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[UPDATE: After this was originally reported, doctors determined that Abigail’s tumor was benign. Abigail underwent a successful surgery and has since left the hospital.]

Photographer Mary Huszcza captured Erika and Stephen Jones and their daughter, Abigail, in photo series.

Read the full story.


Meet Abigail

She was born with an aggressive brain tumor that would likely grow back if operated on.

Her parents elected to take her home, instead of keeping her in the NICU, and took these photos to capture their time together.

“If [Abigail] dies, I don’t want it to be in a plastic box in a hospital NICU, it will be home with us, surrounded by love and in our arms.” -Erika Jones, Mother.

“Many people think this is a hopelessly tragic situation, and sometimes it indeed feels that way, but the moments of joy far outnumber the moments of sorrow.”

“Hang on and breathe. You will survive your child’s illness or the loss of your baby. Life is a beautiful dance of joy and grief.”

Originally published: September 9, 2015
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