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What I Wear to Stay Warm During Winter With Ehlers-Danlos Syndrome

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It’s that time of year again. Time to head to your attic or the back of your closet and dig up your winter wardrobe. Until next season, Banana Republic summer shift! A few tears shed. For most people the coming holiday season is something they look forward to. Please don’t get me wrong: I love wintertime. It’s my body that fights against the colder temperatures. I look forward to the coming season as well, but know that I will be in more pain and have chills, dislocations and a dull body ache that seems to never end due to Ehlers-Danlos syndrome and other comorbid conditions.

• What is Ehlers-Danlos Syndrome?
• What Are Common Ehlers-Danlos Syndrome Symptoms?

Here are some of my tips for how to dress from head to toe with falling temperatures and chronic illness.

Hats: I have a plain fleece plum-colored hat by Columbia that matches my jacket, but I find myself mysteriously attracted to the ones with the tassels on top.

Wintered Headbands: Faux fur headbands equals no need to brush my hair! Winning!

Ear Muffs: My ears are always freezing.

Scarves: Blanket, faux cowl neck… the choices for scarves are endless. I am starting a holiday collection of blanket scarves. No, but in all seriousness, I adore blankets that lead a double life as a scarf!

Ski Parka: Invest in a good quality jacket that will last a few winters. For example, my jacket from The North Face is six years old.

Gloves: I have learned that even with gloves, Raynaud’s phenomenon turns my hands pretty shades of blue and bright red.

Dresses: Several companies make dresses with long sleeves and three-quarter sleeves that pull on over your head.

Tunics: Try this staple in long sleeves or a waffle weave.

Thermal Underwear: This is a winter staple. Hello, Under Armour!

Leggings: They come in bright holiday patterns! Who doesn’t want to wear a pair of leggings with gingerbread on them?!?

Boots: Umm, black, of course! Non-skid sloes.

Slippers: Preferably ones with non-skid sloes.

Originally published: November 4, 2016
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