#zebrastong #EhlersDanlosSyndrome #EDS #ChiariMalformation
Have nearly killed myself in the process but vacuumed and mopped vigorously and bleached everything I could, rearranged things in kitchen, cleaned bathrooms, done some shopping and marinated meat for dinner. This is the first time in over a year, since my decompression and cranial cervical fusion surgery that I’ve been able to mop and vacuum let alone do other stuff on top of that. I refuse to let EDS take me down, I will probably be bedridden for the rest of the week, but at least I can feel I’ve accomplished something big for me today and can hold onto that. So difficult to mop floors when your head is fixed in one position...but I did it 💪🏼 Makes my heart happy that my family get to come home to a clean and shiny house that I have cleaned. Now to sit down with coffee and try put my dislocated shoulder back into place 😜 #lifewitheds #canliterallytastebleach #everyisclean