Joint Hypermobility Syndrome

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Joint Hypermobility Syndrome
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    📺 Chronic Illness on TV Vs Chronic Illness Reality 📺

    When you live with a chronic illness, especially when it’s something like FND, then your medical experiences are never like the ones you see on TV! On TV there’s always a magical cure for everything, regardless of what it is, whereas in reality, if the doctors can’t see it, or understand it, then they basically just don’t believe it. If they don’t have a “quick fix”, or even just a “fix” at all, then they simply don’t want to know, they treat you as if “it’s all in your head”, and they dismiss your concerns as if they’re nothing. All of which ends up causing us even more problems in the forms of Depression and Anxiety, as well as reduced self-confidence and self-belief. 🤷🏻‍♀️🙄🥺💔
    #InvisibleIllness #InvisibleDisablity #FunctionalNeurologicalDisorder #ChronicIllness #ChronicPain #chronichealth #ChronicDepression #Depression #Anxiety #MentalHealth #NotOnTV #Disability #MightyTogether #Asthma #JointHypermobilitySyndrome #JHS #ChronicMigraines #Migraines #Headache #ChronicHeadaches #ChronicFatigue #Insomnia

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    🏁 ‘Slow’ is better than ‘No’! 🏁

    When you’re living with chronic health issues, regardless of whether they are physical, mental, or both, have you noticed how much pressure that you put on yourself to make as much progress as you possibly can? Like more progress will somehow ‘fix’ everything and make everything better? Like the more progress you make demonstrates how much you want to get better? Like if you’re not making enough progress then you’re somehow not making enough effort to get better or that it means that you’re somehow failing in your journey? It’s something that I have started recognising in myself, and I have started to realised that the more I push myself to make as much progress as possible, the worse I actually end up making things. And I’m sure that I am not the only person who does this to themselves. How many times have you pushed yourself so hard to make as much progress as possible but all you actually end up doing is causing yourself more stress, more pain, and more setback than progress? It’s so easy to loss track of the small victories, and we don’t realise that making SLOW progress is actually better than making NO progress at all, or, even worse, setting yourself further back than you already were. I know it’s not easy, in fact I don’t think that I have come anywhere close to achieving this revolution but it’s time that we start going a bit easier on ourselves and realising that it’s important that we recognise that the ‘small’ wins, the littlest progress, IS enough, and sometimes even more than enough!
    #MightyMinute #52SmallThings #CheerMeOn #CheerEachOtherOn #MightyTogether #MentalHealth #ChronicDepression #Depression #Anxiety #Disability #FunctionalNeurologicalDisorder #FND #JointHypermobilitySyndrome #JHS #ChronicIllness #ChronicPain #Grief #ChronicFatigue #SpoonieProblems #Treatyourself #EnjoyTheLittleThings #CelebrateTheSmallWins #PersonalRevelations #MiniVictories

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    💝🥰 I saw this and thought of you! 💝🥰

    I saw this picture and it instantly made me think of my fellow Mighties! It doesn’t seem to matter what I’m going through, or how I’m feeling, I know that you are always here for me whenever I need you. 💝😍 Your kindness, compassion, support, and understanding, during my times of need have not gone unnoticed, nor will they be forgotten. You have been there for me much more than the majority of my family and friends have been, and that means far more than words can say. 🥰 When I got FND – which I still feel is short for “Friends/Family Now Disappear” – all my friends disappeared and I felt so lost and alone. Then I found the amazing people on The Mighty and discovered that I am not nearly as alone in my struggles as I used to feel. Thank you to each and every one of you wonderful people! 😘💝
    #FunctionalNeurologicalDisorder #FND #FNDAwareness #52SmallThings #MightyMinute #CheerMeOn #MightyTogether #MentalHealth #Anxiety #Depression #ChronicDepression #Disability #JointHypermobilitySyndrome #JHS #ChronicIllness #ChronicPain #Grief #ChronicFatigue

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    Little victories!

    Can't believe I used To do all these things in one day, hold down a full time job and workout #Fibromyalgia #AnkylosingSpondylitis #JointHypermobilitySyndrome #EhlersDanlosSyndrome

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    My Job?! #MentalHealth #Fibromyalgia #JointHypermobilitySyndrome

    Adult children constantly badgering me about my productivity or lack of and saying it’s “My Job” to get them to their jobs or appointments when I struggle to make mine. Just a vent really. I’m really sorry I can’t do what I used to for them, but offer to pay for cab ride or anything else. It’s just getting me down.

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    New here looking for advice

    i did use this app around 5 years ago but can’t remember how it works so i don’t know if i’m posting in the right place for people to see or anything.
    Anyway i’m looking to connect with people similar to me and i am also asking for some advice

    i’m 19 i have hypermobility syndrome and have been experiencing pain for around 10 years. I do fit the criteria for eds but last time i brought it up to rheumatologist she told me a child can’t be diagnosed with it 😐and that my pain would go away after puberty . i am now an adult still experiencing symptoms but i am no longer under a rheumatologist or anything.

    The advice i am looking for is around my SI joints which have become unstable. They are subluxating multiple times a day any time i move and are really uncomfortable and painful. i have been to the gp and he gave me an antidepressant used for pain relief and will refer me to the musco-skeletal team. He mentioned that there is an injection for this joint but doesn’t know if they will do it because i have hypermobility? any research i can find online doesn’t mention any other treatment options and i don’t know what to do. I can’t walk or sit up for long as the pain gets unbearable, ive tried a tens machine, heat and ice which barely touch the pain. Any advice would be greatly appreciated. #BackPain #JointHypermobilitySyndrome #EhlersDanlosSyndrome #Advice

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    Where did the old me go #ChronicIllness #JointHypermobilitySyndrome

    I used to think nothing of my symptoms until it all started to get worse. I used to just continue on and ignore the slight pain.

    But it just escalated and slowly I watched the old me disappear, the person who was happy, content and felt alive. I became tired from the pain and during this process of symptoms escalating i couldn’t sleep due to stressful events going on in my life and I ended up becoming miserable.

    I ended up stopping many things I enjoyed doing. Drawing, Cooking, photography, socializing with Online friends, reading novels, watching movies.

    I ended up feeling so lost. So many things have changed.

    now I don’t know where I belong.

    Each day I’m just trying to figure out what I can manage to do and see where the day takes me.

    Maybe it’ll be a long road for me to find who I am now and where I belong.

    But I’ll always wonder what happened to the old me at the end of the day.