35 All-Too-Relatable Daily Thoughts of a Spoonie

Here are some of the common thoughts I have regarding having an autoimmune disease:

1. “Do I have to get up?”

2. “My bones hurt. How can bones feel pain?”

3. “Omneprazol before food…”

4. “I don’t feel like breakfast…”

5. “No Facebook, I don’t want to see photos of me before the prednisone.”

6. “I used to hate those photos…look at my face now.”

7. “You’d think after a while I wouldn’t choke while swallowing multiple pills at a time…”

8. “Urgh, I want a nap.”

9. “Argh, nearly forgot SPF.”

10. “Should I bother with foundation, or rock the butterfly rash?”

11. “Do I have my keys?”

12. “What else do I need?”

13. “My right hip hurts again – is this normal now?”

14. “Did I take my meds?!”

15. “Oh, yes I did, they tasted horrible.”

16. “Can I eat lunch yet?”



17. *Taking notes* “Did that really just take me five attempts to spell…?”

18. “Is this brain fog, or am I just becoming less smart?”

19. “Oh my god, what is that person’s name…”

20. “So proud of making a healthy lunch.”

21. “I want coffee…”

22. “It’s been an hour since lunch, why am I hungry again?!”

23. “Need coffee…”

24. “Knee joints are hurting. I need to stretch.”

25. “I deserve a snack.”

26. “Want crisps. Can’t have crisps.”

27. “Need to remember to bring snacks with me. Carrots. Protein balls.”

28. “Need to make protein balls…”

29. “My stomach has become a bottomless pit.”

30. “What shall I make for dinner?”

31. “Can it just be avocado on toast? I’m sleepy…”

32. “Need to drink more water.”

33. “Might actually fall asleep by 11:00…”

34. “Argh, nearly forgot my night meds.”

35. “Why do I feel awake now?”

We want to hear your story. Become a Mighty contributor here.

Thinkstock photo via g-stockstudio.

35 All-Too-Relatable Daily Thoughts of a Spoonie

Find this story helpful? Share it with someone you care about.

Related to Chronic Illness

two women talking on a park bench

When Chronic Pain Makes It Difficult to Talk to People

I’m generally an amiable person and I love a good conversation. Before I got sick a few years ago, I was definitely a chatterbox and could speak on almost any topic, ranging from literature to politics. I loved talking and I still do in the best of circumstances. Unfortunately, the “best of circumstances” don’t happen [...]
watercolor painting of a woman with white flowers in her hair

It's OK to Forgive Yourselves, My Fellow Chronic Illness Friends

Forgive yourself. Forgive the things you could not get to today, because the pain was too intense. Give yourself the grace you’d give a loved one who was struggling to move, exhaustion winning against the will to do more. Forgive the mess. Forgive the cancelled plans. You are only human. With a body that needs [...]
watercolor painting of woman in blue hat

The Challenges of Living With Memory Issues

This world is tough to navigate for someone with memory issues. When friends and family don’t understand what’s going on, it can cause relationship issues. Forget a child’s ballgame or recital? The child gets upset and thinks you didn’t care enough to go. The other parent may also get upset and think you’re being neglectful [...]
Teen girl tries to sleep.

My Phone Isn't Stealing My Sleep – My Chronic Condition Is

Everyone who has missed a night of sleep has probably been told that their phone is to blame, and some of the time that is the case. But for some people, sleep just never comes. If you’re anything like me, getting anything less than eight hours of sleep will make you incredibly irritable. So please, [...]