21 Photos That Show What It's Like to Be Young and Chronically Ill


Chronic illness doesn’t care how old you are. It can strike at any age and can be just as severe at 25 as 85. And yet, so many people (including some doctors!) seem to not understand that it’s still possible for you to be young and live with a chronic illness. Even if you don’t “look sick,” you could still be taking several medications, enduring frequent doctors’ visits and hospitalizations and be in a lot of pain.

We wanted to raise awareness of how many people out there are actually young and chronically ill and reveal what it’s like to live a “young and chronically ill” life. We asked anyone in our Mighty community who’s been told they’re “too young to be chronically ill” to share a photo that represents their life. It’s time for people to understand that age and appearance don’t mean you can’t be affected by illness.

Here’s what our community shared with us:

1. “Here I am, taking a nap during my wedding reception at age 28 because I had a migraine. People say that age is just a number when it comes to romance… Why can’t they feel the same when it comes to young people with chronic illness?” — Ami C.

woman sleeping on couch

2.My blood pressure got too low and I had to stop and sit in the middle of the store. I had my service dog apply deep pressure therapy to help with the blood that had begun to pool in my legs.” — Shelby K.

woman sitting on floor of store with service dog

3. “When I was diagnosed with juvenile dermatomyositis I experienced muscle aches, fatigue and of course moon face (from the prednisone). When I would complain from how the stress affected my flare-ups or the functionality of my body that day, people would make comments that I’m too young to feel that type of pain. Also how I’m at an age where I should still feel youthful even with this type of diagnosis. I didn’t feel youthful, I didn’t feel that energy and because of my diagnosis I will never feel 100 percent again.” — Gretchen Q.

two photos of young woman

4. “Constant struggle with fatigue, pain and much more. I hear that comment all the time along with disapproving looks from older people. Like they don’t believe me.” — Sindy L.

black and white photo of woman's face closing eyes

5. “Even though I am extremely fortunate to be living an active and ‘healthy’ life, it can be easy for people to forget that a congenital heart defect (CHD) requires lifelong, specialized care. To look at me, it’s not obvious that I’ve had two open heart surgeries, four cardiac catheterizations, and countless other tests and procedures along the way. Each year, my annual checkup with my adult congenital heart disease cardiologist is like a journey into the unknown, as complications or new issues with CHD can arise even when a patient is feeling asymptomatic.” — Ken W.

man riding bike on path

6.It means a lot of times my young children have to be involved with a lot of my appointments, ER trips and bad days. While it makes me feel guilty at times, it’s also comforting to see how loving and understanding they are (sometimes more so than the people who say I’m ‘too young to be chronically ill!’).” — Bonnie P.

woman sitting on hospital bed with two young kids on chairs next to her

7. “This was one of the last years I was able to play softball before my medical issues took it away. I was in a boot when I didn’t play and my body gave out often. As soon as the game ended, my teammate would carry me on her back.” — Sarah B.

women being carried by her teammate on sports field

8. “Diagnosed with multiple sclerosis at 17. I am 31 now. It’s tough, but I am so grateful to The Mighty for raising awareness!” — Aaron V.

man in infusion chair giving thumbs up

9. “Chronic fatigue. #lupussux.” — Saira H.

woman's face lying in bed

10. “Trying to put on makeup and function despite not feeling well and recovering from having my head and neck fused. I have Ehlers-Danlos syndrome and Chiari malformation. I am told regularly that I’m too young for this joint pain.” — Megan M.

woman wearing neck brace

11.The first time I ever had a trigeminal neuralgia attack, I was at the Detroit Zoo, age 3.” — Miranda K.

collage of photos of little girl

12. “Being chronically ill means that you have a bag packed with everything you’d need to make a nice stay out of your hospitalization: toiletries, cute PJs, journals and fun colored pens, books to read, puzzle books, iPod and headphones, yummy smelling lotion, favorite piece of jewelry to keep you feeling fabulous and makeup because we all know we feel better when we don’t feel like a troll. It’s how I hospital!” — Gwendolyn C.

woman selfie in hospital bed

13.My attempt at getting outside air. I have Crohn’s disease, fibromyalgia and I take an immunosuppresant. My immune system is compromised, so I’ve been stuck inside dealing with vertigo from a sinus infection. I’ve had up to four sinus infections a year due to being immune compromised.” — Elizabeth J.

view of backyard pool from inside

14.Fibromyalgia and chronic pain means quality time with family almost always occurs on a comfortable couch.” — Flores A.

woman lying on couch with baby

15. “I am 31 and every time I see a new doctor I am told I am too young to have this many issues. It is beyond frustrating. Here is me waking up from my annual endoscopy which I have to get because my immune system attacks my stomach lining.” — Kayleigh B.

woman lying in hospital bed

16. “I was 24 in this picture. I’ve never been someone to nap, but sometimes you just can’t make it 10 hours into the day.” — Casey M.

woman sleeping on couch next to dog

17.I’ve had ankylosing spondylitis since I was 17, Crohn’s since I was 22, and neither respond to any medications currently available or I am severely allergic to them. I had to leave work and apply for disability at 27 (still waiting!), and I had a colectomy and ileostomy done this past December; I turned 30 in January. I now point out that the average age of onset for AS is in fact 17, and Crohn’s often presents in the teens and 20s, but either illness and many more can happen to literally anyone at any time. I also point out the CDC estimates approximately one-fourth of Americans have or will have a disability by their 30s, sooo… shove it.” — Samantha A.

woman showing stoma bag

18. “I’m always accompanied by my service dog, from the mundane grocery shopping to doctors and hospital visits to big trips she comes with to keep me safe and healthy. I’m young, I don’t look sick, but I rely on her daily.” — Bay H.

collage of photos of woman in different travel destinations with service dog

19. “I have my Apple Watch set up to notify me if my heart rate gets above 120 while not doing anything. This is just moving around, working on homework in my bed. Gotta love postural orthostatic tachycardia syndrome (POTS).” — Carlow D.

heart rate tracking app screenshot

20. “Having to use an electric cart in stores at 21. No, I’m not a kid using it for the fun of it. Yes, I can stand to get things off shelves if I have to.” — Bernadette J.

sitting on electric grocery store cart

21. “‘Sorry puppy, not enough energy to take you for a walk again today. Maybe tomorrow.'” — Dion M.

man lying on couch next to dog


Find this story helpful? Share it with someone you care about.


Related to Chronic Illness

blue and white striped socks and paisley slippers

The 17 Coziest Socks and Slippers for People With Chronic Illness

There’s nothing like sliding your feet into a cozy pair of socks or slippers when you’re dealing with chronic illness and pain. Something about a good pair of socks just makes you feel comforted and warm. If nothing else, a fun pattern can bring a smile to your face if you’re stuck at home or [...]
screenshots from the be focused app, out of milk app, and headspace app

10 Apps That Can Help You Be Productive, Even When Brain Fog Takes Over

If you struggle with brain fog due to chronic illness or medication, keeping up with all your day-to-day responsibilities can be a challenge. On top of any physical symptoms you may be experiencing, such as pain and fatigue, the cognitive effects of brain fog may cause you to forget dates or activities, have difficulty focusing or spend [...]
"your wait time is 5 minutes." me, 40 minutes later, still on hold... woman holding a pan and looking angry

15 Memes That Nail What It's Like to Deal With Health Insurance

Navigating the waters of health insurance can sometimes be a pain. Whether you’ve spent hours on hold after calling in with one small question, had a necessary medication or treatment denied for coverage or have to pay a ridiculous amount for copays or prescriptions even with coverage, most of us have had at least one [...]
essential oil diffuser necklace, gin gins chewy candy, and gel ice packs

14 Products That Help People Manage Nausea

Nausea can arise for any number of reasons. It can be a symptom of your illness or a side effect of your medication or maybe nausea and vomiting is how your body reacts to elevated levels of stress and anxiety. Whatever the reason, nausea can be a frustrating and uncomfortable symptom to deal with, especially [...]