Fidget spinner toy.

What I Wish People Understood About Fidget 'Toys' and Disabilities

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In second grade I would kick my feet under my desk. This wasn’t a light paddle kind of kick, but wildly kicking the desk up with my feet, causing a commotion and a lot of noise. It would completely disrupt the class and I would get yelled at. I would have to stay in for recess because of something out of my control. I remember my regular ed teachers putting heavy books on my lap to try to get me to stop, but I had so much energy my legs would just kick. There was also a time they put tape on my legs (I could easily break the tape) that would lightly tug on my clothing as I started to kick, trying to act as a reminder. But still, my feet swung.

As much as I tried to stop, the second my mind lost focus (which as a child with severe ADHD was literally every three minutes) my legs would start going again. My special ed teacher found a solution, a piece of fabric I could play with in my hands, and suddenly my legs stopped kicking. Over the years I’ve tried different things to get the relief, and I have found nothing more helpful than my fidget cube.

Students with disabilities need these cubes and spinners, but non-disabled students have now taken these objects and are treating them like toys instead of what they were actually invented for: therapy. Kids with anxiety, autism, sensory processing issues, ADHD, and many other cognitive and even physical disabilities really benefit from these tools. While they might be fun for some, they actually serve a purpose to many. They’re now being banned in schools because students who don’t need these objects are misusing them.

Please talk to your kids/friends/family about disabilities, and how some students/fellow employees may get items or services they do not get. Many kids in elementary school are angered by this, but if these kids are informed of the reason for these differences, they are more likely to accept them and help create a better environment for students of all abilities. The fidget “toy” is a great place to start a conversation about ability and disability.

I don’t mind when non-disabled people use fidget tools, but please talk to your kids, siblings, and peers about the importance of them. Teach them to use them appropriately so those who need them don’t have to suffer the consequences from those who use them for fun. For you, they may be a toy, but for me, they are essential in my everyday life.

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Having adult attention-deficit disorder (ADD) and generalized anxiety disorder (GAD) is a constant battle in the brain, like two opposing sides fighting each other.

My anxiety wants everything to be clean and organized. My ADD wants a disorganized mess.

My anxiety hates myself for being such a “slob.” My ADD can’t keep me focused on cleaning.

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My ADD makes plans often. My anxiety always makes me bail.

My ADD wants to make lots of friends and be social. My anxiety says they all secretly hate me and they’ll hate me more when they get to know me.

My ADD makes studying very difficult. My anxiety tells me I will fail and disappoint myself and everyone around me.

My ADD tells me I should make a Facebook tab and scroll through it until I get bored. My anxiety knows I should be studying.

My ADD wants to make plans with friends. My anxiety makes me want to be alone.

My ADD wants to be spontaneous in relationships. My anxiety tells me every day that he will decide to leave me.

My ADD keeps me talking to him, maybe more than I should. My anxiety thinks I’m annoying him and that he’s going to leave me because of it.

My ADD has me talking more and more. My anxiety uses those words to look for constant reassurance.

“Do you hate me?”

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My anxiety causes me to break down because my worries become a reality. My anxiety and ADD have ruined every relationship I’ve been in. My anxiety and ADD has destroyed many of my friendships. My anxiety and ADD dropped my GPA so low there may be no way out.

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Why We Opted Out of Standardized Testing for Our Son With ADHD

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Every year we received the email. And every year I’ve been able to ignore it. Until this year. In the state where we live, the first year standardized testing is mandated is the 3rd grade. Our son is now in 3rd grade. I could not ignore the email and attachment this year. The attachment was a letter stating the steps to take to opt out of the testing for your child.

I was afraid. I was anxious.

What does it mean that my child would not be participating? Would he have to stand in the hall while the other students took the test? Would he be berated with questions from his peers about why he wasn’t taking it?

As a parent of a child with an ADHD diagnosis, I often worry how he will be treated at school. He has a 504 plan, which gives him special accommodations that other children may not receive. He is able to move around more, is given the choice to sit closest to the teacher, can take tests in a smaller group outside of his classroom and other supports which allow him to be successful in school.

Children can be cruel and a parent always worries. As a parent of a child who is unique, I worry more.

In the end, our decision was based on our own feelings about how this would affect him and also the opinions of his teachers. Without our addressing it, a teacher brought it up. Taking these tests would not be beneficial to our son. She sees him daily and knows him in the school environment. How could we go against our gut-instinct and her professional opinion? We wouldn’t and we didn’t.

Even if you do not have the support of your child’s teacher — which we are enormously grateful to have — know your rights in your state. The pressure to meet the 95 percent federal guideline for standardized testing is intense. States that receive federal Title I funding can have their funding withheld if they fall below the 95 percent mark. This means the school district can lose funding if less than 95 percent of their students take the test. But changes to the law in 2016 gave discretion to the states in dealing with those who fall below this benchmark. How this plays out is yet to be seen. But know your options. Your loyalty is to your child, not to a school district.

For our family, this wasn’t about whether or not we agree with standardized tests on the whole. What it was about was our child. And he is our ultimate responsibility.

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What Not to Say When Someone Tells You They Have AD(H)D

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Coming out with ADD feels sometimes a lot like coming out the closet. There is a nervousness when I’m about to tell, a vulnerability and question in my mind if the person will think differently of me. People often feel a need to contradict me when I tell them I have adult ADD and offer their own theories about what could be going on with me. So I have created a small guide for what to (not) say if someone tells you they have been diagnosed with ADD.

1) Don’t say this is a conspiracy of the pharmaceutical industry to over-medicate me.

I am aware ADD can be over-diagnosed in schools. I am aware of the pharmaceutical industry’s love of placing profit over people. This response doesn’t help me at all and is very patronizing, for it suggests I am a sucker who hasn’t devoted careful and pained thinking to all of these matters. If I am choosing to communicate that I have the diagnosis of ADD, it is because I have chosen to accept this diagnosis.

2) Don’t tell me “everyone” is distracted sometimes and this is just part of my personality.

Very similar to response one, this suggest I have foolishly run off to medicate myself with no real basis or thought. It also puts me in the awkward and difficult position of having to defend myself to you and “prove” my diagnosis. It’s similar I think to the “you’re not depressed, you’re a bit blue” response. It’s shit.

3) Don’t start suggesting cures unless I ask you for advice.

Believe me, no one spends more time thinking about how to treat what is going on than the one experiencing the condition. I have chosen which coaches/peers/blogs/websites to consult. Your telling me to down cod-liver oil while swimming six laps every morning isn’t going to help me.

And now for the do:

1. Do respond sensitively and recognize I have chosen to tell you something I feel vulnerable about.

2. Do ask questions.

Things like “How does this affect you?” “What was the process that led you to seek psychological counseling?” and “How is it going?” are all great questions. They all show me you respect my judgment and are interested and want to find out more about my experience.

3. Do ask how you can help.

Follow this journey on 1ADDPHD.

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When Socializing Is Exhausting for Someone With ADHD and Anxiety

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Growing up, I was described as a lot of things — scatterbrained, a space cadet, quiet, bitchy, aloof, awkward, standoffish…

It added up, and I was ashamed of what I felt was my flawed personality, constantly thinking there was something “wrong” with me but I couldn’t control it. Eventually, I became afraid of social interactions. I avoided going out with friends, making eye contact with cashiers, raising my hand in class, making phone calls, the list goes on. It wasn’t until I was in my early 20s that I was diagnosed with ADHD, generalized anxiety disorder (GAD) and OCD. Everything made sense!… To me. But many others, especially those who aren’t aware that one’s brain can be neurologically wired differently than theirs, are the ones I have trouble with.

Socializing is something many people need. With me, it gives me instant anxiety even thinking about it because my brain won’t be quiet long enough to let me to focus on one thing at a time. It’s an exhausting cycle I’ve been dealing with for as long as I can remember. My ADHD brain —> anxiety —> self judgment —> clam up and get real awkward —> get scared for the next time I have to talk to someone.

Here’s how things typically go for me:

I confidently start to engage in a conversation. I think about if I’m doing a good job. I have a song I haven’t heard in years playing in my head. I can’t remember if I unplugged the curling iron. What do I do with my face? Do I look bored? Where should I put my hands? Is my laugh gonna sound fake? I probably look so uninterested. Crap, they stopped talking. How do I respond? What did they even say? That song is still playing in my head. I need to make a grocery list when I get home…

Then I usually ask them to either a) repeat themselves or b) nod my head and say something insincere like “that’s awesome!”

I have such a hard time retaining things from a normal everyday conversation. I am judging myself so harshly because I don’t want to be labeled by my illness or stereotypes. Of course this will cause more anxiety! Of course it will then spiral out of control! And then I beat myself up over “messing up again.” I’m working on figuring out how to accept these parts of me, but what I think is absolutely imperative to the entire population is education in mental health so we can reduce the stigma of it. Yes, we are all human. But just because we’re all human doesn’t mean we’re all the same. That would be so boring, wouldn’t it? You can’t define “normal.” People have quirks and traits that make them “them,” and that isn’t “weird,” it’s beautiful. People are so quick to jump to the conclusion that someone is “weird” or “awkward” or “aloof” just because they don’t fit into the stereotypical “normal” category.

I think if mental illness wasn’t such a taboo topic for some, we could all be a little more empathetic toward one another. And maybe, just maybe, even though you might think I sometimes come off as aloof or bored or stoic… you know I’m not. You know I am kind. I am empathetic. That I have an enormous heart. And I, like many other people, do my very best every single day.

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A Letter to People Surprised by My ADHD Diagnosis

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Dear friends and family,

If you didn’t know already, I guess the cat is out of the bag. I have ADHD. I was just diagnosed at the beginning of the year, but I realized I have unknowingly been dealing with it for quite some time (basically my whole life).

You might be surprised. I get good grades. I do not jump out of my seat randomly or have random outbursts. I can sit and watch full episodes or movies on Netflix.

But these are not the only symptoms, and not everyone with ADHD has these symptoms. Everyone has different symptoms, and there can be differences between males and females.

My ADHD is displayed through my constant worrying and anxiety.

My tendency to constantly be on my phone, because I can change tasks often enough to satisfy my racing thought patterns.

My constant shifting in my chair, not because I am uncomfortable in the position, but because I have trouble sitting still.

My frequent typos even though I read and reread and reread what I type.

My love of exercising because it helps to relieve some of the extra energy I have so maybe I can keep my attention on an assignment for more than five minutes.

My lack of engagement in classes because reading for classes can be near impossible.

My constantly late arrivals because I try to brush my teeth, get dressed and make lunch all at the same time.

My loss of complete conversations because I could not focus on what you were saying despite my best efforts.

My last-minute assignments because the pressure of the clock is the only thing that nails me down in a seat to be productive.

My depression because sometimes I feel like I am 10 steps behind everyone else in classes and success is not possible for me.

I have been fortunate enough to have access to care that helps me. On my best days I am able to balance my time so I can complete work and decrease my anxiety. I am able to get something out of class and remember what happens after I leave. I feel like my head is in one place at a time, not five different ones.

You may not see a difference, but I cannot explain how amazing it feels to be in the moment.

As your relative or as your friend, I ask two things of you:

1. Please do not think of me differently, because I have not changed. I just now have a diagnosis for something I have always had.

2. And please do not hesitate if I bring it up. I want you to ask if you have questions. I want you to learn and understand me.

Kindly,
Still me

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