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What Google Didn't Tell Me About My Generalized Anxiety Disorder

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When I was first diagnosed with generalized anxiety disorder (by a neurologist in the middle of a migraine appointment), I thought, “Great! Search terms! Let’s get cozy, Google.”

I was wrong to assume simple screen time was going to help me find my path with my anxiety disorder. I found little online that informed me in any real way. For one thing, the word “worry” was used again and again. At the time, worry wasn’t what I did or how I identified. Thinking and overthinking, yes. Worry, no.

A few months after my July diagnosis, in September 2015, the tennis player Mardy Fish wrote a great essay that captures the experience of anxiety in vivid detail. At one point, he sums it up:

“I was, objectively, doing great. And looking back, I wish I had been able to tell myself that. But doing great wasn’t something that my frame of mind back then had time to process. All I could focus on was doing better. It was a double-edged sword.”

By the time I read Fish’s piece, he was confirming something I already knew. I’d talked to many people to piece together what GAD meant, found a book that helped a lot, and started to figure out my own particular form of anxiety for myself. The goal of this short FAQ is to help people like me when they’re just beginning their journeys by sharing what I’ve learned through my personal experience. You may be realizing you have anxiety. Maybe you’ve been told you’re exhibiting some of the symptoms of generalized anxiety disorder. If you are Googling the hell out of your keyboard right now and not finding answers to your questions, welcome, fellow mind traveler.

Q: What is generalized anxiety disorder, exactly?

A: You’ve probably been researching this topic, so I’m not going to give you the same bland answer you’ve already seen about how it’s a psychological disorder characterized by excess “worry,” particularly about work, finances and relationships. I will say that some of the people I know with GAD didn’t know they had it for a long time. They didn’t characterize themselves as “worriers.” Books and doctors might tell you GAD means you worry about worry, but if you don’t even consider it worry, that doesn’t help. And if you are so habituated to pushing away the worry as a coping mechanism, then again, talking in those terms can just lead to more trouble.

For me, GAD meant I was overthinking nearly everything in my life, scrupulously trying to figure it all out. If a problem came up, I’d write it down and begin my frantic attack in every direction. It also meant I had a ton of debilitating shoulder and neck pain. I’d be nauseated frequently, especially on buses. I’d get dizzy occasionally, almost to the point of fainting. It was the physical symptoms that led my neurologist to know I had GAD.

Q: Can a person have GAD and not know it?

A: Absolutely. I’ve found it can be common for people who have GAD to see many doctors before they get properly diagnosed. Gastroenterologist, chiropractor, neurologist, acupuncturist, and gynecologist offices seem to be some of the common stops along the path to diagnosis.

Q: Is it hereditary?

A: I don’t know if this is everyone’s question, but it was one of mine. I wanted to understand where GAD was coming from. Yes, there can be a genetic component. But as is often the case, that’s only one part of the equation. You may have genetic roots and predisposition to anxiety disorders, but they can also be triggered by environmental factors. The death of a loved one, divorce, the sudden loss of a job or your house, or a big change in circumstance can bring on episodic flare-ups of GAD.

Q: If it flares up, does that mean it’s dormant at other times?

A: My understanding (I’m a patient, not a doctor!), is that you can be predisposed to GAD, but with proper treatment, you can bring your symptoms into check. But if you are predisposed to this condition, when things happen to you, you may be more likely to have bigger anxiety responses than other people. I almost think of it as a GAD sine wave, and the equation is your life, and what’s happening in it.

Q: How “messed up” are you, exactly? Please be specific.

A: We have had a few ants in the bathroom lately. They appeared to be coming through the window. “We should probably replace the window,” was my immediate thought and suggestion to my husband, even though we can’t afford it. I don’t see five to 10 ants. I see the inevitable 100 to 200 ants that I imagine will invade and eventually carry off our house. It’s very hard for me to deal with the here and now when I am catastrophizing. (That’s a cognitive distortion. Learning to recognize cognitive distortions is one important element of cognitive behavioral therapy, a method I’ve found effective for treating GAD.)

A friend put it well: “I realized that I did everything in a rush. Even simple things like brushing my teeth or making coffee. And 80 percent of what I do on a typical day does not require hurrying and rushing. That creates a lot of stress and worry throughout the day.” I know exactly what he means. I sometimes have the feeling that if I don’t get whatever small household task done at any given moment, the world might end.

The worst era of my anxiety disorder was the time before I knew I had it. I knew something was wrong, but not what. I desperately wanted to figure it out. I’d go down every known avenue trying to get an answer. My diagnosis was one of the best things that’s ever happened to me. I am very thankful for it.

Q. If I have GAD, how do I make it go away? Does it last forever?

A: Here’s my thinking on it. The ideal situation is that I’m able to ride the wave. Maybe even get to the point where I can hang in the lull for a long time with little anxiety. When stressful things happen, I expect my particular gremlin will poke his head out of the wave’s crest. Knowing what to do with him and that I’ve survived his visits before helps a lot.

Some recent examples of what works for me: Meditation. Medication. A moderate amount of reading and learning (in other words, don’t overdo it). Communication.

Q: Can anyone develop it? What’s the line between having it and just being a regular stressed out American?

A. Right now, I am seeing the world through anxiety-tinted lenses, so I tend to see anxiety in a lot of people around me. Ultimately, though, I’ve found the difference between regular anxiety, stress, and GAD comes down to degree. Many people aren’t fainting or getting up in the middle of the night. Many don’t need neck rubs every day. And many aren’t negatively predicting the outcomes of regular social interactions in a way that adds extra stress to daily life.

One of my friends, who learned through my experience that he has GAD, too, said, “I tend to project into the future as I experience almost everything. And I’m often planning how to deal with some negative turn of events that might happen in the future, but most likely never will. So I’m worrying in the present about something that will never happen in the future.” If that sounds familiar, you might want to read more about generalized anxiety disorder.

Q: Is this what has been wrong with me?

A: I can’t tell you that, but I can tell you that if anything I’ve said has rung true, a great place to start is the book “The Worry Cure.” Don’t think about the title too much and don’t think about the word “worry.” Just investigate your physical symptoms through the lens of your thoughts, and see if what this book has to say relates to you.

Q: Will I ever feel better?

A: I believe you can feel better if you have GAD. This is a hard-won statement coming from me. I am a skeptic and not one to placate you, reader. But I think that simply the fact that you are reading this means you are going to feel better.

Q: How do you know?

A: Times are changing. People are talking openly about depression, anxiety and other forms of mental illness in a way they never did when I was in my 20s. I’m so glad to see it on behalf of my 5-year-old daughter. The more people speak openly about the spectrum of mental conditions, the more they can be helped earlier on. I wouldn’t have dreamed of writing something this personal just one year ago. I now feel as though my anxiety needs to be an integrated part of me in order to be managed in a healthy way. I hope others will feel that way, too.

Q: What should I do if I’m a friend or family member of a “Gaddie”?

A: I feel for you. It can be hard to avoid the role of friend-therapist. You might find yourself talking your friend down and trying to give them a more realistic view of their surroundings. The goal is to help them build those muscles for themselves without exhausting yourself. Bottom line: Get the oxygen mask on yourself first.

On the other hand, it can also be confusing, because GAD often presents as perfectionism, or invulnerability. How do you help someone who doesn’t seem to need help? Take in the information you have and tune in to your instincts. Is the person talking super fast? Are they in a lot of physical pain? Do they seem complain-y? If so, they may need to learn to tune in to how they are responding to the world around them. As a friend, you can help by gently encouraging them to go easy on themselves and stay grounded in the moment. Send them a link to this piece. Do it with love.

Editor’s note: This is based on one person’s experiences and should not be taken as medical advice. Consult a doctor or medical professional for any questions or concerns you have.

Image via Thinkstock.

Follow this journey on Beautiful Voyager

A version of this post originally appeared on Medium.

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Originally published: January 20, 2017
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