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Kaitlyn Alory
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Uncategorized Disorders
9y

The Sentence I No Longer Want to Hear About My Son With Special Needs

“He will be just fine.” “Just work with him; he will be just fine. All babies grow at their own pace.” “If you really get on your knees and pray, he will be just fine. Jesus can fix him.” Friends. Family. Let’s be honest. He will not be just fine. No matter what you say, [...]
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Rebecca Roper
 • 
L1 Syndrome
9y

To the Faulty Gene I Gave My Son

To the Faulty Gene I Gave My Son, Known as L1CAM syndrome, Unlike most genetic disorders, you’re not difficult to spell or pronounce. But you are difficult to understand. It’s difficult to understand that, because of you, my baby has endured three brain surgeries to date and will most likely endure many others. It’s because of you [...]
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