The Mighty Logo

How Publicly Revealing My Disability Changed How I See Myself

The most helpful emails in health
Browse our free newsletters

This is it; there’s no going back now,” I thought, as I stared at the two words that typically struck fear into my heart.

Cerebral palsy.

My diagnosis — the secret to which I had clung for much of my life — now hovered above a published piece of writing. A piece of writing centered around my personal experiences living with mild cerebral palsy. A piece of writing that — unbeknownst to me at the time — would transform my perception of my body forever.

Like many other women, I have had a fraught relationship with my body for the majority of my life. From a young age, I internalized messages from the media about the “ideal” woman’s body — the type of body society prizes. Tall. Slender. Symmetrical. Able-bodied. Despite my understanding that one particular body type was perceived as the ideal, I have long found beauty in all bodies — with the glaring exception of my own.

I have always been tall, long-legged and slender — outwardly, an apparent manifestation of societal beauty standards — but my body image was complicated both by internalized ableism and by the immutability of my life circumstances. I had internalized so much ableism throughout my life that despite seeing beauty in other women with disabilities, I personally felt I needed to be able-bodied to feel beautiful. However, I was born with cerebral palsy, and I knew that no matter how hard I tried, I could never be able-bodied, and thus, could never attain the body — and I presumed, the feeling of beauty — for which I strove.

Cerebral palsy, a neurological disorder affecting movement, balance and posture, can cause certain muscle groups to remain in a constant state of tension and weakness. As a result, due to muscle atrophy, my affected leg is skinnier and slightly shorter than the other. Although this subtle difference has rarely been apparent to other people, for years it was the focal point of my bodily criticisms — and my desire to conceal it from others wholly consumed my thoughts. Eventually, I arrived at the understanding that my fixation on my disabled body was not only unhealthy and unproductive, but also was actively holding me back from achieving my dreams. How was I to resolve the years of internalized ableism that forged my negative body image?

I knew that if I ever wanted to make peace with my body and find solace in my identity as a woman with a disability, I needed to not only write about my experience living with cerebral palsy, but also to seek publication for my writing.  The prospect was daunting, as I had spent years hiding my medical condition to the best of my ability and attempting to pass as able-bodied. However, I knew that publicly declaring my status as a disabled woman could allow me to love and appreciate my body in its entirety, so I forged ahead.

I began writing, but three sentences in, my breath caught in my chest and my heart raced.  I was on the verge of tears as I typed the two words that evoked painful, visceral emotion.

Cerebral palsy.

“I can’t do this,” I thought.  “I don’t want the world to know my medical history. I need to stop writing.”

Several days later, however, the alluring prospect of a positive body image and a changed life drew me back in, despite my trepidation. As I wrote, my fear and self-loathing was stripped away in tandem with my guise of able-bodiedness. I felt completely vulnerable, but through the raw nature of my writing, I began to nurture a quiet self-acceptance. As I edited, polished and prepared to submit my writing, however, I worried. Am I making the right choice? What if nothing changes?  Have I poured out my heart and soul in vain?

I submitted my writing, anticipating a future as a woman who would fully embrace disability as an integral facet of her identity.  I knew that for better or for worse, when my writing came out — when I would publicly reveal my cerebral palsy — my life would be changed forever. Despite my uncertain future, I remained optimistic about the impact that sharing my experiences as a woman with a disability could have on my life. I hoped the years of ableism I had internalized would slowly dissipate, like petals in the wind. I dreamt of a future in which I would no longer feel the relentless, societally-imposed pressure to attain a body I could never have. I yearned to ignite a vehement, unwavering self-love — a love so ardent it would last forever.

Five days later, I was surprised to discover that my writing — my experiences with cerebral palsy — had already been published.  I was keenly aware that now, nearly anyone could read my story — and view my body in a new light.

“This is it; there’s no going back now,” I thought, as I stared down at the two words that typically struck fear into my heart.

Cerebral palsy.

For the first time in my life, upon reading these words — the secret I had held so close to my heart — I no longer felt afraid.  I felt a sense of pride, not solely in myself, but in my body.  I realized that though my perpetually tense body may seem stiff, uncoordinated and unforgiving to the outside world, it possesses a powerful, invisible strength — strength magnified by my experiences with cerebral palsy. My body withstood years of therapies and medical procedures. My body successfully recovered from orthopedic surgery.  My body survives the intense physical pain brought on by demanding 9-to-5 work. The beauty of my body lies in its strength — the strength to transcend the complications of cerebral palsy.

That night, I looked at myself in the mirror, scanning over my entire body. I was clad in a T-shirt and leggings, hair down and slightly wavy, no makeup — I was purely myself. My eyes fell on my tense muscles, my uneven, off-kilter hip bones, my slightly in-turned knee, and the surgical scars permeating my foot. For the first time in years, I did not criticize any aspect of my appearance. In that moment, the quiet self-acceptance I had fostered through my writing reached a roaring crescendo and blossomed into unapologetic self-love as I realized the truth: Every inch of my body is beautiful. I am beautiful.

I stood in awe of my body, amazed by its beauty. I realized then that by publicly revealing my cerebral palsy and allowing the world to understand my body in its entirety, I had relieved myself of the societally-induced pressure to attain a “perfect” body.  My writing was not only a window for others to view my life with clarity; it was a lens through which I could vividly see my own beauty.  In that moment, I was transformed by the power of positive self-perception. In that moment, I ignited the ardent self-love for which I yearned — a self-love I have vowed to carry with me for the rest of my life. In that moment, I decisively spoke the words I now fervently believe: “I am disabled, and I am beautiful.”

This article was originally published by HelloGiggles.

We want to hear your story. Become a Mighty contributor here.

Getty image by RyanKing999.

Originally published: December 20, 2017
Want more of The Mighty?
You can find even more stories on our Home page. There, you’ll also find thoughts and questions by our community.
Take Me Home