The Moment I Realized My Gastroparesis Was Here to Stay


A couple months ago I added gastroparesis to my list of diagnoses which already included Ehlers-Danlos syndrome and POTS.

By the time I sat across from my doctor as he told me I had gastroparesis I had spent a long two months wondering what was wrong with me. This illness came on suddenly. It seemed like almost overnight I couldn’t keep hardly anything down. I quickly became underweight as we did test after test trying to find the cause of my problems.

When my doctor ordered the gastric emptying studies I knew what he was looking for and remember thinking, “Please let it be anything but that.”

When the GES came back showing I had gastroparesis I was devastated, but at the same time relieved that at least now we had treatment options.

I changed the way I ate and started following the GP diet as I figured out what foods I could or could not tolerate. I knew in the back of my head that there was no cure for this illness, but it didn’t completely register until I was having dinner with my brother one night.

It was the first time I’d eaten with him since being diagnosed, so I was explaining what gastroparesis was and some of the things I could no longer eat (raw fruits and veggies, nuts, seeds, popcorn, pork, beef…).

He looked at me and asked the question, “When will you be able to eat those things again?” As I spoke the word “never” it hit me that my GP was here to stay. There might be times when I’m doing better than others, but there is no cure for this illness.

Since that night I’ve grown more used to life with gastroparesis. There was a steeper learning curve for this illness than what I remember with my others and I still don’t have everything quite down pat, especially when it comes to how my illnesses play into each other, but if there’s one thing I have, it’s time to figure it all out.

We want to hear your story. Become a Mighty contributor here.

Getty Image by kaipong


Find this story helpful? Share it with someone you care about.



Related to Gastroparesis

watercolor painting of a woman with red hair wearing headphones

3 Ways I Cope With Anxiety Due to the Unpredictability of My Illness

Today marked the third week of this new semester at my university. I’ve always loved school, but this semester I was anxious about. Last semester I added gastroparesis to my list of chronic illnesses. Due to how sick I became I did not end up doing well last semester. The uncertainty of not knowing what [...]
watercolor illustration of a woman with short dark wavy hair

My Body Is a Wonderland: Learning to Advocate for Myself While Battling Chronic Illness

When I was diagnosed with gastroparesis, my gastroenterologist told me I may never get better and recommended that I take a medication to help my stomach function. The first recommendation was an antibiotic with every meal. I didn’t want to do this, so she then recommended taking metoclopramide, a medication that hospitalized my maternal grandmother [...]
Two young people on a date, the woman looking at the man unsure.

4 Types of People You'll Meet When You Date While Chronically Ill

There are never ending questions you ask yourself while dating with a chronic illness. I’ve found myself Googling, “When do I tell the person I’m dating I’m sick?” I’ve also been asking myself questions such as: “When do I disclose these things?” “Will they cope?” “What if I get hurt?” Love is hard, regardless of [...]
woman sitting on the window ledge next to a christmas tree

Why I Won't Be Setting Health Expectations on New Year's Eve

It’s that time of year again. The time of year when we are constantly bombarded with the phrase “New Year, New You.” It’s a classic saying, but one with very little merit. We all deep down know there’s not huge leap between December and January. Things don’t suddenly change or improve, but there’s this great [...]