When My Friend Shouted 'Spoonie!' Across the Table at Me

It was late one night Saturday night when one of my friends started to inquire about my chronic illnesses. Mainly my epilepsy and chronic pain. I shyly and apprehensively started answering them. I’m very outspoken about my health, but when someone first publicly asks me about it I initially become a bit quiet. I guess I get worried about what they think. I worry if they think I’m talking about it for attention, rather than my true intentions, which is for education and awareness.

Anyways, as soon as I began talking, another friend, or more so acquaintance shouted across the table, “Spoonie!” My eyes lit up and I smiled. While I never wish for anyone to have any sort of health issues, in that instance I didn’t feel so alone. The whole time I’ve dealt with my health issues I’ve always had people who have stood by my side. I’ve had my amazing family who’s fought right by side. I’ve also had my loving, supportive boyfriend who has picked me up when I was down and never stopped loving me even in my weakest moments. However, I never truly felt I had that person that I could talk to who really got what I was going through. Who understood the hardships of dealing with the unknown, the mistreatment by the medical professionals, the pain, the trouble explaining that you’re not healthy despite looking like you are. I never had that person.

Yet when that one word was shouted, I knew that had changed. I had someone who understood when others didn’t. After that moment we talked for a long time about all our experiences and all our health issues. Some of our health issues were different and some of them were similar, but it didn’t matter the diagnoses. What mattered was that our situations were all too familiar. What mattered was that we weren’t alone anymore.

We may often feel alone, misunderstood, forgotten. However, what’s most important is that we remember that we are stronger together and we are never truly alone.

We are always together.

We want to hear your story. Become a Mighty contributor here.

Thinkstock photo by oatawa

Find this story helpful? Share it with someone you care about.

Related to Epilepsy

Lake at sunset.

3 Reasons Why I Love Living With Epilepsy

Many people think living with a disability is always hard and difficult. However, they don’t get to experience the full life we do. Yes, life with a disability can have its bumpy roads, but it also has its positive roads. For almost 14 years now I’ve been through the good and bad of living with [...]
Woman with dog, she is kneeling down, smiling at her dog and giving him a treat

Why I Decided to Wear a Medical Bracelet Because of My Epilepsy

Have you taken the plunge? Until quite recently, I hadn’t. Caught in a conundrum of whether or not to wear a medical bracelet, I hemmed, I hawed, and I finally chose to “don one.” Of course, I personally believe there’s no question but to wear one — if I were driven by sheer logic. But [...]
Silhouette of man and woman at sunset on beach

What Gave Me the Courage to Tell Others About My Epilepsy

I’ve been searching, probing and pounding away at my psyche, trying to figure out what really made me want to begin telling people about my epilepsy. On the surface, I’ve felt that I finally got angry about the senseless stigma against epilepsy. But why? What sparked it or what was wrong before then that suddenly [...]
woman looking sad with group of men in background talking

What I Should Have Told the People Who Made a Seizure Joke

I was diagnosed with epilepsy about 12 years ago, when I was 15 years old. When I was first diagnosed I was embarrassed, scared, and ashamed. A lot has changed since then. I’ve become very outspoken about my epilepsy and educated countless people about epilepsy. However, back then, I was very insecure. The fact that I [...]