To the World on My Son's 3rd Birthday: Down Syndrome Shines


Three years ago, Ronin was born into this world.

He came out absolutely perfect.

He came out screaming and crying, making his arrival known, only to calm when he found my cheek and he laid his against mine. He was here and he was safe.

We were thrown off course when that doctor said, “I think he might have Down syndrome.” The next days unfolded into a whirlwind of sadness, denial, hope and love all swirled together.

 

Down syndrome… I remember crying, feeling like my heart couldn’t decide if it wanted to sink or swim. I felt pain and love. The pain coming from the world, and how I envisioned my son being the target of hatred, being  treated as less and being talked about as of he didn’t or shouldn’t exist. The pain was not really from his diagnosis — a diagnosis many people do not take the time to learn accurate information about, but one that I have found beauty in every day.

In my son’s 3 short years,  the world’s grip on my fear and sadness is losing its hold. I know this world will never be a perfect, accepting, loving place, so I can’t make the effort to care about it anymore. Instead, we will make our world; that caring and loving place that today’s world has forgotten how to be.

When you stare  and get a glimpse of our life, you will see a joy many people seem to have forgotten; a love that’s a chromosome in length more; life lessons delivered through a little boy who is here to remind me that good will always win and always shine the brightest.

Happy 3rd birthday, my little star. You were born to shine just a little brighter than the rest.

We want to hear your story. Become a Mighty contributor here.

TOPICS
,
JOIN THE CONVERSATION

Related to Down Syndrome

28 Awesome Tattoos of Parents of Kids With Down Syndrome

I have wanted to get a tattoo in honor of my daughter who has Down syndrome for several years. I like the Down syndrome butterfly, which has become a “symbol” of Down syndrome awareness in recent years. To me, it symbolizes the beauty of people with Down syndrome with the yellow and blue awareness colors. I figure [...]

21 Days In After the Birth of My Daughter With Down Syndrome

Why have I put off writing this? “I am pretty busy,” I tell myself as I scroll through Facebook yet another time. “I am trying to nap while she naps,” I repeat as I busy myself with washing the toilets…yet again. Perhaps I have set this aside because in my mind, at 21 days out [...]
Casting Director Sasha Alpert holding her Emmy

'Born This Way' Continues to Break Glass Ceiling

Lauren Appelbaum is the communications director of RespectAbility, a nonprofit organization fighting stigmas and advancing opportunities for people with disabilities. “Born This Way” takes home two more Emmy’s, one for Cinematography and the first-ever Emmy for Casting. A&E Network’s critically acclaimed and award-winning original docuseries, “Born This Way” keeps adding up honors, showing there is [...]

Confessions of Parents of Kids With Down Syndrome: This Is Life

When my youngest daughter was born with Down syndrome, all I knew were stereotypes. I wrongly assumed our life, and my daughter’s life, would be defined by limitations. I was wrong. What defines our life is love. I won’t say parenting a child with Down syndrome is easy because parenting is not easy, and parenting [...]