To the Rare Families Struggling This Holiday Season

The holidays can be a tough time for families in the rare community, many of whom face health challenges, hoping for better research, more answers, and cures for the conditions they face.

There are many who deal with stress on an everyday basis, and it can be hard to partake in the holiday cheer during the season.

Some families face medical expenses through the year that make it financially hard to be able to afford gifts for their children.

Some families are spending the holidays in the hospital with their child.

Some children are unable to participate in holiday activities because they are recovering form surgery.

When most families are gathering to share holiday meals and exchange presents, there are other families who are facing the unthinkable.

In effort to bring hope and light to the families affected by Blounts disease and all rare diseases, I am here to remind you that you are not alone.

Holidays should be a magical time for families and although we may be facing struggles and challenges, our community is stronger than ever.

Take time to enjoy something about the season, and most of all take time for yourself. Self-care can seem like it takes too much time, but we must try to stay mentally healthy especially during the holidays when it can take up our emotional energy.

Enjoy the holidays for what they are — a time to enjoy with your family.

Whenever we begin to feel as if we can no longer go on, hope whispers in our ear to remind us that we are strong — Blount’s disease strong. Rare warrior strong.

May your holidays be filled with hope.