congenital fiber-type disproportion myopathy

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To the Rare Disease That Entered My Life Uninvited, I Have This to Say to You

To the Rare Disease That Entered My Life Uninvited, I Have This to Say to You

Charisse (Nikki) Montgomery

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9y

To the Rare Disease That Entered My Life Uninvited, I Have This to Say to You

Dear congenital fiber-type disproportion myopathy, You might have others convinced you are a genetic condition that causes weak muscles and disability, but I know the truth about you. You are a thief. Before I even knew your name you began your crime. I was 8 years old, and you had occupied the cells of my [...]