Chiari Malformation

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Chiari Malformation
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    I'm new here!

    Hi, my name is Amanda_42. I'm here because I have just recently been diagnosed with Chiari 1 Malformation/Syringomelia.

    I am trying to learn a little about the conditions without going down a vicious rabbit hole. I have been struggling with focus and concentration for quite some time now and it's really affecting my job! I have not been able to be productive, both at work and at home. I am just curious, for others with these conditions, do you struggle with focus and concentration?

    Thank you so much; I'm really happy to have found this group!
    Much love and support,

    #MightyTogether #Anxiety #Depression #ChiariMalformation #Syringomyelia

    8 reactions 2 comments

    I'm new here!

    Hi, my name is Kate. I'm here because of Chiari Malformation type 1 (almost 1.5) and hypermobile Ehlers Danlos Syndrome and TMJD

    #MightyTogether #ChiariMalformation

    4 reactions 3 comments

    Neurological Manifestations Of Sjogren’s

    Sjogren’s is manifesting neurologically for me. Working along with my Chiari Malformation (hind brain herniation), I struggle with peripheral neuropathy, degenerative disc disease, and Tarlov cysts. If you suspect this is happening to you, the info in this article may help.

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    Big, scary medical decisions

    I was told by the neurosurgeon this week that I need spinal surgery for my scoliosis. It’s progressed in the past 6 years and he’s recommended I have T2-L5 done at a hospital 8 hours away from home. I’ve been in pain management for the last 4 years and tried many solutions to living with the curves and daily pain. I’m told it’ll be harder to recover the longer I wait, but I’m scared to move forward. #MarfanSyndrome #Scoliosis #ChronicPain #Migraines #duralectasia #ChiariMalformation


    I'm new here!

    Hi, my name is 1dirobb1. I'm undiagnosed and soon to visit my neurologist. I have a 3mm cerebellar tonsil ectopia. #MightyTogether #ChiariMalformation


    Newly diagnosed

    Even those I hate labelling it's great to know that I've not just been feeling rather crappy and in pain just because!!