When My Joint Hypermobility Flares Before I've Even Left for Work


It’s 7:00 a.m. and I’ve just woken up with my alarm, well-rested and feeling ready to start the day. Today I feel good. There’s no pain yet. I feel full of energy and I’m determined to make it to work.

I go to the kitchen and put the kettle on for a cuppa. My iPod’s playing music and I’m singing along while deciding what to wear and getting changed. It’s all going well until my shoulder starts to ache whilE putting my dress on. Uh-oh.

But now I’m changed and everything’s fine. I’m not in pain and I have my cup of tea to regain some energy before putting my make-up on. Putting my cup down, I notice I’ve got the shakes today. No problem, it’ll pass.

It doesn’t. My mood’s starting to drop from happy to frustrated. My eyeliner’s not going well due to my shaky hands and now my fingers and knuckles are starting to swell at the joint and are becoming quite sore. I quickly finish my make-up and move onto straightening my hair after a break.

I usually stand to do my hair as I find it easier on my back that way, however it does mean standing for more than 10 minutes, which can either be OK or unbearable. Today, despite how I felt when I woke up, it’s unbearable. My knees are shaking and becoming weaker and weaker, my hips are hurting and I can feel my ankle beginning to sublux. And so I stop. Put the straightener down and sit on my bed for a break – only my hips are really hurting so I need to lie down.

But now my shoulder blades are hurting and and its 8:20. I’ve got 10 minutes until I need to leave and I know there’s no way I can walk to work today. There’s no way I can go to work for nine hours feeling like this. I’m not even sure I can stand up right now because of the pain. I can feel all of my joints teetering on the edge, just waiting for me to move the wrong way so they can pop out and dislocate.

And so I crawl back into bed and admit defeat for the day.

I tried, but at least I know there’s always tomorrow. I’ll try again tomorrow, because maybe then I’ll manage to make it through the front door.

We want to hear your story. Become a Mighty contributor here.

Thinkstock photo via twinsterphoto.

TOPICS
JOIN THE CONVERSATION

Related to Joint Hypermobility Syndrome

young woman sitting on a rock overlooking a valley with text saying 'when chronic illness gets you down'

The Mental and Emotional Side Effects of Chronic Illness

A big part of chronic illness is, of course, the physical aspect and what effect these types of illnesses have on our mobility and the other various physical symptoms that come with the territory. However, what most people forget about is the mental aspect of chronic illness. Yes, the physical effects are hard, but sometimes you [...]
Little girl doing therapy, she is in a roller tunnel reaching for toys while therapist keeps roller steady

Why Funding for Programs That Help Kids With Physical Disabilities Matters

My daughter, Tiny Miss H, has joint hypermobility syndrome and hypotonia. It means she isn’t as physically able as her peers. After years of intense therapy, she has technically reached her major milestones, but she is neither confident nor consistent with her abilities. As a result, mainstream activities are often not suitable for her. We work hard on [...]
Teenage girl on phone doing homework on her bed with laptop

Fighting for a Diagnosis Even When Doctors Dismissed Me

I can always remember my legs aching and being tired from a young age. I just thought it was normal. It wasn’t until I was 15 that I had my first dislocation of the knee. The orthopedic consultant said it was due to my age and that it was quite common for girls going through puberty [...]
person wearing a taekwondo outfit and tightening their black belt

When Joint Hypermbolity Syndrome Is a 'Double-Edged Sword'

Anyone who knows me well knows that if I’m not eating, sleeping, attending college classes, doing homework or otherwise “adulting,” I am probably doing dojang, helping out with taekwondo classes or attending classes myself. After all, it’s my “happy place.” When I was 11, I started martial arts because it just looked like fun and [...]