To Anyone Feeling Ashamed of the Accommodations They Need for Their Illness

I think the first step after being diagnosed with ___ (chronic illness goes here) is you have to change your lifestyle to adapt to your needs. The changes will not always come at once but sometimes they do, and if this is your situation, stop and breathe. Yes, it is overwhelming, but there are so many ways the world can adapt to you, or you to the world, however you want to see it. Many people still won’t understand why you wear a sweater under the hot sun or why you have a wheelchair if you can walk. That, my friend, should be the least of your worries!

I myself have been a victim of being ashamed of my needs. Sometimes you just have to face reality — this is my new life. Sadly it seems people need us to prove to them how sick we are. I don’t wish anyone to have a condition like the one I have but people sometimes get so annoying it makes you wish they could be in your shoes for just an hour and see how they deal with it. You have to learn how to mute all those negative voices and focus on you! If you end up in the hospital, you are the one dealing with all that, not those around you, so my advice is to not let them get to you.

If you can’t walk long distances or get out of breath, you could get a wheelchair or an oxygen tank (I have both). Don’t be ashamed! I myself cannot stand for too long so I also have a shower chair. I also have a ramp outside so I don’t have to deal with stairs. As one person told me, “If things can be accommodated to you why not!? It makes life easier and less stressful.” What she said is very true — we often keep things to ourselves so we don’t “bother” anyone, but that has to stop. You are already dealing with this illness, and just that one thing adds so much stress into your life. You shouldn’t have to deal with other small obstacles.

Think about yourself because if you don’t, maybe no one will. Keep yourself as healthy as possible. Be the best you and keep fighting.

We want to hear your story. Become a Mighty contributor here.

Thinkstock photo by Delpixart

Find this story helpful? Share it with someone you care about.

Related to Chronic Illness

Black and white image of a little girl hugging her mother

From One Mom of a Chronically Ill Child to Another

Dear mother of a chronically ill child, First of all, let me tell you how sorry I am for both you and your child. The journey ahead is not easy. I know. I am in the trenches right next to you. When my daughter was 21, two years ago, she had a serious adverse reaction [...]
woman in hospital bed giving thumbs up

Working Through the Phases of Grief Over My Chronic Illness

After my recent post on my blog where I briefly touched on this topic, I felt I wanted to go into more detail. This is an area I have studied lots over the past 10 years and have experienced through various experiences in my life. Some being death, alcoholism of a loved one and my [...]
Woman with arms crossed with a serious expression.

When My Chronic Illness Creates the Feeling of 'FOMO'

We Irish love to discuss the weather. Rain or shine, wind or hail, a conversation will generally open with some comment about the weather. The moment the year begins to turn and the evenings begin to stay bright a little longer, the discussion of the “grand stretch” in the evening begins. Light past 6 p.m.? [...]
beautiful woman face colorful ink paint splash, young sketch girl vector illustration

To My Loved Ones: I May Look 'Normal' but I'm Still Sick

I am not “normal.” Now, I know what you may be thinking…Who is normal? We are all unique and special in our own individual ways. Yes, I get that. But when one is referring to chronic disease or illness, I think there actually is a “normal,” and an “abnormal.” And I, in good company with others, fall into [...]