My rare is #Acromegaly I'm doing my best to advocate for my own health. This illness is fairly new to me. It's difficult when doctors take the same approach with each patient. If you have only seen 12 ppl in 12 years with Acromegaly how do you truly know what works for every patient. I'm learning to speak up more in appointments and ask thought provoking questions. If you really think about it the doctor works for and with you. You pay the doctor for a service. You wouldn't keep going to a restaurant if they were rude, didn't know much about the menu, and blew you off when you ask questions. Would you? I encourage you to do your best to research your condition and find the best team that cares about you. Be mighty in your approach.