What It's Like Being a Mom With Epilepsy and Anxiety


I’ve found having epilepsy in today’s world is not the easiest disorder to help people understand. Adding anxiety to epilepsy makes it almost impossible. Almost!

When I try to get people to understand, whether it’s friends, family or just acquaintances, I always love to start with saying, “Of course having epilepsy and anxiety makes me different!” So they know from the beginning that I already know I’m not like anyone else. Of course no one person is exactly like the next person. Yet epilepsy and anxiety make me extra special. I don’t have an intellectual disability; I can talk, write and do anything else others can. I’m not physically disabled either. I can run, walk and play with my children just like the next mom. I love spending time with my children like any mom — some moms just have a easier time getting around, regardless of whether they have a disability or not.

Yes, having epilepsy has made me do things a little differently than most people. For instance, if my daughter wanted to run (literally) and get food, drink, clothes etc. I would have to let her know she needs to wait for me. I can’t just get up and start running around. I have to pace myself. Luckily my wonderful children understand and love helping me spread my message. Just because someone has a disability or disorder, do not judge them.

Getty photo by Monkey Business Images.


Find this story helpful? Share it with someone you care about.


Related to Epilepsy

Essence and her partner.

Fighting Insecurity When Your Health Changes Your Appearance

I read a quote the other day that said, “Don’t let insecurity ruin the beauty you were born with.” Now I do not know who said that, but it raised the question of what to do with insecurity when your health “ruins” the beauty you were born with. With conditions like mine, things our body [...]
Male and female couple holding hands in a field.

When I Almost Gave Up on Love Because of My Epilepsy

My epilepsy has taken a big part of my life away. Especially in the love department. Almost all my relationships have ended due to my epilepsy being a “problem.” When I was almost ready to give up on love, the most wonderful man came into my life. He didn’t care about what my diagnosis was, [...]
Ambulance in traffic.

When Someone I Barely Knew Helped Me During a Seizure

Eleven years later, and it’s still in her mind like it happened yesterday. Every detail is vivid. The moment when my friend said, “I think something is wrong with Casey,” to the moment where she was on her knees with my head in her lap. Holding my hand, not knowing what to do. I didn’t [...]

The 'Double-Whammy' of Having Epilepsy Plus Other Health Conditions

How do you feel when you have epilepsy and [fill in the blank]? We often hear about “co-morbidities” (does anyone else hate that word?) with psychiatric disorders, cognitive disorders, migraines, and sleep disorders, but of course there are others. Nonetheless, we with epilepsy may live with entirely unrelated conditions that affect our quality of lives and fear [...]