My name is Kendall and I joined The Mighty a few days ago because I have a plethora of ideas and thoughts with no proper way of expressing them (yet). Making new friends going through epilepsy is encouraging, as it feels like an isolating experience.
#Epilepsy #EEG #Diagnosis #TheMighty #Depression
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Originally, I was going to say “What people don’t understand about epilepsy” and then go on a snarky rant. I then recognized combativeness hardly accomplishes anything in raising awareness and is typically a filler for a lack of substance. If someone were to come to me with their cause and start ranting, I would immediately be disinterested, despite being able to sympathize with their anger. So instead of being snarky and judging those who do not understand epilepsy in all of its facets, I will take a deep breath and patiently write.
The polyvalence of epilepsy goes beyond the 40+ types of seizures- that not everyone experiences; some may only experience one, others ten, or another experiencing all types of seizures, the medication(s), or even the surgical options. Though I could speak for many people in this post, I will refrain from doing so, and take an autobiographical approach.
I could talk about many ways in which epilepsy impacts my life, but I would be here all day, so I’ll focus on one: my inferiority complex, specifically centered around my intellect. I recognize that almost everyone struggles with an inferiority complex- disabled or not. What is so difficult in my case is that at times, the inferiority complex is reinforced by external factors, whether intentionally or inadvertently. The more I practice introspection, I feel that this is why I limit social interaction: I am so deeply insecure about my (self-perceived) lack of intellect that I hardly ever speak, despite people insisting that I am smart. I wonder if the reason I am most insecure about my intellect is because that is the quality I hold most dear, at least within myself.
While I try my best not to view epilepsy as an enemy, as it is a part of me, I cannot help but make the observation that it has infiltrated every part of my life.
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May everyday be filled with everything that makes you happy and everything that you want. May you always live your best life and do everything your heart desires. Love you all! <3 #MentalHealth #Depression #Anxiety #Bipolar2 #BipolarDisorder #Psychosis #Epilepsy #GeneralizedAnxietyDisorder #ObsessiveCompulsiveDisorder #BPD #BorderlinePersonalityDisorder #Schizophrenia #SchizoaffectiveDisorder #Diabetes #DiabetesType1 #SuicidalThoughts #Suicide #Selfharm #SocialAnxiety #SuicidalThoughts #PTSD #PanicDisorder #ADHD #PanicAttack #PanicAttacks #dissociativedisorders #AutismSpectrumDisorder #Autism #DownSyndrome #ChronicIllness #ChronicFatigueSyndrome #ChronicPain #CheerMeOn #MightyTogether #Mania #MajorDepressiveDisorder
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I wish you all the best and the most happiest life full of joy, peace, and positivity. I hope that everyday gets better and better for you in every way. I hope you never suffer and you a live the type of life you want that makes you grateful to wake up to each morning.
#CheckInWithMe #MentalHealth #Disability #Addiction #Anxiety #Depression #Bipolar2 #Bipolar1 #BingeEatingDisorder #ObsessiveCompulsiveDisorder #Epilepsy #GeneralizedAnxietyDisorder #Schizophrenia #SchizoaffectiveDisorder #Trauma #SuicidalThoughts #Selfharm #Suicide #PanicAttack #PanicDisorder #PTSD #PersonalityDisorders #PostTraumaticStressDisorder #BorderlinePersonalityDisorder #SocialAnxiety #SensoryProcessingDisorder #Stroke #SchizophreniaSpectrumPsychoticDisorders #SleepWakeDisorders #SomaticSymptomandRelatedDisorders #SubstanceUseDisorders #AspergersSyndrome #AutismSpectrumDisorder #Autism #ChronicFatigueSyndrome #MajorDepressiveDisorder #DepressiveDisorders #Diabetes #DiabetesType1 #dissociativedisorders #DistractMe #EatingDisorders #HypothyroidismUnderactiveThyroidDisease #LearningDisabilities #ADHD #BipolarDepression #InflammatoryBowelDiseaseIBD #RareDisease
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Hi, my name is Valkcchiefs. I'm here because I have generalize and focal epilepsy
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Dry bones rattle in a lonely soul
Slipped and fell into a deep black hole
I can tell you're lost, I'm here for you
Wildfires burning you down to stone
Blind eyes, turning from a world so cold
A million miles apart, within my reach
It's not like me to worry
But when I see you fading in the dark
I'll leave a light on for you
Through the long nights, I will be right
There for you if you drift too far
I'll leave a light on for you, you, you
The rain comes following an endless drought
To wash away the remnants of all your doubt
I hope that you'll see me looking out…….”
Please 🙏 go to this link below for a Guide to having a Real Conversation about mental health and pass this on, share it with everyone and anyone that you need to be there for you, and they just don’t know how they can help you.
I have found out myself within the past year with an old friend of mine that she just needed my guidance on how she could be a better and supportive friend through my dark which is only a part, but still a part of who I genuinely am. And she realizes now that to be my friend is to know about all of me. And, she has actually become really great at giving me the support I need without me asking for it too. And, our friendship has grown stronger from the honesty and true empathy.
On their website in their real convo guide they start by saying this that people do not know and they get wrong — “you don’t need special training to have an open, authentic conversation about mental health – and often, just talking about it can be the first important step in understanding where someone is with their mental health.”
How to Start and Continue a Convo About Mental Health | AFSP
At the beginning of the song’s video there is silence with a black screen and these words in white:
“Suicide is a topic that hides in the shadows.
It’s Time we talk away the dark.
We can all play a role in keeping ourselves, and the people in our lives (and community) safe.
Let’s leave a light on for each other by learning how to Talk Away the dark.
The song’s royalties will directly benefit the AFSP (American Foundation for Suicide Prevention) for the rest of it’s existence. Suicide has impacted almost everyone and it’s so important to “Talk Away The Dark” and teach all how to have a conversation that could safe a life.
The lyrics also exist as a shoulder to lean on for those who feel alone in times of mental turmoil.
Frontman Jacoby Shaddix emphasized that mental health is not an individual struggle, but rather a serious issue that "affects all of us."
Finally, the critical message is starting to get out there that We All have a role in preventing suicide and supporting each other’s mental health.
#MightyMusic #Music #musictherapy #Songs #Lyrics #MentalHealth #Depression #Grief #Loneliness #Anxiety #Caregiving #PTSD #ComplexPosttraumaticStressDisorder #Trauma #BipolarDisorder #MajorDepressiveDisorder #ObsessiveCompulsiveDisorder #ADHD #Addiction #AddictionRecovery #ChronicIllness #ChronicPain #BorderlinePersonalityDisorder #BipolarDepression #Disability #CerebralPalsy #RareDisease #Selfharm #SuicidalIdeation #SuicidalThoughts #MoodDisorders #MotorDisorders #ChronicFatigue #ChronicFatigueSyndrome #DepressiveDisorders #PersistentDepressiveDisorder #IfYouFeelHopeless #MightyTogether #AnorexiaNervosa #EatingDisorders #Fibromyalgia #ParkinsonsDisease #Migraine #Cancers #POTS #CheckInWithMe #FamilyAndFriends #Epilepsy #Autism #PanicAttacks #PanicDisorder
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Hi, my name is JubilantShelduck84. I'm here because my son as been diagnosed with epilepsy he’s 19 years old
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Hey, I’m Smelly. I’m new here *stands up* hi 👋 hi 👋 (This is nerve racking but Smelly you got this) I came across this by accident well kinda. I have a very pushy uncle who is due to visit. He wants to stay for approx 3N 4 days. there’s no way I can do that. I told him a few times I can only do a couple of days. I’ve explained the best I could about too much stimulation and how it effects me with many auras & absent seizures. well he asked again about staying longer. I want to scream! I’m getting angry and I then feel awful coz people don’t understand sometimes *whispers* especially those pushy uncles who want to spend more time with you to tell you about Uncle Harold and his lady friend trip to London. So I went surfing YouTube to find some videos to send to him because honestly the last straw was…..wait for it….wait for it, Maybe next year when you are better! *scratches head* I for the life of me cannot understand I guess just the same as they cannot understand. I keep thinking that maybe they don’t believe me. uncle Harold is very sheltered I guess so not exactly a medical dictionary. maybe just knows about the seizures you get when you’ve been on the naughty stuff. which Uncle it’s completely not that as that’s the last thing I would be doing hence asking for extra days….im gonna give myself a seizure just trying to work this out. Thing is I find this hard with over stimulation. anything over my norm is like new information so when I’m doing something different to the usual I have auras, sometimes absent seizures and I know I’m probably gonna get some backlash but I call my big ones Disco Dancing. it’s been a while since I had those. I ended up in hospital with a broken foot and I bit my tongue so bad it was so painful to eat for the next month. It was sheer hell so I hope when I put a light hearted name on the big ones I mean no offence, truly. Going back to uncle who clearly doesn’t get on the dance floor let alone Disco Dances, doesn’t understand. I’m trying and I don’t know what I can do or say to get my point across. I would like some advice mainly in how to explain over stimulation maybe, I dunno just some tips from you lovely, strong and Mighty people ✌️🤘
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Hope it will help many, I wrote a book some time ago about about living like with depression and Epilepsy. I jus just finished it and was very fortunate that it has been published I will be posting a link on here tomorrow for the whole book from beginning to end and I hope it helps and encourages many that are suffering from a lot of the same things we all suffer from and this girl fair warning there may be something said that could be a trigger from your past but in no way your answer to I hope you all enjoy the book The Link tomorrow have a blessed night everybody love you all
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Though I will not be delving into this story in this post, at 4 months old, I was diagnosed with infantile-spasms. The prospect of any sense of normalcy looked grim; even a speech therapist insisted that I would never “walk, talk, or learn like a normal person.” (Doesn’t that statement absolutely reek of ableism?)
Anyways, my parents were not happy with the lack of faith of that speech therapist. Before I say anything else, I would like to mention that if I never did walk or talk, I would have still been able to learn, and my parents would not have loved me any less. It’s just that they weren’t happy with how quickly she gave up. But at 3 years old, I said my first word, “banana” (or, more accurately, “ba-buh-ba”). Upon hearing this story for the first time, I was fixated on finding a tangible symbol for overcoming doubt.
I still have epilepsy, but I can certainly walk and talk, and I love learning just about anything and everything. I’ve always wondered what my “symbol” would entail: maybe a banana: overcoming the doubt of others? The more I thought about this, the more I realized that this symbolizes the endurance of my parents. Or maybe it was a seahorse: the animal symbol for epilepsy, or the purple ribbon, the color for epilepsy.
Recently, I had an epiphany: this “tangible symbol” I have been looking for is within me. It is not something I can hold and glance at with marveling eyes, but instead, it is me telling my story. I don’t need something to hold as if it is proof of endurance; I just need to be grateful for my life, for where I am now, and to share my story, whether it is through poetry or through this platform- or anywhere else.
(Speaking of poetry, I was at a local event in October getting ready to read a poem about epilepsy, because who needs a comfort zone?)
#Epilepsy #Depression #Anxiety #InfantileSpasms #MightyPoets
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