Even if Sammy needs me to get into bed @ 5:30 like tonight, I do it. Knowing he won’t be ready to sleep for hours!!! His needs, his equilibrium alongside Connors will always come first.

Autism is so rigid that there is no sneaking back downstairs while he watches tv. I am a part of his well-being so that’s where he needs me to be.

So whether we need to fight for services, or if he wants to smell my forehead 15 times an hour or if he needs me to lie awake with him most nights I do it.
I do it because I love him first and foremost, I do it for safeguarding reasons and I do it because he loves me. He needs me. He would rather lay draped over me in various uncomfortable positions than play with his toys most days, and yes it a bit boring and very uncomfortable but with autism comes a whole new set of unconventional rules. There is no parenting manual. So we just do it. And I quite like the big deep breaths he takes while he smells my head It tells me in the purest form how much he needs me and let me tell you, that is powerful stuff. So if you ever find yourself thinking about me or anyone else you know...”I don’t know how they do it” change that to “they do it because they loves him so much”. 💙
#Autism
#sendparentsarehardasnails
#doitforlove