Erdheim-Chester Disease

Living with a rare illness can be stressful and isolating. Often, those closest to you don’t understand what you’re going through or how to be of real assistance. Although different rare diseases affect people in a variety of ways, what is common among them all is those affected yearn to connect and be understood. We asked [...]

Erdheim-Chester disease (ECD) is an ultra-rare type of blood cancer that can affect many different organs of the body and unless successful treatment is found, organ failure can occur. Like many other rare diseases, ECD is difficult to diagnose, has no known cause, and in some patients no visible signs of illness exist. Patients often [...]