Postural Orthostatic Tachycardia Syndrome

I am someone who always knows where the nearest seat and air conditioning is located. It used to be a major source of stress for me, but now this superpower is more instinctual. I may look normal on the outside, but I am often struggling with a high heart rate and fatigue from my nervous [...]

Are you worthy or worthless? I posted a graphic in a Facebook group I administer recently which stated, “A body that works less does not make you worth less.” I had been feeling frustrated lately with the limitations my chronic illnesses present on a daily basis. In my mind, I plan  to take our new camper [...]

If you have Ehlers Danlos syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and/or mast cell conditions, you may need a vacation from preparing to take a vacation! There are so many things to remember to make sure you can be safe and manage conditions away from home.  This week, we are preparing for a family [...]

My doctor has stopped with the surprised charade every time I explain I’ve passed out in the week since seeing her – surely it can’t be a surprise when you’ve been diagnosed with a severe cardiac dysautonomia. Scratching your head? I know I was when I first heard those words. Basically, my body goes into [...]

I’ve written this article to help educate those who want to learn about chronic illness. It is written from my perspective, that of a doctor who treated patients with chronic illness for many years, and who spent five years of my life homebound due to chronic illness. I want to spread awareness so that friends, [...]

Caregiving can be a rewarding experience, but it can also be stressful and challenging at times — and that’s OK! That’s why we’ve created this toolkit, so you can learn more about the ins and outs of caregiving and discover helpful resources you can utilize along your caregiving journey. Take what you need, and share [...]

Four years ago, I went to my doctor complaining of excessive tiredness and having so much pain in my hands that I couldn’t squeeze my shampoo bottle while showering. Four years ago, I received a call telling me I needed to see a rheumatologist right away because my blood work came back extremely abnormal in [...]