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    Community Voices

    How I hate being poor

    As an older adult whose career was mommy and all that entailed, I looked forward to spoiling grandkids and traveling. But since the divorce 10 years ago at year 36 of my stay married until death almost was, its been a struggle. Finding work, finding money, etc has been one long nightmare. I have fibro and c-ptsd plus depression and anxiety. I lost my emotional support cat 2 years ago and miss him like fire. I have his sister, his little buddy and 3 more adoptees, but none has that love he had for me. So I when covid hit and then he died, I was just too depressed to even function. I ran out of money and now am facing huge debt problems. I have tried selling things and have sold just enough that with begging for help from local charities I can just pay my house payment and car. Relying on food banks is horrible as you get almost zero fresh anything, almost nothing healthy and just a few things to even make a meal. So beans and rice, but no spices. Canned spaghetti sauce and dry spaghetti but no parm..if you're lucky, they have eggs. Even luckier if they have milk and rarer yet, butter to make the box of mac n cheese. If you get cheese, its American processed cheese food or imitation cheese food full of chemicals. I feel like going to a grocery store to get lettuce or onions, garlic fresh produce is being spoiled. Like no one understands how hard it is to find part time work as a senior. ..how hard it is to afford my meds...or food and litter for my cats. I stocked up some a few months ago when I had some "extra" money from selling stuff. When my brother had to declare bankruptcy my dad was alive and they did everything they could to help him. Now its just my mom, who never loved me ( I am 8 years older than my brother) she has resources, but won't do anything to help. She treats me still like its my fault. So, I resent her and wish i didn't.

    4 people are talking about this
    Community Voices

    Therapy

    So I have video visits with my therapist. I started “seeing” him while covid was hanging around. I chose to continue the video visits instead of in office. I’m good with this.
    First let me say I believe therapy is helpful.
    Second, this therapist was referred to me by my pain management not someone I had chosen. My previous therapist “fired” me. I usually choose women over men because fair or not no matter the education I feel maybe women get women more than the male therapist can.
    So to get to the point of this post…. I had a visit this last Friday. I was talking to him and the man fell asleep. That’s right dozing, eyes closing and slowly opening.
    Wow! I finally just stopped talking to see how long it would take him to snap out of it. It didn’t take long. Still I k no ow I’m not the most “exciting” patient, my issues may be less to some but they are things I need to work through. When ending our session I told him “maybe your next patient will be more exciting and interest ing for you. I swear the comment went over his head. Would you continue with him and give another chance?? #sevendwarfsigotsleepy

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    Community Voices

    I’m Tired of Explaining Why I’m Still Taking COVID Precautions

    It’s been a minute! I self-published a story on Medium that I wanted to share! I know there are some people who can relate, so I hope it finds you well. I didn’t submit it to The Mighty as it’s quite extensive and I’m not sure how well it actually fits here. I wanted it to have a life over here in some way, so here it is:

    medium.com/@mtaylor1005/im-tired-of-explaining-why-i-m-still...

    #COVID19 #MentalHealth

    Community Voices

    Friends, I am thankful to be here now, with all of you, and your presence is a blessing in my life as the leaves change and the nights get cool. Enjoy

    <p>Friends, I am thankful to be here now, with all of you, and your presence is a blessing in my life as the leaves change and the nights get cool. Enjoy</p>
    7 people are talking about this
    Community Voices

    I’m new here!

    Hi, my name is Louidenise. I'm here because I've got to a point where I have isolated myself from everyone and can't get physical healthcare because they don't understand me, label me 'dificult' and impossible to treat because the physical health people misunderstand a lot of stuff about me (for example I have a bad relationship with the Phyc liaison team based at the physical health hospital, said to the hospital I don't want any contact with Phyc liaison, the pain clinic has assumed this means he cannot contact my phychologist/team - so won't allow me pain clinic referral) - ps I fell out with phyc liaison as they deemed 80x Paracetamol overdose 'not suicidal intent' and was quoted on the discharge letter from the admission. Anyway just feeling I've got to the end of worst case scenario, especially having battled horrific Covid for just over a month now. 48 year old female

    #MightyTogether #BorderlinePersonalityDisorder #Anxiety #Depression

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    Community Voices

    Does anyone else get really emotional when they're unwell?

    I know that a lot of us feel unwell most of the time. That probably wasn't a very well phrased title. But what I mean is... Do you get easily upset when you have a cold/flu/infection?

    As an example, back in May I picked up a very nasty stomach bug (that my baby nephew ever-so-lovingly decided to share)... And for the entire day, I just kept breaking down into tears. For pretty much no reason. I don't know if it was frustration or if I'd just had enough... But I've noticed it happens every time I'm unwell.

    I've had a cold for about a week now (several COVID tests have come back negative, despite me being certain this isn't an ordinary cold), and I just keep breaking down at the drop of a hat. My sister brought me a slice of my favourite cake from my favourite bakery and I burst into tears. The level of emotion is crazy. I don't like crying even when I'm feeling okay, so when I suddenly start sobbing, I get angry at myself and then usually end up crying more... I keep wondering if it's simply exhaustion? I'm immuno-compromised, so what other people would call a mild illness, is usually something that knocks me off my feet.

    I'd just like to know if there's anyone else out there that's like this? And if you know of a way I could maybe minimise the tears? I feel so silly.

    #chronicillnesswarrior #ChronicPain #POTS #EDS #NAFLD #LiverDisease #Diabetes #InterstitialCystitis #cold #Flu #BPD #Migraines #IBS #exhaustion #tired #emotional #unwell #immunosuppressed

    10 people are talking about this
    Community Voices
    Community Voices
    Natalie Bograd

    Finding Hope in Life as a 'Generation Disaster' Millennial During Tragic World Events

    I’m lying on the couch listening to the icy February rain slide down my living room window. Dizzy, nauseated, and experiencing severe migraine, I can’t concentrate on anything other than my excruciating pain. It feels like ice picks are digging behind my eye sockets and my entire head is being squeezed in an unrelenting vice grip. The only thoughts that penetrate the fog of illness are half-formed and terrifying. Maybe I should go to the emergency room. Will that make the migraine worse? Will they believe me, or will think I’m seeking drugs? Should I go alone or make my partner come with me? What if we both get COVID-19 at the hospital? Do I already have COVID-19? Am I dying? Would it be better if I died? Will this last forever? It’s definitely a tumor. I’m just being a baby. Should I call my mom? Take another pill? It’s definitely an inoperable brain tumor. I don’t want to die, but I’m not sure I want to live. I turn my head and for a split second, I focus on the view of our tiny Brooklyn backyard. Suddenly, I catch a flash of scarlet under the dripping trees. It’s a single cardinal with his unmistakable crimson crown and wings — seeking respite from the storm under our mulberry tree. I’d seen cardinals in our yard before — but only in summer. In 2020, during the height of pandemic isolation, I thought the cardinals were good omens. Messengers of hope from a benevolent universe, perhaps signs of better times ahead. My mom uses the phrase “a perfect storm” to describe those moments in life when multiple unexpected traumatic events occur in seemingly spontaneous succession. I don’t know how this term came to be. Perhaps it exists because we rarely see storms as bringing anything but chaos and pain. We can’t think of a storm as “perfect” in a good way. We rarely greet an oncoming storm with excitement or delight. We are primed for devastation, attuned to catastrophe. I recently read a piece in which one of my favorite contemporary writers, Anne Helen Petersen, interviewed Karla Vermeulen about her book, “Generation Disaster.” The book describes the unique collective trauma experienced by Americans born between 1989 and 2001. Our adolescence and young adulthood was punctuated by 9/11, mass shootings, increasingly terrifying reports about climate change, the war in Afghanistan, an economic recession that just about destroyed the economy, and deep, perpetual political strife and social upheaval. In other words, we grew up at the mouth of the volcano — with waves of molten lava lapping at our feet. I’ve seen this instability manifest in my own life in various ways. When my older sister was a freshman in high school, the news of a mass shooting at nearby Columbine High School rocked my hometown. Two years later, we watched the Twin Towers fall. Suddenly, we were all but strip-searched in order to board a plane. It became clear that most of us would never live as safe or as well as our parents did. And yet, in all my youthful naivete, I started my higher education career at a private college in Los Angeles with a price tag so shocking that the financial aid I received barely made a dent. I had undiagnosed attention-deficit hyperactivity disorder (ADHD) and no idea that I wasn’t ready for college — let alone in a huge, unnavigable city far from my close-knit family. I arrived to find that — despite the astounding tuition — my freshman class was overenrolled, and several of the 1970s-era dorms were closed for remodeling. So my entire cohort was housed in forced triples — double rooms with an extra bed and desk squeezed into eight-foot by 10-foot rooms. To add insult to injury, the administration also decided to deliver us three sets of furniture — three desks, three impractically large, heavy dressers with granite tops, and the requisite mini-fridge. One of my first nights on campus, the air conditioning in our dorm broke. I had attended an all-girls high school and barely dated — I had never even gone beyond a peck on the lips with a boy. Suddenly, boys and girls were walking around half-naked and sleeping on the floor of the library next to total strangers. I was unprepared to make my own decisions about whether or not to attend class, what to eat, which romantic encounters would end in heartbreak. A few months into that first year, I started having severe panic attacks and experienced my first major depressive episode. My dad had to rescue me from Los Angeles, packing my things as I lay on the floor, convinced my racing heart and shortness of breath indicated some grave medical condition. On the plane home, I heard voices telling me I was going to die. Without my family’s quick response — finding me a therapist and getting me the treatment I needed — I’m fairly sure I would have. Six months later, after moving back home and attending community college, I was finally stable enough to start again at a public university 30 minutes from home. And yet, stability was not on the horizon. Though I graduated in four years, earned honors for my academics, held down a part-time job, and enjoyed a few friendships, I also struggled deeply with depression and anxiety that I now know was partially a result of my undiagnosed ADHD. I now recognize the impulsive behavior — experimenting with the wrong boys, drinking too much, dropping classes, lying to my parents — and the struggles with executive functioning that still affect me as an adult. There were fender benders, detonated friendships, roommates furious with my lack of cleanliness, drunken declarations of love to undeserving boys. But more difficult than all of this was the sense that I didn’t quite fit anywhere — that maybe I was irreversibly and fundamentally “broken.” Between graduating college with honors in 2011 and moving to New York in 2019, I had at least 11 jobs — including serving in Americorps, teaching middle school English, and bagging groceries at Whole Foods. I had a series of bad roommates and moved back in with my parents for the second and third times. I had complicated romantic relationships with men who were patently unsuited for me. I excelled in a master’s program in media studies but became bored and decided not to go for a doctorate, essentially cutting off a career path in academia. Just before I decided to move to New York and just after my ADHD diagnosis, I finally confessed to my parents that I had over $10,000 in credit card debt on top of my $70,000 in student loans. At age 29, after working without a break for almost a decade, I had no partner, no friends, no career, and no savings. I was — in the most literal sense — worthless. And yet, I plunged ahead like the cardinal, seeking shelter and a place to nest. I used the money my parents had set aside for my future wedding to pay off credit card debt, sold my car, and moved to Brooklyn with a part-time job, an offer to crash with a friend, and an incredibly risky belief that things would get better. They did and they have. I fell in love. I moved in with my boyfriend. I worked through some core issues in therapy. I secured a series of higher-paying jobs in my field. But then, COVID-19 hit. It was the perfect storm. Isolation, fear, the relentless drumbeat of capitalism undaunted. The reasons I moved to New York vanished overnight as restaurants shuttered, theaters went dark, and ambulances wailed. The pandemic stretched on for months. Months turned into years. Armed terrorists stormed our nation’s capital. States passed and courts affirmed more and more bills attacking abortion rights, voting rights, and the right to gender-affirming care. My partner and I had very few friends nearby, no family, and no “pandemic pod” with whom to weather the storm. We were an island unto ourselves — huddling together as the rain lashed at our windows and the waves crashed. We worked. We stared at screens. We drank. We missed family Christmases and baby showers. We stood in line for COVID-19 tests and vaccines and masks and groceries. We found pockets of joy and laughter and peace. The world opened again, then shuttered, then reopened again — a dizzying dance of changing guidelines and social expectations. I started having five migraines a month, then 10, then more. I had finally established myself in a life I loved — only to find out at sea once again. It’s not that no other generation in history has grown up during dark times. I appreciated the Apple TV series “Dickinson” — a fictionalized dramedy about the poet Emily Dickinson — for the way it gently pokes fun at how young people whine about living in “unprecedented times.” In one episode, Emily’s sister, Lavinia, whines, “The Civil War ruins everything!” Today, she would no doubt post her frustration as a snarky Instagram meme. But the outrage is the same. The systems that were meant to help us have failed, the promise of a good job and home ownership with a college degree have been rendered meaningless, and young people full of promise have been lost to racial violence, mass shootings, a pandemic, endless war, and environmental ruin. But as Vermeulen remarked in “Generation Disaster,” the point isn’t that no past generation has had it harder than millennials. The difference, perhaps, is that millennials have never seen the world as safe or believed on a deeper level that we’d be rewarded in the same way as our parents have been for pursuing the things they pursued — marriage, a stable career, higher education, home ownership, or parenting. Though I may be generationally primed for disaster — especially on a national or global scale — it’s always the personal catastrophes that take me by surprise. I’m someone who lives with ADHD, anxiety, depression, and chronic migraine. These are storms I know — biological forces with which I’m intimately familiar. Though they can be dormant for weeks or months, they’re never far from the horizon. And yet, they sometimes take me by surprise — leaving me breathless and gasping in the wreckage. This February, migraine was a storm I didn’t expect. The pain, the fear, the sense of residing in a space somewhere between life and death, between illness and health, completely cut off from the world. I eventually ended up in the emergency room after a night spent weeping in pain and asking my partner to tell me stories to distract me from the sense of impending doom — the certainty that my life was about to end. I wasn’t sure I minded. The ER doctors drew my blood, gave me various medications and fluids, and ran a series of tests. A scan of my brain came back clear. No tumor. I didn’t have COVID-19 either. It was “just migraine.” As the treatment started to work and the pain receded, I lay on my back with an IV in my arm, and I was overcome by a sudden sense of peace. I realized immediately and forcefully that this moment, this imperfect storm, would abate. I would live. I would hold my nephews’ small hands and stroke my dog’s fur. I would stand by the ocean and marvel at it. I would be a part of the world again — for as long as luck and grace decreed. But just as deeply as I knew I would again experience great love and joy, I also knew that sorrow, pain, and terror were not finished with me. The world was still broken. This moment of respite was the cardinal in the storm — a flash of crimson on a gray winter day. A little over a month later, I stood with my toes in the sand looking out at the ocean. I was visiting Sanibel Island, Florida with a dear friend and her family. It was the most beautiful place I’d ever seen: pristine beaches with white sand and teal waters, a wildlife refuge where we watched great blue herons and egrets soar over a bay where dolphins and manatees played. We kayaked through clusters of mangroves, combed the beach for seashells, and watched the sun set in blazes of orange and peach. But looming in the background was disaster. My friend’s grandfather was glued to the rental home’s television for hours each day — watching the coverage of the invasion of Ukraine. Just before we set out for a bike ride through the nature preserve where we’d see roseate spoonbills, sea turtles and an alligator, we watched Ukraine’s president, Volodymyr Zelenskyy, address Congress. He played a video that depicted daily life in Ukraine before and during the Russian invasion. Much like the American disasters he referenced in his speech — Pearl Harbor and 9/11 — the video showed ordinary days with blue skies and laughing children turned to horrific blood and rubble. It was strange for me to be in such a beautiful place while other parts of the world were burning. Or maybe it wasn’t strange at all. And so I thought again of the cardinal. The one I saw when I was sick was different. It was a quick flash of light in the darkness — transient and ephemeral. It represented the single hour or week or month or year that happens to be free from pain, fear, and grief. It was the brief calm after the storm — not its permanent cessation. As part of “Generation Disaster,” I realized that these moments between storms were the times when joy and peace can enter a life and take root. After all, every life has two surfaces: one shiny and unbroken, the other troubled and crumbling. Generation Disaster. Generation Resilience. The eye of the storm — and its apex. I wanted to tell the sick, exhausted, broken version of myself staring out at the rain and hoping to die to hang on just a little longer. Things don’t always get better, but they always, always change. And with change comes promise. The cardinal was a reminder that we don’t stay alive because we’re guaranteed endless sunny days. We stay alive — we choose to keep living — because if we don’t, we may miss those moments when our very cells sing with gratitude for every breath, every kiss, every heartbeat. We often endure because we hope that when the storm returns — and it will return — we will be wiser, stronger, and better equipped. We may hope we’ll have deeper roots and sturdier branches. We may hope that when the final storm comes for us, we can say that we did the best we could — despite the gale-force winds and raging waters. We hope to say that in the storms, we were broken and alive and perfect.

    Community Voices

    When you have a cold on top of the usual

    #Anxiety #ChronicIlless #CPTSD
    I have had a sore throat and a head cold since Sunday night. I don't know about you but when I catch something I can't always tell I've caught something because I usually feel that bad. I've had COVID twice in the last year and didn't hardly blink.

    I got checked for strep yesterday since I was exposed, and came back negative so I can keep my appointments. It was so hard to leave the house for the clinic. I don't want to keep my appointments.

    My anxiety goes through the roof when I'm sick with a passing bug. I get panic attacks. I don't want to leave the house. I don't want to be seen. If I do have to interact I try to downplay how I feel like I usually do anyway. I make jokes and distract people from me to their own lives.

    I think what scares me is that I have felt more vulnerable since my chronic illnesses, and adding on passing flu or colds just makes me feel even more ill at ease. Productivity has my whole life equalled value. So ever since my diagnoses I have maintained a minimum that I force myself to keep up with. A standard so I know where I'm at.

    I feel very depressed when I have a flare or something else prevents me. I think it must be my cPTSD as well because I've had some pretty bad stuff happen to me during times I've been ill and unable to protect myself. As I've been figuring this out, I can take measures to change.

    It is a beautiful day outside and I don't want it to be wasted. So I choose to take what steps I can and even if it's from the couch to a chair in the sun, I do that. It still counts. I hope someday when I catch a cold I won't panic anymore.

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