Duchenne Muscular Dystrophy

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Duchenne Muscular Dystrophy
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    I’m new here!

    Hi, my name is AndrewYau. I'm here because my nephew is diagnosed with DMD, in hope to find friends with same issue for Matthew.

    #MightyTogether #DuchenneMuscularDystrophy

    3 comments
    Post

    I’m new here!

    Hi, my name is AndrewYau. I'm here because my nephew is diagnosed with DMD, in hope to find friends with same issue for Matthew.

    #MightyTogether #DuchenneMuscularDystrophy

    1 comment
    Post

    my dream

    one i dream of that we will find a vaccine to duchenne muscular dystrophy , that our boys we live full long life.

    to see them get married finish school go on vacation be grandparents to be part of our community , and live

    life to fullest. that we appreciate what we have and greatful that we have been given today, not worry about

    tomorrow . i dream that one day we treat just like every one else with respect and love for who we are.

    i dream that we will make a difference, and be value for the people we are. i dream that we love our own

    music and celebrate our life, with any one telling we can’t . i just want to dream that there won’t

    be any more war or disease , just to live in peace. is that so hard to ask. why do have to put

    our slef down just because we dont look a certain way, or speak, look what they want to be.

    make fun of others who are different or have a disability , what make them so special.

    we are just the same as others. we love the same to. i just dream that one day we can just

    love and be in peace kimmy

    Post

    I'm new here!

    Hi, my name is SEBASTIEN. I’m new to The Mighty and look forward to meet people who will help me with dealing with my son's DMD diagnosis

    #MightyTogether

    3 comments
    Post

    Tired

    I’m not all sure how this works so I thought I’d just introduce myself first.
    My name is Matt and I’ve had multiple sclerosis for a very long time and for various reasons I have only ever taken one DMD and only for a short period of time. As usual I’m trying my best to give some information about my life and situation but don’t want to come across and needy or in search of sympathy but im sure you all understand and as usual only fellow MSers will understand anyone it.
    I have a habit of rambling on a bit 🙄😆 but when it starts to come out it really comes out. I was diagnosed with MS aged 40 but it appears I’ve very likely had since at least 19 when I was diagnosed with optic neuritis, I had no idea what that meant and neither did anyone else it seems but at least I was in blissful ignorance for the next 20 years and wasa fairly normal bodied person with the odd issue that I always blew off.
    Fast forward to the age of 34 and my wife passed from cancer which obviously had a huge impact on my then undiagnosed MS but as always happens I learned to live with it as much as I good and now I was left with two children to care for aged 34, I didn’t have a clue, I had given up my job six month earlier to look after my wife which ended up the best thing I could have done because we got to spend a solid six months together fully in every way and it was priceless.
    Then after a reasonably short time I met someone online and of course they lived across the pond in America. Ff again and I moved to the states and married this woman. Life just went on as we raised out respective kids together until I had my MS diagnosis and that’s when she decided she wanted a divorce Wichita was devastating to me as I had nothing, she was a successful lawyer and I was a handyman that couldn’t use his arm which was totally numb and stayed that way for 8 month and thank the lord I recovered most of its use back. I started to drive Uber lyft to make a living , my car got written off in a pretty bad accident and I also had health issues following it .
    Ff again and I met another lady who I absolutely worshiped but in known to me she was a meth addict who after about 4 years into our relationship she killed herself. Again I was devistated and I was also evicted from the apartment we lived in so now I was also homeless walking on a walker with nowhere to go. I’ve been living where I can ever since then in friends garages etc. I hope this doesn’t sound to whiny or needy I just get carried away and I guess this is a kind of Theropy.
    I’m trying to write this in stages so that I don’t repeat myself which is always a possibility.
    I get terrible (cogfog) as I call it and can completely forget what’s going on or been said I’m not even sure this post will make any sense and I’m also sure I’ve probably missed things but there ya go, that’s me.
    Hi everyone, it’s nice to meet you all and I hope this post is ok🙏
    #MultipleSclerosis

    4 comments
    Post

    Parenting Child with Duchenne(DMD)

    I am not the best about putting my thoughts and feelings into words. I am really hoping to gather input from other parents facing the same thoughts, fears, jealousies, concerns and even joys of those parenting a child with DMD.  
    As I am on this journey there are many times I feel guilty and upset with myself for having these thoughts and feelings.  I guess I want to see if I'm alone or others are also thinking and feeling the same.