To the Mom of a Complex Child Struggling to Keep It Together


I know this road is tough, mama. It’s exhausting. I know there are so many things going on all at once and you’re just one person trying to take care of it all while trying to maintain your mental health as well.

I won’t tell you “this too shall pass” or “it will get better eventually” because honestly, I know it can feel like it never will.

I’m here to tell you that you are not alone. We’re in this together. Talking to other parents going through the same things I am is almost always the only thing keeping me from breaking down. But sometimes breakdowns happen and that’s OK.

We’re only human. It’s only natural to “lose it” sometimes.

You may not know it, but you’re doing an amazing job. You get your child to all the appointments and therapies. You listen to all the newest information about your child’s condition the doctors throw at you you all at once and still manage to continue caring for your family, even if it feels like you aren’t.

I know you go to bed each night and wake up each morning with your child on your mind. I know the nonstop worry that comes with parenting a medically complex child. I also know you are a good mother. A great mother.

I want you to know that you can do this. No matter how hard it gets, no matter what life throws at you, you can do it, because you love your child and that love is what gives you the strength to keep going.

I also want you to know that it’s OK to take time for yourself when possible. Don’t feel guilty for wanting a break. You deserve it. So keep going, mama, you’ve got this.

Image Credits: Randi Wright

Find this story helpful? Share it with someone you care about.


Related to Disability

Logan Blythe with local Scout leaders accepting his project for Eagle Scout

Boy Scouts Demote Boy Scout With Down Syndrome Who Wanted to be an Eagle Scout

Logan Blythe, 15, has been a Boy Scout with the Utah National Parks Council, a local Boy Scouts of America affiliate, for the last six years. Blythe, who has Down syndrome and autism, became a Cub Scout when he was 8, and joined the Boy Scouts program when he was 11. Blythe earned 22 alternative merit [...]

Google Adds Wheelchair Accessible Transportation Routes in Six Cities

On Thursday, Google Maps announced a new feature that will help people who use mobility devices find accessible ways to travel. With this update, users in Boston, London, Mexico City, New York, Sydney, and Tokyo can access wheelchair accessible routes through Google Maps. Ryo Akasaka, a product manager at Google, told The Mighty that in [...]
ADAPT members protesting outside FDA Commissioner's residence

ADAPT Protests Lack of Action From FDA Commissioner Scott Gottlieb on Shock Behavioral 'Treatment'

On Friday in Washington D.C., about 50 members of the disability rights group ADAPT set up outside the residence of Dr. Scott Gottlieb, commissioner for the Food and Drug Administration. The group is protesting the use of shock devices as “treatment” for people with disabilities at the Judge Rotenberg Educational Center (JRC) in Canton, Massachusetts. [...]
Image of a classroom. On the whiteboard it reads "How to create an emergency preparedness plan for your child with disabilities."

How to Create an Emergency Preparedness Plan for Your Child With Disabilities

Schools use drills and safety protocols to keep students safe at school, but, as The Mighty found, a majority of students with disabilities feel these guidelines don’t do enough to protect them. Few federal recommendations exist to keep students with disabilities safe from active shooters, but there are ways to prepare students for these worst-case [...]