just makes me hate myself more for being an ungrateful brat.

So, what can you say to someone with bipolar disorder? You can say, “I see you’ve been struggling lately, what can I help with?” You can say, “I see you, and I am here with you.” You can even just be silent, and sit and give your presence as a show of solidarity with the person struggling. You can just listen instead of talking. You can offer a hug. I know for me, I had one experience in the psych ward where I was just devastated and the tears wouldn’t stop coming, and the nurse on duty just came and sat with me. And listened. And just her presence was enough to calm me down. She then gave me a hug and gave me an encouraging platitude, and it was enough. I’ve never forgotten that, even though I’m sure she probably doesn’t remember this at all by now. Never underestimate the power of silence.

We all just want to be accepted as we are, warts and all. Treat us as you would want to be treated. And remember this above all: In a world where you can be anything, be kind.

Image via Thinkstock.

We want to hear your story. Become a Mighty contributor here.

772
772
10
TOPICS
, Contributor list
JOIN THE CONVERSATION

Real People. Real Stories.

8,000
CONTRIBUTORS
150 Million
READERS

We face disability, disease and mental illness together.