Why I'm Fighting for Access to Treatment as a 22-Year-Old With Duchenne
I was first diagnosed with Duchenne muscular dystrophy (DMD) at 4 years old. At this age, I had no idea what having Duchenne actually meant. Yes, I knew I needed to do things a bit differently than other kids my age. I wasn’t as fast as everyone else, and I even had my own way of getting up off [...]