woman laying in bed with text 'the reality of fatigue and exhaustion'

The Reality of Chronic Fatigue and Exhaustion


What exhaustion and fatigue are not:

1. Laziness. It’s not simply not “wanting” to do something or not being bothered.

2. A temporary state you can simply overcome with a little positive thinking or an energy drink.

3. Cured by sleep. Being “sleep tired” and being exhausted are not mutually exclusive but they’re not the same thing. Getting some Zzzs does not equal a body that’s got energy.

4. An excuse. It’s a reason, not an excuse, for why we don’t do certain things, why we may bail on a social occasion, why we don’t have “plans” for the weekend or evening.

You can be so incredibly exhausted, yet feel restless. It can be incredibly frustrating to feel shattered or feel like your brain is cotton candy when you want to do something useful/fun/productive but simply don’t seem to be able to manage it. You can spend a whole day not exactly feeling bored, but finding small things to do or just being totally zoned out, then be unable to tell people what it is you’ve been up to all day. Your day has been spent doing something, but you can’t put your finger on what. The question of “What have you been up to?” starts to feel almost accusatory and impossible to answer.

What exhaustion and fatigue really are:

1. The opposite of glamorous. Sometimes getting out of bed, getting in the shower and taking care of yourself can be monumental mountains to climb. Other days will consist of greasy hair, pasty skin, negative moods, bad complexion, pajamas and bags under your eyes big enough to fit a baby panda.

2. A vicious cycle. When you push yourself and “work through it,” you often pay for it afterwards. Before I left on sick leave for surgery, I spent years working full-time and giving it 110 percent. My evenings were shot, my weekends non-existent; my body was always on catch-up, forever burnt out from using up what little was there for work.

3. Frustrating. Wanting to do more, to be more, when sometimes it’s simply not manageable. Restless yet exhausted, motivated yet defeated.

4. Isolating. Whether this is from your family, friends, work or a social life, exhaustion and fatigue can get in the way of plans and even affect your desire to do the things you would have otherwise wanted to do. If you find others don’t understand or appreciate your reasons for sometimes saying no to going out or feeling “unsociable” and needing time alone, it can be hurtful and leave you feeling lonely.

5. A spiral of feeling judged. Everyone gets tired, everyone gets exhausted from time to time. But to have it chronically, to deal on a daily basis with an invisible illness or fatigue is something else, something you perhaps only really understand fully if you’ve experienced it. Suddenly, being unwell and utterly shattered is like a competition, and it can feel as though we are judged and looked upon with skepticism.

Those, like myself, who experience in-your-bones exhaustion, may be good at hiding it from the outside world. Putting on a brave face, saving up the energy they have to paint a picture of wellness when they’re outside their home, posting statuses or photos on social media. What is portrayed is often not the reality. People create their own story to tell the world.

That said, there can be good times too, moments of enjoyment if we seek them, minutes or hours or days of joy and appreciation when we are gentle with ourselves and are able to better manage the challenges we face. Choose your battles wisely and use the energy you do have on the meaningful things in life.

Follow this journey on InvisiblyMe.

We want to hear your story. Become a Mighty contributor here.

TOPICS
, Contributor list
JOIN THE CONVERSATION

Related to Chronic Illness

woman looking at phone with text 16 reasons a person with chronic illness may cancel plans

16 Reasons a Person With Chronic Illness May Cancel Plans

Chronic illnesses aren’t always predictable, and sometimes that means the plans you made with friends need to be canceled. A flare-up or loss of energy can mean that movie date you planned just isn’t possible anymore, even if you really wanted to go. People don’t always understand how an illness can make it difficult to go [...]
Top view image of woman hands on her bed using a laptop while drinking tea and petting a cat. with text 16 ways to get through days when it feels like your illness is winning

16 Ways to Get Through Days When It Feels Like Your Illness Is 'Winning'

For many people living with chronic illnesses, there are some days when it just feels like your illness is “winning.” Maybe your pain is at a higher level than usual, or you feel stuck in a flare-up. On those days, your favorite self-care strategies may help remind you it’s OK to listen to your body’s needs and how [...]
Exhausted woman sleeping by basket of laundry

Doing the Laundry When You Have Chronic Fatigue

“I’ve been sitting here for an hour, trying to summon up enough energy to go downstairs and load the washing machine. Before that, I had taken a nap, but now I need a nap to recover from the first nap. If I were Sleeping Beauty and Prince Charming came along to place a delicate kiss [...]
City commuters. Abstract blurred image of a city street scene. with text 20 things people dont realize youre doing because of your invisible illness

20 Things People Don't Realize You're Doing Because of Your Invisible Illness

Having an invisible illness means outsiders may not notice many of the symptoms and/or side effects of your illness. They may also be oblivious to the things you do each day to cope. What looks to others like relaxing on a chair may actually be your way of lessening your pain. Wearing sunglasses indoors may seem like [...]