Cardiofaciocutaneous Syndrome

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Cardiofaciocutaneous Syndrome

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10 Things I Want My Healthy Child to Know I Understand About Life With His Sick Brother

1. There will be pain. Medical advancements may dictate that one day your dad and I will leave this world and you will be thrust into the caretaker role. At worst, you will bury your brother, and it will leave a hole in your heart so painful you may resent us. On a daily basis, I wonder which one leaves us in [...]