My Experience With Bipolar Disorder, From Origin to Recovery: A Transcribed TEDx Talk

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Editor’s note: If you experience suicidal thoughts, the following post could be potentially triggering. You can contact the Crisis Text Line by texting “START” to 741-741.

If you’ve experienced domestic violence, the following post could be potentially triggering. You can contact The National Domestic Violence Hotline online by clicking “chat now” or calling  1-800-799-7233.

So, what do you do when you get a diagnosis of bipolar disorder?

When I got mine in 2013, along with my prescription for a box of mood stabilisers in tow, I didn’t know what to do, whether to tell anyone or what was to lie ahead for me, but what I did want to know was what it meant, and what I was going to do about it. For about a month, I kept relatively quiet about my psychiatrist’s recent conclusion. However, eventually, it appeared to be no secret.

For anybody who is unaware of what bipolar disorder is, it was formerly known as manic depression and it can affect your moods by swinging from being in a depressive to an elevated state. It’s common and can affect 1 in every 100 adults. Many people like myself are usually diagnosed when depressed.

Side effects can include a range of symptoms from having difficulty in concentrating and remembering things, difficulty sleeping, hallucinating, self-doubt and lacking energy, to being irritable, easily distracted, talking quickly, being overjoyed, hyperactive and having racing thoughts. Mania is an extremely elevated state which can include extremely risky behavior, but I myself have never experienced it. I have experienced hypomania though. In some of my depressive states, I haven’t left the house for weeks except for school runs, I’ve cut off the outside world and barely looked after myself. On the other hand, I’ve jumped up and down on the bed randomly in the middle of the night being full of adrenalin along with my bedroom window wide open whilst singing loudly to the birds, all while not caring who is listening or who I may potentially annoy.

So, you’re probably wondering how all this came about.

Well, I think that my mental health problems began when I was approximately 16. I had never known much middle ground in my life, but what I knew, as did others, was that I was different. By now I was told that I stood out from most people, and I liked it. I never once wanted to blend in. Unfortunately, a year before I moved out — so I will have been about 15 years old — I spent mixing with the wrong crowd of people by getting into trouble and I was up to nothing but pure mayhem. I’m ashamed to admit that I think I became a “dreg of society” within that space of time.

At just 16 years old I moved out of the family home and spent nine years in an abusive relationship. I was bullied, spat on, conditioned, spoken to like I was worthless, controlled, stalked, mentally, financially, sexually and physically abused and so this was the beginning of a downward spiral in my mental health. I sometimes had knives held to my throat and at one point I even had a fractured left hand and bruises on my body. It wasn’t easy to walk away from the life that I had and it was easier to “put up and shut up.”

Whilst I was in this relationship, age 19 by now, I took on a fish and chip shop for six years with help from family members to buy it. Not one of my best ideas, but most definitely a learning curve I must admit. I had a love-hate relationship with my business. I say this because it was what put food on my daughter’s plate and what I wanted at the time so that I could have more stability in my life. On the bright side, my shop was listed as one of the top 50 in the UK and the only one north of Whitby to get the Sea Fish Industry Authority Award; it was ranked alongside a celebrity chef’s fish and chip shop and mentioned in numerous national newspapers and magazines. Radio interviews followed, as did photographers randomly turning up at my shop to get their share of photos of myself with the award. To say it was rather surreal was an understatement. It’s on my wall in my house right now and I am proud of that achievement. Nevertheless, the roller coaster of my life continued.

I was about seven months pregnant at the time with my eldest daughter, and my life literally changed overnight.

After my ex-tried to unsuccessfully take mine and my daughter’s life, I felt like I had to finally take matters into my own hands. However, I found myself being too scared to move on in my life. So, I attempted to die by suicide.

I didn’t die. I was alive but sick of my life. I didn’t want to die — I just wanted my pain to end. It was more of a cry for help. I felt exhausted in every way and I wanted to leave the world behind as I thought it was my only way out. From the outside looking in, it would have appeared that I had everything: a family, a business, a house and a car. This was maybe the case, but behind closed doors, it was a different story. A house it was, but a home it was not. My then-partner never did find out about my suicide attempt and so my life went on, every day like Groundhog Day.

After some time, I finally dared to move on. I sold the business and moved house with just me and my eldest daughter. I spoke to the police about my violent past and unfortunately, with my case being historic by then and the fact that I had little proof of what I had experienced, they couldn’t really help me. I wanted to help others not to go through what I had, so I started work as a police volunteer in Domestic Violence, Adult Vulnerability and Child Abuse Investigation. I sometimes spoke to victims, signposted people for help and I typed hundreds of transcripts of police interviews ready for court. I loved what I did.

I met someone else, moved house again, had another child and eventually started married life. I was in the relationship for about four years before we parted ways. My complicated personal life continued. Disastrous toxic relationships followed, but at the same time without what has happened in my life I wouldn’t be here and where I am today. It’s now 2017, roughly 10 years since I was at the lowest point in my life. Now I’m telling you my story, pleased that I did not die by suicide that night.

In just over three years, what have I done with that diagnosis?

Well, to aid myself to get on the path to a better life, I decided to teach myself what it was all about and the rest is basically history. From then I set up a Facebook page called Me, Bipolar & I to help people with post-traumatic stress disorder (PTSD), depression and bipolar disorder, all of which I experience. Today that page has over 12,000 followers worldwide, is recognized by The International Bipolar Foundation.

I try to be an advocate by speaking out, blogging and campaigning by breaking the silence, and I believe if more people like myself spoke out about mental illness, there would be a lot less stigma and discrimination in society. I speak for the silent, but together we can be stronger in numbers. You know, when we learn how to work together versus against each other, things might start getting better.

I find that weightlifting and boxing benefit me. I help my new partner and he helps me, as we both have experience of mental illness.

I believe bipolar disorder fuels my passion and inspires me. To be honest, without bipolar disorder I don’t think I would be as mentally strong as I am today. I find it a curse at times, but more definitely a blessing, and from it, I now have a passion and a purpose.

If there is one thing you could take away from this article, then please remember to try to see the person and not the diagnosis. Change your fears, change your boundaries, change your limits and choose your hobby as your job.

Go somewhere even if you have no idea where the road will take you.

Choose to be excited about your next idea whatever it may be. Move out of your comfort zone.

Choose health and to look after yourself, to help people even when you don’t want to help yourself.

Choose to be the person you would want to know. Smile at the person who isn’t smiling back at you.

Choose to be different and to stand out, not to be consumed by everything.

Choose your thoughts not to be controlled by society, not to be told what to do.

Choose not to let trivial things get to you. Be inspired by whatever may inspire you and to laugh when it’s totally inconvenient to do so.

Choose to be the person that everyone wants to genuinely know. Love the life you live.

Choose experiences over possessions. Never give up.

Choose life.

Thank you.

If you or a loved one is affected by domestic violence or emotional abuse and need help, call The National Domestic Violence Hotline at 1-800-799-7233.

If you or someone you know needs help, visit our suicide prevention resources page.

If you need support right now, call the National Suicide Prevention Lifeline at 1-800-273-8255, the Trevor Project at 1-866-488-7386 or text “START” to 741-741.

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What It's Like Living With Bipolar II

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This is a piece I have wanted to write for months but didn’t have the courage to write, nor the words to put onto paper.

This feels difficult to write because I am writing about own my mind. And the mind can be a subtle and mysterious thing. Once you shine a spotlight on your mind, it either runs away or it may just bare its teeth and lunge at you.

My mind seems to be either random or just raw.

I can live in my mind. I am a writer, so I guess it comes naturally. Entire conversations occur in my head without a word being spoken, relationships come and go, and lifetimes are lived without breaking a sweat. Once the dream concludes, I am left with little else but fragments of feeling. Most days, my mind seems random. I can play out solutions to problems and imagine myself carried off into some new adventure.

All without leaving my desk.

My mind can take me to every possible outcome in a conversation. At times, I feel talked out and exhausted without even uttering one word. On those days, my mind is more like a prison, holding me inside. I want to reach out to my friends, my wife and those who care about me. But my mind has already been there, and it has covered that conversation. My mind has already said what needs to be said, and it did not go well.

So why talk about it anymore?

Some days, my mind carries me to places I don’t want to go. They are not always dark places, but they are not usually helpful. My mind is not really a dangerous place. It’s a little like my garage. It’s a mess, and the half-completed projects are like wooden skeletons that call to me. So I leave the garage and lock the door behind me. It’s just better that way.

The creative mind is a compelling place. Random things can become linked. A phrase from a book can mix with something a friend said to me, and my mind is off running in three directions at the same time. I imagine how an idea can be a new article, a possible series or a theme that might help people find greater freedom in their recovery. Later when I look at the idea, it may seem like little but words on the page.

My mind can be a wild and undisciplined place sometimes. Some days, it feels a little like the Wild West, all within the thick walls of my skull. Most days, though, my mind plays nicely in the sandbox. Ideas are helpful, and they seem to make my life a little better. I get excited by a new idea, kind of like I get excited when I open presents on my birthday.

I endeavor to be a good father, a good addiction therapist, a good writer. I never set out to be a good person who also lives with depression, anxiety and what my doctor calls bipolar II. These labels can loom large; they can define how you think about yourself… and how other people think about you.

And that is scary.

It’s like living with Santa Claus.

Living with bipolar disorder type II for me is like living with Santa Claus. A few days of the year he is jolly and everyone loves him. But most days, he is busy in his shop with his creations. He gets lost in his imagination and can spend hours in there. He brings gifts and makes everyone feel great. When he comes out of the shop, he heads home. He eats supper, watches TV, talks with his wife and then he wonders what it would be like to do some doughnuts with the sleigh and reindeer.

The diagnosis sometimes sits in my head like the books on my desk. It holds space. Sometimes it gets in the way, and other times it is a resource. And just like the books on my desk, for me, the flavors of my mind can be as divergent as my bookshelf. Some days my mind is full of dark fiction and mystery. Other days, science and psychology take me on a journey. And yet other days, I become lost in the “how to” section and try to fix everything in my life: my mind, my relationship, and my tendency to overthink things.

When I feel depressed, I write raw. When I am anxious, I write raw. On good days, I write raw. And on days like today, where my mind is a harsh and dry place, I write raw. Writing raw seems to take the edge off my tendency to live raw. It dulls the raw emotions that cut like razors through my mind. Writing gets me out of my mind. It frees me from the hell I am in. I am able to walk through the door, clothes singed and smoking.

Good things pull you to better places. I write, and I am learning to walk by myself well. I have a few good friends, and I am opening up to them about the things that go on inside of my head. I have a good relationship with my doctor and we regularly talk about the things inside the walls of my skull. Most days, I can listen to my mind but it holds much less power over my moods or over my actions.

This post was previously published on The Good Men Project.

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The Promise I Made My Roommate in a Dark Moment With Bipolar Disorder

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It was a dark, drizzly night when I found myself sitting on the floor, leaning against my dresser, fighting the demons inside my head. I was in the depths of an episode of bipolar depression, and tears were streaming down my face. I sniffled uncontrollably, trying to fight back the tears. But they just kept coming.

My roommate knew my day had been particularly rough, and she was quick to offer whatever kind of consolation she could. She sat down next to me on the floor, held my hand, and told me I would get through this. I tried so hard to believe her. I wanted to believe her. But I was so tired. The battle just to get out of bed and get through that day had sapped me of all of my physical and mental energy.

“This is just getting so hard to keep doing,” I said, the exhaustion in my voice audible even to me.

She suddenly squeezed my hands as tightly as she could. I looked up and saw tears welling up in her eyes. I had only ever seen her cry once before, so I was extremely caught off guard. I wondered if something was wrong, or if I had done something to hurt her in some way.

“Are you OK?” I asked, my voice trembling in my own emotional pain.

She squeezed my hands even tighter. “Promise me something,” she said, her eyes glistening.

I nodded my head weakly. “OK.”

“Promise me,” she said, her voice shaking, “that you’ll be here tomorrow.”

Promise me that you’ll be here tomorrow.

At first, I didn’t grasp what she meant. But after several minutes, I understood. She knew the magnitude of the pain I had been feeling. She knew I might be battling suicidal thoughts. She knew I was getting tired of constantly fighting my bipolar disorder. She knew every day was a battle, a battle she had to witness constantly.

She knew.

And she cared.

“Promise me,” she said again, firmly. I had been so busy turning her words over in my head that I hadn’t said anything.

I took a deep breath and held onto her as tightly as I could. “I promise.”

And I felt, in my heart, a renewed will to fight, to keep going. I felt something move inside of me. I was overcome by emotion, by an immense outpouring of love. Sure, she was my best friend, but I never knew just how much she loved me. I never knew just how much she was on my side.

At my words, we both broke down. We held each other, for God knows how long, promising each other we were going to be OK. That we weren’t going to let one another go. That we would fight this together because nobody should ever have to be alone in their struggle. We held each other, and we cried. And we kept repeating the words that changed everything for me.

“Promise me.”

“I promise.”

Battling mental illness is not easy, but having an ally, having someone who cares, makes the fight that much more worth it. For all of you out there who think you have to do this alone, I am here to tell you that you don’t. I am here. I am fighting with you and for you because I care for all of you so deeply. And I know you all are out there fighting with me and for me. So let’s not do this alone. We can do this together. We can fight this thing together, one day at a time. 

So just promise me one thing. Just one, simple thing.

Promise me that you’ll be here tomorrow.

Because I promise you that I will be.

If you or someone you know needs help, visit our suicide prevention resources page.

If you need support right now, call the National Suicide Prevention Lifeline at 1-800-273-8255 or text “START” to 741-741.

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The Simple Metaphor I Use to Describe My Bipolar Disorder

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It’s winter. I go outside to my car to find that it’s stuck in a snowdrift. I don’t have a shovel, so I have to dig my car out of the snow with my hands. I don’t have gloves. All I want is to get in my car, but my fingers are turning blue. I’m feeling dizzy and overwhelmed. The world feels like endless inches of snow, under a grey sky. It starts snowing, with a wind that whips the snow about my face.

I am so weary. I feel like I have nothing left. I want to give up and go inside, but I fight to keep moving. I am so incredibly tired. I can barely see anything with the snow and wind, but I keep pushing on. I want to get back in the driver’s seat of my life and not let the depression win. Finally me and my frostbitten fingers slide into the front seat and start up the car.

I pull onto the highway thinking, “I’ve done it — I’ve beaten the depression.” Then I unexpectedly hit a patch of black ice called mania. My car skids and slides out of control for what feels like an eternity. I watch myself spinning across the road, spinning out of control. Other cars honk at me, but I have no control of the car. I am powerless. I don’t know what to do. I call all the contacts in my phone and say all sorts of different things. I think I hear the other drivers shouting at me, or is it just my head pounding, my thoughts echoing back?

I finally land in a ditch, a deep snowdrift. Back to depression. I go outside to dig out my car again.

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I Am Beautifully Bipolar

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Living with bipolar disorder, there is a fine line between amazing and awful. Because of our unique brain chemistry, we must learn to walk it well. We must master the art of resilience in a life skewed by mental illness. We are forced to learn how to rise often. We still feel a need to thrive just like everyone else but there are times when we must focus on mere survival instead.

Does this make us weak? No. Truly quite the contrary. We fight battles the rest of the world knows nothing about and this often means waking up to fight the same demons that left us so tired from the night before. It takes bravery and strength.

I love to explain this with two words: “beautifully broken.” The truth is, however, we are not “broken” at all. We are simply different. We are strong by default because our strength is what keeps us alive. Living with the pain and uncertainty of what tomorrow will look like in silence is no easy feat. Constantly waiting for the other shoe to drop. You are a soldier. You are a warrior.

We have the same emotions as everyone else but we can feel them more deeply. Our roaring emotions can feel unstoppable and sometimes so can we. It’s scary to quickly turn into someone you’re not when everything turns gray. It’s a battle we must win over and over again or the consequences could be fatal. An emotional baseline is faint and every emotion can feel like an illusion. Stability becomes a luxury we long for and one most people take for granted. Our negative emotions can be overwhelmingly debilitating. But on the other end of the spectrum, we are capable of loving harder, laughing louder and having more confidence.

This makes a bipolar brain unique in the very best way. It feels like I’m blessed and cursed all at the same time and it’s so confusing. I need not be ashamed and sometimes this means removing toxic people from my life. It is heartbreaking when the ones we love so deeply don’t understand us no matter how hard we try to explain.

It’s a disorder not a decision and something that must be lived to fully grasp this seemingly invisible condition. It can be the loneliest feeling in the world. We must learn early in life to accept the fact there is no such thing as perfect. We must learn not to compare our lives to the pictures people have painted of theirs.

Like an amazing work of art, only some will be able to appreciate the beauty that lies within us. We must learn to enjoy the good times to their fullest because just knowing we can feel that way again can be the only comfort when we are drowning. It becomes a life raft we won’t find elsewhere. Often forced to learn the hard way a life spent waiting for the next episode is no life at all. They say life only gives its hardest battles to its toughest soldiers and apparently, life believes you are a bad ass. And life is absolutely right!

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Dear Bipolar Disorder, How Are You Doing?

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Dear BP,

Hi, how are you? How have you been? I’ll admit I’m a little nervous writing to you because I don’t want you to think I’m asking to see you. And I don’t want you to think about me and decide to visit. I’m just not ready to be around you. But I did want to check in with you since you’ve been relatively quiet lately. If you recall, it’s been about six months since we spoke. Well, formally anyway. I see your posts online from time to time but I never comment. I think we were last together at the hospital, right? That particular stay was a doozy! I hope I never go back. That was so wild.

So Ziprasidone and I are pretty friendly these days. I know how you guys feel about him, which is also why I’m staying away. But he’s good for me. I do miss our old friends, though.

How’s Elevated Mood doing? I hear she might be coming to town soon. I know she always heads this way in the spring for an extended visit. Ooh, maybe she’ll get to see the cherry blossoms this time. Tell her I said “hi” if you talk to her. Out of everybody, I miss her the most. She can be a lot to take, but she doesn’t mean any harm. She just has a ton of energy. We always have fun when we’re with each other. I wouldn’t mind getting together with her for old time’s sake.

Hey, you know who I’ve been thinking about?

Impulsivity. Man, we used to get into so much trouble back in the day! I’m so glad I’ve learned to love him from afar. But sometimes I like to reminisce about the things we used to do. If nothing else, to remind me what life used to be like before my health got better.

Do you remember when he and I went to get matching tattoos? Goodness, it was like we couldn’t help ourselves. We just had to do it and nothing would deter us. I was shaking so much in the chair from all my nervous energy that the tattoo artist got upset. He said if I couldn’t sit still, he wouldn’t continue. Imp just laughed at me.

Afterward, I felt so ridiculous. And by then, Imp was nowhere to be found, as usual. I was embarrassed I’d let him talk me into getting the tattoo. What bothers me is I’m not even supposed to have those. It’s against my religion. But as soon as Imp started hyping up the idea, I couldn’t say no. And it came up out of the blue, so suddenly too. We didn’t think about the consequences or wonder if we’d regret doing it. This didn’t occur to either of us. All that mattered was getting that ink. To be honest, we’d been hanging out with that guy Compulsion too often back then, and we let him influence our choices. I think both Imp and I are pretty suggestible if you ask me.

Oh my gosh, do you know what I did the other day? I decided to create a gratitude journal to remind myself of all the good things in my life that I’m grateful for. Oh BP, it’s been such a help.

Every day I write about the things that make me happy and what I appreciate. You know they always taught us to do this whenever we’d go to the hospital. Well, I finally got around to it. You should try it sometime. You’d love it!  And maybe it will give you a better outlook on life.

Guess who I’ve been chatting with lately? Insomnia! Can you believe it? I know we used to hate each other. But we’ve since reconciled and we’re spending almost every night together. We laugh and carry on like two little old ladies. Her jokes about not sleeping are too funny. And she still loves to play pranks on me in the middle of the night, as much as she always did. That Insomnia is such a card! We really have to stop meeting up though, or I’ll get sick again.

You know how that goes.

So I have to know, how’s BPD doing these days? Do you see her often? Has she gotten herself together yet? Last I heard she was ruining yet another relationship. I’m sorry to say it but I hope I never interact with her again.

She and I do not get along.

She makes me so mad, I can’t stand it. And we always bring out the worst in each other. It’s always all or nothing with us. Things are either great or horrible. There is no in between, it’s awful. She’s just not a good influence for me so I try to avoid her at all costs. And if you remember, I had to go to therapy partly because of her. I’m still salty about that. I’m not trying to shift blame or anything, but I can’t help thinking that if I’d never met her, my life would’ve been much less stressful and anxiety ridden.

Speaking of my cousin Anx, did you hear she had a baby? Yeah, she named her OCD. I’m not one to criticize name choices, but OCD? OK, I have so many questions. Don’t tell my cousin… but why that name?

What does it even mean?

That kid’s going to have a tough time in life with a name like that. Why OCD? Is it a family name? Is it symbolic in some way? I keep saying it over and over, letting it roll around on my tongue so I can get used to it. It just makes me feel so prickly inside when I say it. But I can’t stop. I’ve repeated it about 500 times now. OCD. OCD. Nope, I still can’t get used to it. It sounds strange in my head, like an echo and a hollow tinny sound all at the same time.

Oh wait — I’m getting fixated again. Don’t mind me. You know I do this sometimes. It’s gotten better, but I still slip now and then. My brother Buspirone has been helping me overcome it.

He’s been such a blessing. He has his moments, like everybody, but overall I’ve loved having him around. I wish I had told him sooner that I needed his help.

You know, Depression has been on my mind a lot lately. I can’t help thinking about him and wondering if he’ll ever get better. He just seems so lost sometimes. It’s like he lives in his own dark world where no one can reach him. I feel so badly for him. He brings everyone down with his misery, negative outlook and detachment, and he doesn’t even realize it. He’s a good guy, just misunderstood I think.

I guess you heard that Anger and I made up a few weeks ago. We decided to part ways for good, but in doing so I think we’ve reached an understanding. I’m so happy about it. I think he realized how he much he was hurting me and knew why we couldn’t see each other anymore. It’s really for the best. I sometimes get scared that I won’t find anybody else, but I’m trying to be patient. I don’t want to go back to him just because I’m lonely. It’s hard, though. Being alone I mean. I can’t shake the fact that I’ll die by myself, with nobody there to notice. That thought bothers me all the time.

People say, “Just be positive.”

But even in doing so, I haven’t found anybody else that understood me like Ang did. A friend of mine always counsels me to accept things as they are and to look forward to better times. You know that girl, Patience? The one everybody always talks about? Well, she’s his best friend. I guess that’s why he’s always so calm and collected.

Maybe I should meet her someday. She sounds lovely.

I’m not even going to ask about Grandiosity. He annoys me to no end. Always thinking he’s better than everybody and deciding he can do whatever he wants. He seems to think the world revolves around him. That guy is so obnoxious. And he makes me look bad when he’s around. I get sucked into his schemes and plans, and I forget who I am. But his presence is so intoxicating. You know how he is – charismatic and charming — until he completely alienates everybody with his over inflated sense of self. I’m sure I’ll run into him again soon. It’s inevitable.

Oh wow, I just realized this whole letter has been one big gossip session. Hey, maybe we both needed that.

Anyway, I hope you’re doing well, BP. I don’t hate you or anything, but I need some space. I hope you can accept that. I know we’ll always be in each other’s lives. I just think it’s best if we limit our time together. Take care of yourself.

Love,

Karen

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