My Lyme Disease Does Not Define Me


Lyme does not define me.

It took me a long time to accept this. When I was first diagnosed, my life revolved around Lyme disease. I couldn’t stop reading about it and worrying about it. Every question, answer and action of mine involved Lyme. When I thought about myself, the first thing that came to mind was “Lyme.”

 

With Lyme disease, or any chronic illness, it’s easy to identify and associate with our illness. After all, it takes over our life and affects every aspect of it. It makes us forget who we were before we got sick, and who we are becoming. It’s easy to get lost in the pain, symptoms, shame, guilt, frustration and embarrassment.

But it’s important to ditch the labels and focus on who we are at the core. It’s OK if we identify with our illness, but we also need to expand our identity. We are so much more than our disease, our symptoms and our lab tests.

Maybe we need to identify with our positive qualities and passions instead of our illness.

What are your positive qualities? Maybe you are generous, friendly, playful, witty and intelligent. Identifying with these traits instead of our disease helps take us out of the self-imposed boxes in which we put ourselves and makes us unique. Sometimes this can change every day. And there’s nothing wrong with that. We are constantly changing.

What are your passions? If you weren’t sick, what would you be doing right now? Maybe you would be focused on raising your kids. Or creating art. Making jewelry. Playing sports. Singing. Dancing. Knitting. Starting a business. We all have talents and passions that go beyond our illness. Just because we can’t pursue our passions in the present moment does not make them any less important.

Keeping our hobbies active (if possible) can help remind us of our strengths and interests. Maybe there are days that you can’t get out of bed and can only think about your symptoms. And that’s OK. Maybe other days you can do something that brings you joy, even if it’s watching your favorite TV show from bed. Or reading a good book. Or writing. Writing down our thoughts, feelings, and goals can help us realize that we are more than our illness. Sometimes our best ideas come to us on the worst of days.

Maybe we can define ourselves by love, kindness and relationships. We can love ourselves fully, even the parts that are ravaged by Lyme. We can shower our illness with love instead of fear. We can be kind to ourselves by practicing self-care, making ourselves a priority and staying optimistic, even on the worst days. We can see our relationship to Lyme as temporary – a visitor passing by that is actually a blessing in disguise.

In this way, Lyme shapes our identity but does not define us. Let’s take back the power Lyme has over us. We may have Lyme, but it doesn’t have to have us.

We want to hear your story. Become a Mighty contributor here.

Thinkstock photo via moodboard.

TOPICS
JOIN THE CONVERSATION

Related to Lyme Disease

lonely man looking at fiery sunset sky with digital art style, illustration painting

Meeting the 'New You' After Illness Strips Away Your Old Identity

From a young age, society teaches us that we need to come up with a definition of who we are. We begin cultivating this identity from the minute we are born. Taking in suggestions from family, friends, and caretakers along the way. As a child, maybe you’re a soccer star or a star wars fan. [...]
weekly pill organizing

5 Photos I Didn't Share on Social Media of My Lyme Disease Treatment

Art is my world. It is equally tied with music. I love the two and cannot imagine life without them. Actually, I can, because for two years during treatment, music and even the light of the television was torture to me. I had extreme sound and light sensitivities and this made indulging in what I [...]
A young couple out to eat on a date.

When Your Chronic Illness Affects Your Date

It was Sunday morning. On Monday, I’d start my most restrictive, experimental diet yet in an attempt to heal my insides. On my last day of freedom, we made reservations at the Brazilian steak house, Fogo de Chão. We had been talking about it for months, ever since Ben found out I had never eaten [...]
The writer sitting, hooked up to an IV.

Why I Don't Want to 'Return' My Chronically Ill Body

Ironically, despite being chronically ill, I am eternally grateful for my body’s resilience. This point may seem counter-intuitive. Why would I be grateful for the body that is essentially not “serving its purpose,” that is “not keeping me healthy,” and causing me so much pain? I see it all over Instagram and Facebook where people [...]