When Epilepsy Is Like a Roller Coaster Ride


Have you ever been on a roller coaster ride? If you have epilepsy, then your entire life can be a roller coaster ride. Epilepsy throws so many challenges that some days, I literally feel like I have been on a roller coaster. I experience all stages of a roller coaster ride throughout my battle with epilepsy, and sometimes all of these stages in one day. Why go to Cedar Point to ride a roller coaster when you have epilepsy?

The beginning of our ride starts when we have our first seizure. For the majority of us, it will unfortunately be the most harmful and memorable one. We never planned for this to happen, and we sure did not expect it to happen. For some, that day or night in the hospital is the most dreadful experience of their lives. Family members can try to cheer you up in any way they can, but your life has changed forever. All you want are answers from doctors who seem to take forever while you are laying in a hospital bed confused, scared, and not sure what will happen next!

Our uphill ride is all the doctor visits, medical tests and surgeries we may have to go through. This uphill ascent is similar to the uncertainty of how it feels when a roller coaster gets ready to drop. For some this may include experiencing full brain surgery. If that is not an uphill ride, I do not know what is! We engage in this process because we believe something out there can help our specific epilepsy needs. If we refuse to quit, in the end we can know we gave it our all and our best fight.

Our light at the end of the tunnel can appear when we receive the news that the doctors found a way to minimize our seizures. Most of us would give anything to reduce our seizures. Doctors work around the clock with all this new technology to develop new ways to cure people with epilepsy. Even if you do not think you will be cured or have your symptoms reduced, remember you have stayed on this roller coaster ride from the very beginning. You have not given up thus far, and neither have the doctors. The ride is far from over, and I believe it is important to always remain strong and positive!

We want to hear your story. Become a Mighty contributor here.

Thinkstock photo by Vitaly Edush.

 

JOIN THE CONVERSATION

Related to Epilepsy

Woman sitting alone looking out window.

Finding Meaning When You're Housebound With Epilepsy

A dear friend of mine whose daughter’s epilepsy first struck when she was 14 left me speechless. She told me that I, unknowingly, had saved her from hopelessness, simply by existing. I had meaning. She saw that I had a good life despite my condition and could envision a future for her daughter filled with [...]
Woman sits on the couch, look at the camera with a smile on her face.

Why We Should Remember to Treat Our Chronically Ill Bodies With Kindness

I was thinking yesterday, as I read through blogs of young women who had a chronic illness or watched their YouTube videos, of how much the body can both wreak havoc, yet always seek to get better. I read through women’s blogs on Lyme disease, chronic pain, and multiple other conditions. It made me realize [...]
cheerleaders in uniform holding pom-poms

What a Pro Cheerleader's Epilepsy Taught Me About Bravery

I will never forget when I found out that one of the professional cheerleaders I had worked with for years had an invisible illness none of us knew about. I was shocked at how truly invisible it was. With the increase in “entertainment” budgets for professional sports teams, more and more it is becoming standard practice [...]
doctor holding his patient's hand

We Need to Remember That Healthcare Is Personal, Not Just Political

Healthcare has been on my (and many people’s) mind a lot lately. I’ve been thinking (panicking) about how the upcoming changes to the Affordable Care Act would affect me and those around me. While considering this, I thought about what I could add to the conversation. There’s so much out there already: opinions, statistics, stories, editorials, predictions. [...]