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Chronic Illness friends? #ChronicIllness #MyalgicEncephalomyelitis #Gastroparesis #Undiagnosed

Hey everybody! So I have a lovely support system: a loving partner, incredible friends, and a mom who supports the hell out of me. But I’m running into this isolating loneliness because none of them are chronically ill. None of them truly understand how or what I’m feeling and it’s lonely. I am so so grateful for the humans who love me so well; that being said, my therapist says it’s a good idea to find people who do “get it”. So if anyone is looking for more support people, I’m here and would love to be your friend!

4 reactions 2 comments

Song suggestions? #ChronicIllness #MyalgicEncephalomyelitis #Gastroparesis #Undiagnosed

I’m a musician, so music is such a big coping tool for me! Unfortunately, my health is making it really hard to make music right now, so I’m trying to find good music to listen to instead.

If anyone has any suggestions for songs that feel related to chronic illness, healing, coping, etc, please let me know! I’m mostly looking for soft, acoustic/indie music, but I’m open to exploring new genres as well!

I also have a bunch of songs that have really helped me, so let me know if y’all want some new song recommendations too!

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Feeding tube

My GI told me I'm losing too much weight and wants to put me on feeding tubes. I'm terrified and so down about it. Feels like I won't ever be able to be normal again. Can anyone with feeding tubes relate? And how were you able to get over all the different intense emotions? #Gastroparesis #InflammatoryBowelDiseaseIBD #AnorexiaNervosa

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GI issues causing eating disorder flare up

Don't know what to do. My GI issues are really bad right now causing me to not be able to eat much, which is triggering my eating disorder (restricting). Anyone ever had that? What's there to do? #EatingDisorders #EatingDisorder #Gastroparesis #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS

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Gastroparesis flare up

I was starving so I ate some soft solid food. Now I'm in horrible pain. This is torture! I just want to eat again! 😭 #Gastroparesis


I'm new here!

Hi, my name is mimsmurfette. I'm here because I need to find a community of people who suffer in the same way as me and will provide the understanding and support that I don't get from my family

#Migraine #Gastroparesis #Depression #Anxiety

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I'm new here!

Hi, my name is angie_shea. I'm here because I live with several chronic illnesses, lupus (SLE) being the main one. I write poetry to help deal with the complexity and emotions of life with chronic illness and trauma and I want to further that writing and connection with others.
Angie 💜

#MightyTogether #Migraine #Fibromyalgia #PTSD #Lupus #Dysautonomia #Anxiety #ADHD #Gastroparesis

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I’m not being dramatic and I’m exhausted by the accusation #ChronicIllness #Gastroparesis #MyalgicEncephalomyelitis #Undiagnosed

I am chronically ill, and that means that things go haywire, regularly. The tricky thing is determining if a new or worse symptom is just a part of my new reality, or if it’s a sign that something’s really wrong. I’ve been noticing a pattern with my support people: when I bring up anxiety over new or worsening symptoms, they tell me it’s probably nothing. They seem confused as to why I would be worried and seem to look at me like I’m making a big deal out of small things. I understand the urge, especially when you aren’t feeling the symptoms every day, but it’s really hurtful and invalidating. I get it enough from doctors, I don’t need it from my people too. One example: the other day I was researching a medication, and a page popped up about a diagnosis I’d never heard of before. I clicked on the page out of curiosity, and was met with a rare blood cancer…and I had every. Single. Symptom. On the list. I didn’t jump to “wow this is what I have!!”, but I did wanna rule it out cause it’s so extreme. I spent a few hours looking at my blood work results to make sure they didn’t indicate that diagnosis. They didn’t - yay!! But I told my partner about it, and they nearly laughed and told me “of course you don’t have cancer”. It hurts that even my person doesn’t seem to understand that I feel so ill that cancer isn’t out of the question. It feels minimizing that my illness couldn’t possibly be something “serious” like cancer, that I’m being so paranoid and dramatic. I understand everyone wants to believe I’m fine, but I just wish that when I get (validly) freaked out about a new symptom (bc I constantly consider going to the ER as it is), someone would validate that fear. I want someone to be there with me, be as concerned as I am, look for solutions; not minimize the problem as “you’re probably just focusing on it too much”. I feel so alone and it feels sometimes like I’m the only sane one. Like if people actually understood how I feel, they would be very concerned and worried. I’m tired of being told that I’m dramatic for having the audacity to want to be ok.

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Food, Just Imagine….

Imagine having the flu 24 hours a day 7 days a week.....

Imagine never feeling hungry or a salivating mouth or appetite......

Imagine you have just eaten a 3 course meal and you feel so full all the time that you have to vomit to realease some pressure.......

Imagine having intolerable pain in your stomach like someone has repetitively punched you in the stomach and it feels bruised.....

Imagine living off a diet of soup, meal replacement drinks and water, because anything solid will make you feel like you have eaten razor blades....

Imagine being a lab rat and the Drs test drugs in you, just in the slight hope it will relieve your intense pain, but it only makes your symptoms worse….

Imagine telling everyone that you are really sick and no one believes you or tells you it's all in your head….

Imagine being told you are depressed or suffering from anxiety, you are accused of having an eating disorder as the weight falls off your body and reveals the bare bones of you, or even the complete opposite and you mysteriously to some gain weight but what they don’t realize is it comes from the food collecting in your stomach for weeks…..

Imagine being told you have an illness that they can't fix or cure and you might feel like this forever..............

#Gastroparesis #ChronicIllness #ChronicPain #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS #GastroesophagealRefluxDisease #Pain #ChronicFatigue #Depression #Anxiety #MentalHealth #ParkinsonsDisease #Fibromyalgia #Endometriosis #MultipleHealthChallenges

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I have diabetic Gastroparesis! It’s awful ! Does anyone have constant stomach tightness even with zero food? It’s so bad it reaches to the sides of my back! Does anyone have the tightness to the back as well? Nooo relief!

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