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The Mighty community shares signs they noticed that ultimately ended up to be due to Ehlers-Danlos syndrome.


Signs You Might Have Ehlers-Danlos Syndrome

“I was always in pain. Various parts of my body always hurt.”

“I could never get over the ‘burn’ of working out.”

“I didn’t realize until I was an adult that most people can’t scratch their own backs and zip their own dresses.”

“Constantly falling over as a child.”

“All the doctors would tell my parents that I just had ‘wonky joints.’”

“I started having back problems when I was 12 years old.”

“The ability to touch my tongue to the tip of my nose, called Gorlin’s sign, should have been a giant red flag!.”

“I was always ‘W’ sitting as a child.”

“I had really bad ‘growing pains’ in my legs and hips that still happen almost every night.

“Severe bruising!”

“I walked late as a baby. Closer to 18 months than 12 months.”

“My doctor never being able to determine if I have scoliosis or not. One visit my spine would be fine, the next it would be curved.”

“How flexible my fingers were!”

Originally published: January 25, 2018
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