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Finding the Light When Parenting a Medically Complex Child


Sometimes it feels like we are on a dark path. We move from one medical crisis to another. Each day we watch our daughter’s diagnosis get a little more complex. As her parents, we’d do anything to make life easier for her. In our heavy moments it just doesn’t seem fair.

It’s easy to become weary on the road we travel as a family with medically complex childrenAt times it feels like the world is rushing right on past. We wonder how long our child will have to struggle before relief comes again.

The darkness doesn’t last for long though, because she always looks for the light. As soon as symptoms subside for a moment, she flashes us her signature smile and sheds perspective as we try to find our way. She reminds us that joy can be found in the simplest of things.

She shows us that nothing, not even the longest list of diagnoses, can darken the love we share. Without a word, she has shown us the very meaning of life and how to love. So we will follow her lead and keep looking for the light that is sure to brighten our path.