hypermobile Ehlers-Danlos syndrome (hEDS)

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hypermobile Ehlers-Danlos syndrome (hEDS)

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4 Things I Wish I’d Been Told About Living With Ehlers-Danlos Syndrome

4 Things I Wish I’d Been Told About Living With Ehlers-Danlos Syndrome

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Ehlers-Danlos Syndrome

3y

4 Things I Wish I’d Been Told About Living With Ehlers-Danlos Syndrome

I have Ehlers-Danlos syndrome (EDS), and I’ll be the first to admit, I recognized that I might have the syndrome by seeing a graphic on… Pinterest. Yeah. I walked into my doctor’s office, hoisting high my iPhone, tapping the screen and saying, “I really do think I probably sound ‘crazy,’ but I really think I [...]

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left picture is author sitting on bathroom floor crying out in pain, right picture author sitting at desk with hands over her face

left picture is author sitting on bathroom floor crying out in pain, right picture author sitting at desk with hands over her face

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Ehlers-Danlos Syndrome

5y

12 Photos That Capture the Worst of My Ehlers-Danlos Syndrome

As someone with an invisible illness, I’ve encountered my fair share of people who don’t understand what they can’t see. I’ve been yelled at when I climb out of my lifted Wrangler that is parked is a disabled spot. I’ve heard criticism from peers who tell me to stop “faking it” or that I’m “seeking [...]

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photo of blonde woman with glasses looking into camera with angry expression

photo of blonde woman with glasses looking into camera with angry expression

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5y

To the Man Who Accused Me of Not Actually Being Disabled

To the man who thought he knew it all, For me, it was another day of trying to function when my body was hurting and feeling unwell. I was meeting a friend for her birthday. I’d had to walk (or should I say wheel) myself into town because there were no wheelchair accessible taxis available, [...]