Allan-Herndon-Dudley Syndrome

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Allan-Herndon-Dudley Syndrome

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Anyone else still isolating due to protecting yourself or a disabled loved one from Covid? Feel like everyone else is speaking in pandemic past tense

I feel like the world has moved on. People are playing kids sports and dining out, we’re still at home because I was told my son would die if he got Covid. I’ve lost my job , family members think I’m crazy, I feel like we’re the only ones taking it seriously.
#Disability #AllanHerndonDudleySyndrome #COVID19

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Brother and sister playing together, siblings play home on chess

Brother and sister playing together, siblings play home on chess

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Allan-Herndon-Dudley Syndrome

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When Kids Ask What's 'Wrong' With My Son Who Has Allan-Herndon-Dudley Syndrome

Sometimes children come and ask me what is “wrong” with my son. How come he is not running and playing with the other kids? I thought long and hard of what the answer to that question should be. Children understand things that sometimes even adults struggle with. But what I have noticed is children feel [...]