The Mighty community shares signs they noticed that ultimately ended up to be due to Ehlers-Danlos syndrome.
Signs You Might Have Ehlers-Danlos Syndrome
“I was always in pain. Various parts of my body always hurt.”
“I could never get over the ‘burn’ of working out.”
“I didn’t realize until I was an adult that most people can’t scratch their own backs and zip their own dresses.”
“Constantly falling over as a child.”
“All the doctors would tell my parents that I just had ‘wonky joints.’”
“I started having back problems when I was 12 years old.”
“The ability to touch my tongue to the tip of my nose, called Gorlin’s sign, should have been a giant red flag!.”
“I was always ‘W’ sitting as a child.”
“I had really bad ‘growing pains’ in my legs and hips that still happen almost every night.
“I walked late as a baby. Closer to 18 months than 12 months.”
“My doctor never being able to determine if I have scoliosis or not. One visit my spine would be fine, the next it would be curved.”
“How flexible my fingers were!”