Lyme Disease

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    Community Voices

    8 Treatment Hacks for People With Migraine and ME/CFS

    One of my worst symptoms having ME/Lyme disease has been horrific migraines; everything from aching in the temples and burning pain in the base of my skull to throbbing in the crown of my head that made me black out when I stood up. It’s been a long journey of experimenting with different treatments, which was made all the more challenging by the fact that migraines attributed to ME do not respond to normal migraine medication. I’m eager to share some ways I’ve found relief from migraines with CFS/ME, in the hope that it might help someone reading this. 1) Sleep/Rest. Sometimes simply sleeping it off is what is needed. 2) Meditation and Relaxation. If you are unable to fall asleep, meditation and visualization or any relaxation techniques that promote complete mental rest can work just as well, if not better. Research secondary suffering, where your pain is exacerbated by your emotional distress; calming this can release tension in your head. 3) Movement. It sometimes seems like my head is congested, and going for a slow walk or doing some gentle stretching that helps circulate the blood and lymph around the body can help a lot. Drinking lots of water and other detox methods may help too. 4) Epsom Salts. The magnesium in Epsom salts transcends the blood-brain barrier and has an immediate anesthetic effect that I find as good as any painkiller. A hot bath also stimulates circulation. 5) Acupressure Cushion and Mat I use Shakti Mat but Prana Mat is another good brand. These are useful tools in helping release tension from the head by stimulating certain acupressure points as well as circulation. 6) The Perrin Technique The Perrin Technique is a lymphatic drainage technique developed by Dr. Raymond Perrin. I’ve been doing this treatment with an osteopath and it’s been a game changer; my migraines are now much less frequent and severe. The treatment involves craniosacral therapy and self-massage. If you can’t afford or are not near a Perrin practitioner, you can still try the self-massage for free, just follow this YouTube video. 7) Bender Ball My osteopath suggested that I use a semi-deflated Pilates ball, which relieves the tension from your neck and lets your head float weightlessly. This also helps release tension and encourages blood flow. 8) Painkillers and/or Migraine Medications. Yes, there is a place for pharmaceuticals here, but I would always use them as a last resort after exhausting all other options. Good luck; hope this helps!

    Community Voices
    Mc17

    I'm new here!

    Hi, my name is Mc17. I'm here because
    I’m caring for my 22 year old son with chronic Lyme disease, for the past 11 years #MightyTogether

    3 people are talking about this
    Community Voices

    It might be the Lyme

    Going though this journey dealing with chronic Lyme disease for over ten years, (I lost count) and all the doors that’s been shut in my face people saying I’m crazy and the pain it was to see everything around me disappeare your finances, because of medical bills and friends and family cause they just didn’t understand the way I can put it my marriage and my home now that it’s been not taken care of not long after becoming Ill I’m journey been hard I seen some dark dark days but though it all and it wasn’t easy I want all to know I became isolated more or less and won’t go there but it’s ok that time I became closer with God and I had always said from the beginning if this is from God I can deal with it , we’ll I delt with it and with his loving mercy he kept allowing me to see the better things I have ahead of me and gave me the strength to make it one more day I’m grateful for this time with God , he showed me the things I didn’t want to see and the things He wanted me to see , I’m still recovering but I’ll praise him in the storm. Thank you for allowing me to share God bless

    1 person is talking about this
    Community Voices

    I have been trying to connect and don’t know what I’m doing wrong or it maybe my phone messing up

    2 people are talking about this
    Community Voices

    I'm new here!

    Hi, my name is Lotus713. I'm here because I suffer from CIRS and Lyme Disease. I have thyroid, autonomic and auto-immune problems. I also suffer from dementia and parkinson's symptoms on and off daily and have lesions in my brain according to the Neuro Quant MRI I had done, along with loss of dopamine production.Everyday I feel more and more alone and depressed as my loved ones leave me.

    #MightyTogether #ChronicLymeDisease

    3 people are talking about this
    Community Voices

    I’m new here!

    Hi, my name is COgirl. I'm here because my daughter was diagnosed with Lyme disease, bringing along with it a slew of psychiatric and neurologic issues that rob her of an normal life. Last hope was IVIG therapy for the small fiber peripheral neuropathy pain. Found out insurance denied us for the third time. Feeling hopeless

    #MightyTogether

    2 people are talking about this
    Community Voices

    I'm new here!

    Hi, my name is TattooPrincess94. I'm here because I'm suffering from the effects of having Lyme Disease for too long untreated. I am at the point where I am 28 years old, and I can't do normal activities without having to slow down or everything feels like a chore. I can't work and I rarely leave my house. I've been trying to get on disability but it's like pulling teeth. I still live with my parents and dating feels like an added pain. Mostly all of the doctors I've gone to, pretty much think it's all in my head and no one can help me. The kicker is all my test results come back negative. I'm tired of people thinking I'm crazy or just lazy.
    #MightyTogether

    3 people are talking about this
    Community Voices
    Bri

    So much pain

    I’m in a horrible interstitial cystitis (some call it painful bladder syndrome) flare up right now. Day 3 of this horrible horrible pain. My bladder is burning. It hurts to pee. It hurts to not pee. I can feel my bladder and pelvic floor spasming. It’s giving me a stomach ache and a headache. I’m afraid to eat or drink anything besides baking soda water. I’ve been taking azo as often as allowed. All I did was take 3 single sips of a drink my friend for a few days ago and I guess that was enough to do this. I haven’t had a flare up in years. I was supposed to enjoy the 4 days I had off with my boyfriend doing all the fun activities we planned and yet all I did was sleep the days away out of pain! No one understands how mad this makes me, how unfair this is! I finally get to go out with my girlfriends and this is what happens to me. This is why I never want to do anything fun. It’s never worth it in the end. Monday Tuesday and Wednesday spent in severe pain, spent sleeping. I have one day off before I go back to work for two nights. How am I going to survive work when I can’t even handle staying awake at home? I’ve maxed out on call outs this year so I’m screwed. I’m so sick of being sick. When does this end? 😭 #InterstitialCystitis #ChronicPain #Depression #alone #LymeDisease

    8 people are talking about this