What a 'Good Day' With Fibromyalgia Looks Like for Me


When you have a chronic illness like fibromyalgia, a “good day” doesn’t mean what you might think it means. A good day could mean you didn’t wake up in complete agony that morning. A good day could mean you managed to walk the kids to school, or sit in the morning traffic without pain. A good day might mean that you got out of bed at all.

What some people don’t understand about fibromyalgia is that one day you can be bounding across the office, striding with purpose to a meeting, and the next day, you could be curled up on the sofa, calling in sick or desperately downing coffee, trying to stay alert. Without proper treatment, the latter was more common for me. I couldn’t afford to call in sick, but there were plenty of days where I drank my body weight in coffee, snatched a 20-minute nap in my car at lunch, only to crawl into bed at 8:00 p.m. without eating or showering, too exhausted to care.

Since my diagnosis and subsequent treatment, my good days have become more frequent. A good day for me means doing 5000+ steps without thinking about it, attending a Pilates class, managing to make dinner and shower in the same evening. These seem like tiny, inconsequential goals, but they’re huge to me. Having a “good day” means I can focus on my career, have some kind of social life and enjoy the days, rather than simply dragging myself through them.

A good day for someone with a chronic illness is a day where they might forget, for a few hours, or even a few minutes, that they’re ill. A good day is a day where I can savor being alive, enjoy a short walk or go out for lunch with a friend. I’m so used to saying “I can’t” that when I decide to say, “Actually, yes, let’s do it!” it’s still a surprise.

But having good days doesn’t mean you’re cured. Part of fibromyalgia is having your symptoms flare up, bringing you down and casting a shadow over your life. A recent flare had me in horrible pain. My back seized up like it was locked in chains. “Fibro fog” can leave you dazed and confused, shuffling through the day like a zombie, forgetting to put dinner in the oven or just completely unable to function at work. I describe it as kind of like having the flu – your brain isn’t working, your body is aching and you’re completely exhausted. Now imagine having to deal with that half the time, and having to continue on with your life, because, let’s face it, life stops for no one. Even with fibro fog and in the middle of a painful flare, I still have to go to work, feed my cats, clean the house and do everything else that comes with daily life. I’m fortunate to have a partner who is fully supportive and does his share, but not everyone does, and, even with him, it can still be unbearable.

So, do the good days cancel out the bad? Absolutely not. The bad days, when they arrive, are really quite bad. But the good days make it all worth it, to me anyway. Having several good days between bad means I’m brighter, I feel happier, accomplished. It gives me something to focus on when I’m in the grip of a flare. It’s that sunshine behind the cloud – the cloud is there, and it’s center-stage, but it will pass.

We want to hear your story. Become a Mighty contributor here.

Thinkstock photo via alexandra_comaniciu.


Find this story helpful? Share it with someone you care about.


Related to Fibromyalgia

How Health Conditions Are Like the Chocolate Chips in a Cookie

I like to think of life as one big cookie barrel, and we are the cookies. I myself am a chocolate chip cookie. How do I know this? I’m so glad you asked! I have a fairly plain base – not too wild, but not too bland either. And my chocolate chips stand for my [...]
group of friends hugging

To the People I Don't Thank Enough, From a Girl With Fibromyalgia

There are a lot of people who are on my fibromyalgia journey with me. I definitely don’t thank them enough, but here is a try: My doctors. Especially my rheumatologist, the rheumatology PA and the pulmonary/sleep medicine doctor. Without you three, I probably would not be doing as well as I am today. How did [...]
woman with her face painted in multi-colored spots

The Difficulty of Asking for Help When You Become Ill

I used to be a very independent person. To the point it was detrimental to my health. As a child I was ridiculed for being upset, so in my eyes as an adult, crying or being upset equates to weakness. It invokes feelings of guilt and shame. So one can only imagine how difficult it [...]
A mixed media piece of art of a couple outdoors in nature.

Even If It's Not Chronic, I Want My Husband to Tell Me About His Pain

Sometimes my husband takes my breath away. It’s not the sweet nothings he whispers in my ear (although that will do it too). It’s not flowers or chocolates that he (hypothetically) brings me. It’s not even when he does things around the house to keep it running and gives me a rest. You thought I [...]