edsundiagnosed

I’m going to my doctor tomorrow to talk about the possibility of EDS. We’ve been looking for answers for about 3+ years. After to constant research, I think all the symptoms including the ones I’d never think to link together sound very much like EDS. So I’ve asked her to do some research and then get back to me. So tomorrow is the day. What would you ask?
#EhlersDanlosSyndrome

What type of dr finally diagnosis it? My Rhum said my skin wasnt soft or sretchy enough and ran a bloid test he said was negative, but there are a lot of different types
I'm hyper mobile, have Arnold Chiari, POTS , Fibromyalgia, repeated sprains and ligament tears among other common symptoms. Who do I see who will finally take it seriously?? #edsundiagnosed #findadoc #edshelp