Joint Hypermobility Syndrome

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Joint Hypermobility Syndrome
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    What's New in Joint Hypermobility Syndrome
    Community Voices

    new in town :)

    <p>new in town :)</p>
    Community Voices

    Long COVID Fear Advice?

    Evening everyone! I was wondering if anyone had any advice on dealing with anxiety regarding long COVID. I am so scared of my family developing long COVID. As someone who lives with chronic fatigue and numerous other symptoms, one of my greatest fears is my family experiences what I experience. My brother and I have both had COVID this past week or so (I’m actually finishing isolation tomorrow morning) and my brother (who finished iso about 3 days ago) has just told me that he is still experiencing shortness of breath and was feeling quite tired today.
    I completely understand that it is early days and this is likely very common, but my logical brain isn’t winning over my anxiety at the moment and my anxiety has suddenly spiked to the point I can’t fall asleep! I often experience anxiety such as this - I’ve been told I am ‘highly sensitive’/‘an empath’ who often takes on other peoples emotions/feels strong emotions about things other people are experiencing. I hope that makes sense 😖 ❤️ Does anyone have any advice on how to deal with this fear?? Thank you so much for reading this! I hope you are all staying safe!! ❤️Sending hugs to all of you!
    #ChronicIllness #ChronicFatigue #JointHypermobilitySyndrome #EhlersDanlosSyndrome #ADHD #VisualSnowSyndrome #ObsessiveCompulsiveDisorder #COVID19 #longcovid #Anxiety #MentalHealth #Disability

    2 people are talking about this
    Community Voices

    What are your favourite quotes to help with life overwhelm ?

    <p>What are your favourite quotes to help with life overwhelm ?</p>
    6 people are talking about this
    Community Voices

    I'm new here!

    Hello. I'm Caroline but my username is Loudflower. I'm here because I've recently been diagnosed with hypermobile Ehlers-Danlos - this diagnosis came a few years after being diagnosed with breast cancer due to a gene mutation and going through all the surgeries and treatments that follow. That is the very short version. Life has changed, y'all. Some days I am determined and optimistic and too many days I am just struggling. It's a lot. I have even retired early (I am a pharmacist). I'm hoping to learn from everyone, and hopefully to find a laugh or two as well.

    #MightyTogether #EhlersDanlosSyndrome #JointHypermobilitySyndrome #Hypersomnia #HereditaryBreastAndOvarianCancer #HereditaryPancreatitis

    4 people are talking about this
    Community Voices

    I’m new here!

    I’m here because I have #JointHypermobilitySyndrome and possibly #EhlersDanlosSyndrome (I just got tested for it but I’am waiting for the results).
    I live in a country where online communities for people with chronic pain or rare conditions are not that active. I hope to communicate and get support from those who have had similar experiences as me!

    2 people are talking about this
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