What Hiking the Grand Canyon Taught Me About Living With Illness

Mountains to Climb

A Facebook memory popped up this week with a picture of me smiling and hiking down a mountain with a pack on my back. This was me seven years ago, embarking on a four-day hike down the Grand Canyon. My first thought as I looked at the picture, as with many of my previous memories, was envy of my former self – a longing for days gone by when I could wear a pack and hike a mountain. These days, with my autoimmune issues and POTS (postural orthostatic tachycardia syndrome), just climbing a set of stairs about does me in. (Stairs are my nemesis!)

woman backpacking in grand canyon

However, there’s much more to this picture than meets the eye. I had no idea of the grueling ordeal that was soon to come in the days after this picture was taken.

I have always had a love for history – there’s a lot of lessons to be learned and parallels that can be made by examining the past, and this particular story is no exception. This Grand Canyon trip ranks among the toughest physical challenges I’ve had. Although I could summarize in much less detail, I think it’s a story worth re-telling to the full effect, so here it goes.

Hiking the Grand Canyon

To set the stage, let me just say that I have never been super outdoorsy. Yes, I loved to ride my bike on the groomed trails around the lake, or go for day hikes in the mountains, but camping (and going multiple days in the dirt without showering) has never had much appeal to me. So agreeing to go on a four-day backpacking trip through the Grand Canyon was kind of a stretch out of my comfort zone. Also, I had just had a third laparoscopic surgery a couple months earlier (trying to cauterize my painful endometriosis, once again). So going into this trip, I hadn’t been able train as much as I would’ve liked post-surgery and probably wasn’t as prepared as I should have been.

man and woman backpacking in grand canyon

Things started out fine, but a few miles into our descent I stepped on a baseball-sized rock that rolled underneath me. My ankle went one way and my knee went the other. Surprisingly, my ankle was fine, but my knee was tweaked a bit. I rested for a few minutes to “shake it off” before continuing on. In all honesty, it seemed pretty minor, and had I not hiked another five miles at a very steep decline with a 40-pound pack on my back, I probably would’ve been fine. But by the time I reached the bottom I was cringing with each step. (A trip to the doctor after arriving home confirmed a pretty bad knee ligament sprain.)

Day two at the bottom of the Grand Canyon was beautiful. Although it had been cold and snowy at the top of the canyon, it was 65 degrees and blue skies at the bottom. Our party took a day hike out to a waterfall, but I opted to stay close to camp and let my knee rest. With the beautiful weather, I enjoyed the day and thought, “I can totally do this camping thing.”

woman standing at the bottom of the grand canyon

My dad returned from the waterfall hike not feeling well and shortly after started vomiting – whether from a stomach flu or severe dehydration we weren’t sure, but he continued to get sicker, weaker and more dehydrated throughout evening. I was worried. He’d had a heart attack several years earlier; I was terrified that all the exertion and the sickness would bring on similar problems. He was still sick when night fell and had to stay close to the bathrooms (amazingly, and thankfully, there are flush toilets at the bottom of the Grand Canyon), but they were not very near to our camp. I was worried about letting him stay there by himself. What if he had a heart attack and no one was around? Not that my limited CPR skills would be much good if needed, but, nonetheless, I sat on the cold ground outside the bathroom with my dad for the better part of the night.

By day three our beautiful weather had disappeared, and a cold wet drizzle descended upon us. Although we were supposed to be starting our hike out that day, our group decided it was best to wait one more day and let dad rest and recover. We sought out some park rangers and asked if there were any other options to get dad out of the Canyon – mule, helicopter, etc. We were told that unless he actually did have a heart attack, in which case the cost to be air-lifted out would be an astronomical amount that we’d be paying off the rest of our lives, the only way out was to hike.

woman smiling in a tent at the bottom of the grand canyon

I was dead tired after my night of no sleep. I went back to my tent to take a nap. When I woke up, I was completely soaked! The tent had leaked. Not only were my sleeping bag and pack wet, but my shoes had filled with water too.  I burst into tears!  I was so tired and cold.  My knee still throbbed, and now everything I owned was soaked through and there was little chance of being warm or dry for at least few more days.

That evening the park rangers sought us out to tell us that a huge storm was heading in and they wanted everyone out of the camp as soon as possible. Due to the steepness of the trail, we had planned to take a longer, somewhat less steep, trail out of the canyon and to split that hike up into two days. However, with the storm, we decided that it’d be best to make the two-day trip all in one day, leaving the following morning.

The rain continued to worsen throughout the night. We had to double up like sardines in the remaining “less wet” tents and, needless to say, it was another long, sleepless night.

Morning finally came and we packed up our muddy tents in the rain, put on our sopping gear, and started our trudge up the mountain. The trails had turned into little streams, with the water carving them down into a V-shape with steep sides. We had to hike with our feet awkwardly sloshing and slipping at odd angles through the mud on either side of the V-shaped trail.  You can imagine how great that was on my sprained knee. At times we had to wade through calf-deep streams that had completely washed over the trail.  Sometimes my foot would sink so far into the mud, I had to physically use my hands to help pull my leg up out of the mud.  More than once, my foot emerged, but my boot stayed firmly rooted in the sludge. (I won’t even go into detail about the blisters and lost toe nails from that day…)

woman backpacking on a trail in the grand canyon

About halfway up, we stopped to eat soggy granola bars for lunch. After resting for those 15 minutes, I tried to walk again, but my injured knee had locked up. It refused to go any further and every step on the muddy trail was torture. I burst into tears once again. How the (insert expletives) was I going to get up this mountain? I was so tired, so wet and muddy and cold, and my knee hurt so bad!

After letting myself cry for a few minutes with my husband standing by trying to be reassure me, but with little he could actually do to help (he’d already taken much of the weight from my pack for me), I finally had to pull it together and remind myself that there was no way out except to hike (trudge, trod, slog). So I finally took a deep breath, told myself, “I can do this,” turned on my iPod, and started back up the trail.

Not much further up the rains turned to heavy snow and ice – a blizzard. As everything we owned and wore was already soaking wet, we pretty much turned to ice as well. The mud mixed with slush and patches of slick ice. As we hit the last few miles with endless steep, icy switchbacks, I tried to keep my eyes on the prize. “I just have to make it to that next bend, then I can take a little break.” And at the next bend, I’d look to the next bend and repeat the same thing. Most of the time when I looked up, I couldn’t see the top – just more endless rows of switchbacks. How much further did this mountain go?! Would it ever end?

At one point my iPod shuffled to the Matchbox 20 song, “Let’s See How Far We’ve Come.” I stood at a bend in a switchback. While I couldn’t see how far I had left to go, I looked down the mountain and could see how far I’d come – miles of trail unwound below me. Wow! Had we really come all that way? I took courage and strength in that sight while my own personal soundtrack was playing. Instead of focusing on what we had left, I kept repeating over and over again, “See how far we’ve come!”

trail of switchbacks on mountainside in the grand canyon

As we hiked I thought a lot about the pioneers. I suddenly had a much greater empathy for them. This was just a four-day trek. I couldn’t imagine the feats they had been through over weeks/months. Additionally, I knew that I had a restaurant and a hotel room waiting for me at the top of the mountain with a juicy burger and a warm shower. The pioneers had arrived to an empty valley where they still had to build their own homes and grow their food. If they could do that, I could certainly do this!

As long as this blog post is now becoming, it is not nearly as long as that 10-hour hike up the canyon. But, as I’m sure you’ve guessed, I did eventually make it out alive (and, in case you are wondering, so did my dad, who later confessed to me that he was, indeed, having chest pain for most of the trip. Thank heavens nothing major happened!).

Lessons Learned

For the sake of brevity (oops, sorry, too late for that!), I’ll just point out a few of the lessons I’ve been reflecting on as I’ve revisited my Grand Canyon memories.

1. Rose-Colored Glasses

So back to the present day, as I mentioned, when my Grand Canyon Facebook photo popped up, my initial thoughts were of envy with the reminder that I once had the ability to hike, walk, climb, run, etc. – something I can no longer do (at least not without constant fear of passing out). Yet in reality, that was a harrowing experience and not a challenge I would ever like to face again.

woman backpacking in the grand canyon

Sometimes when looking at the past, I find myself looking through rose-colored glasses. Because I’m still grieving for all the things I can’t do now, I often only see the “grass is greener” things from my past. I forget about the struggles I dealt with then. At the time of this hike I had actually been dealing with a lot of other trials. I have already mentioned my multiple surgeries for the debilitating endometriosis I dealt with. I had also been struggling from years of infertility and failed treatments, and some intermittent depression as a result as well.

My life in the past wasn’t as perfect as I sometimes remember. Yes, I had more physical abilities than I do now, but I also have some things now that I didn’t have then (perspective, stronger faith, deeper friendships, greater awareness of others, time to write really long blog posts…). I can learn from the past, but it doesn’t do me any good to dwell on the things I can’t bring back or change. I have to keep moving forward.

2. If They Can Do It…

As I thought a lot about the early pioneers on my hike, I similarly gain strength today by knowing that “others have done it.” Maybe they don’t have the same problems I have, but since my illness, I have become so much more aware of the trials that those around me have. I am in awe of the strength I see in my friends that are battling cancer, other health problems, financial struggles, or loss of loved ones. Their fortitude and courage in the problems they face help me in mine…if they can do that, then surely I can do this

3. I am Stronger Than I Think I Am

From that hike, I found strength in myself that I didn’t know was there. It was one of the hardest things I had done, and I survived. It was a testament that I really could do hard things. Additionally, in remembering the dozens of silent prayers I sent up with each step of my journey, I would be foolish to not recognize that it wasn’t just my own strength I was relying on, but the strength of my Lord to help me through that ordeal as well.

Doing hard things is not just about physical strength, but mental and spiritual stamina as well. One of my favorite talks of the same title, “Mountains to Climb,” by Henry B. Eyring, reminds me that “if we have faith in Jesus Christ, the hardest as well as the easiest times in life can be a blessing. In all conditions, we can choose the right with the guidance of the Spirit. We have the gospel of Jesus Christ to shape and guide our lives if we choose it… We can live with perfect hope and a feeling of peace… The Savior has promised angels on our left and on our right to bear us up. And He always keeps His word.”

I have felt those angels, both heavenly and earthly.

trail of stairs in grand canyon

4. Let’s See How Far We’ve Come

Today I still climb mountains – my mountains are just different. My mountains are making it through a painful and lousy day/week/month while trying to hold on to a positive outlook and not lose hope or faith. There are days when I break down and cry, “How the (many expletives) am I going to make it through this?” But just like on the trail of the Grand Canyon, I realize I don’t have many options. I can sit down and wallow in the mud, or I can keep trudging, keep trying, keep seeking out something that is going to help as I continue to work on my faith and endurance.

And some days, I can only look as far as the next bend and tell myself “I just have to make it through today!”

Although I can’t see the top of the mountain or the end of this journey, I can look back at the path I’ve come and gain strength and hope from seeing the trail I’ve traveled. It’s been a rocky road, but I’ve come a long way. Although there have been a lot of ups and downs, I have seen improvement since my first diagnosis (when I couldn’t even walk from my bed to the bathroom without collapsing, and I certainly wouldn’t have had the cognitive ability to write this ever-increasing lengthy post). I have also made progress on the road to acceptance and emotional healing. Although there may not be a true summit and complete physical healing for my condition in this lifetime, I can keep climbing, have faith and try to take heart in the plateaus and vistas along the way.

This post originally appeared on Mommy Can’t Dance.

We want to hear your story. Become a Mighty contributor here.

Find this story helpful? Share it with someone you care about.

Related to Postural Orthostatic Tachycardia Syndrome

sad girl with hand on head on black background

3 Things I Get Tired of Hearing About My POTS

I want to start this post off by saying I know most of the time people are only trying to help, and that these words come with the best intentions. However, that’s also why I’m writing this, because while things do come with the best intentions, they can be really hurtful, too. 1. “You’re being [...]
college student laying in bed and reading a book for class

When POTS Challenges Your Identity as an Academic Overachiever

POTS and I have a complicated relationship. Here’s the thing: I’m an over-committer. Like, the kind who is utterly convinced that there are infinite hours in a week and continues to take on more things until they crush me. I’ve done this since before chronic illness, when I could bounce back quickly. I don’t particularly [...]
man standing in front of lake and mountains

The Relief I Find in Sharing My Story After Years of Misdiagnosis

Being able to tell my story has been a sort of relief valve, allowing me to talk about the frustrations of a misdiagnosis and then living with an “invisible” illness on a daily basis. It is comforting to know I am not alone struggling through each day, yet my heart breaks for each and every [...]
jesus statue

To Those Who Pray for Me to Be 'Miraculously Healed'

One Sunday morning at our small-town church, a woman asked me how I was doing. This is not an unusual occurrence, so I gave her the usual answer — “about the same.” I’m not noticeably worse, and I’m not noticeably better. “Well, I’m praying for you,” she said — which is also not unusual. I [...]