If Your Ehlers-Danlos Syndrome Could Text You, It Might Look Like This

Ehlers-Danlos syndrome (EDS) has such a strong influence on your life that sometimes it might feel like EDS is a real person. EDS is that acquaintance who always needs something from you, and never wants to leave you alone. He or she will cancel plans for you, wake you up in the middle of the night, and remind you how many spoons cleaning your house will cost. But, EDS can also show you how strong you really are, and how amazing you are at juggling everything EDS throws at you.

• What is Ehlers-Danlos Syndrome?
• What Are Common Ehlers-Danlos Syndrome Symptoms?

If your EDS could text you, what would it say? And what would you say back? That’s what we asked our Mighty EDS community. Below, check out the conversations they imagined. What would you text your EDS if you could? Share in the comments below.

1.

EDS: Hi, I heard you’re going to the doctor today?
Me: Yeah.. why?
EDS: Yeah, I’ll help you, I’ll give you the energy to look happy so the doc thinks you’re healthy. You’re welcome. — submitted by Tilde B.

2.

EDS: Hey! So, I’m gonna to show up today and dislocate one of your joints, cause excruciating pain in all your muscles, and then exhaust you while you have to get through your day, cool?
Me: Ahhh… new phone, who dis? — submitted by Aimee V.

3.

Me: I’m just going to sneak out of the room quietly so I don’t wake my spouse up.
EDS: Yeah, about that… *snap crack pop crunch* — submitted by Tori M.

4.

EDS: your body’s check engine light is on
Me: yeah, it’s been on for a while
EDS: haven’t you had it checked out
Me: how many more specialists do you want me to see?
EDS: ummm, hold on *adds another comorbidity to the list* — submitted by Stephanie K.

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5.

EDS: I know you wanted to look cute today, but I don’t feel like allowing you to lift your arms over your head to do your hair.
Me: Looks like I’m wearing a hat today… — submitted by Kaitlyn L.

6.

EDS: Oh by the way, I’m going to make your body hate you. You will literally fall apart at random, hurt like hell all the time and still have to function as a human being.
Me: Wow, sounds like I’m a badass! — submitted by Kelly M.

7.

EDS: Hey, your jaw hasn’t dislocated yet today… let’s schedule that during your date! So long goodnight kiss… — submitted by Theresa M.

8.

EDS: Stop doing the things or I’ll make you regret the things. — submitted by Stephanie M.

9.

Me: I’m going to have a quiet day today
EDS: Mmm, about that. I’ve invited some of my friends around – ME, POTS, IBS, fibromyalgia, MCAS… — submitted by Louise M.

10.

EDS: I’ll lay off you today so you can get loads done. Don’t forget to do plenty so I can punish you tomorrow!
Me: I’ll show you, I’ll be a normal person for a change. Just watch how much I can achieve!
EDS: I’m back, did ya miss me? Laura, Laura, wake up so you can feel the pain! Muhahahaha — submitted by Laura B.

11.

EDS: Hey so remember how you wanted to shower? Do laundry? Your wrist is subluxed and you have a migraine now. Looks like you’re changing plans! — submitted by Courtney F.

12.

EDS: Were you planning on doing anything today? You’re gonna need to reschedule. — submitted by Chrissy L.

13.

EDS: I heard you are planning on cleaning the house tomorrow. I don’t think so, try again next week! — submitted by Samantha D.

14.

Me: Heeeey. My pelvis just made a huge POP! and I was just wondering if you could tell me if it was a good or a bad one before I try to stand up?
EDS: ¯(ű)/¯ looks like its time for WHEEL. OF. MISFORTUNE! — submitted by Alecia R.

15.

EDS: I know how to push your buttons. And your knees, ribs, neck…
Me: Thanks for making me a fighter. — submitted by LaurieAnn Y.